Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Withdrawl Y Or N


DawnMarie127

Recommended Posts

DawnMarie127 Newbie

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciamarie Rookie

Y. :D

That was the short answer. The longer answer is that was my experience, I don't think it's terribly unusual.

deltron80 Rookie

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

For the first two weeks after I quit I felt like I was on drugs, then the next two weeks I was light-headed. Now I'm just getting fatter lol. I bet the head ache is just some weird symptom.

nmull #newly diagnosed Newbie

I have had Migraines recently and I am in my 3rd month of being gluten free. I also felt drugged and lightheaded in the beginning weeks. I thought my headaches were because I had accidentally Glutened myself but I am pretty sure it was withdrawal symptoms :)

krystynycole Contributor

My withdrawals to gluten were 10x worse than my caffeine addition...both I stopped cold turkey! Yeah they are bad :( but they will get better.

  • 2 weeks later...
Mateto Enthusiast

**well this thread really makes me excited to start going gluten-free** :unsure:

mushroom Proficient

**well this thread really makes me excited to start going gluten-free** :unsure:

You just have to keep swimming to the other side of the river, where there is a nice sandy beach and soft green newly mown grass, and ...... :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustNana Apprentice

I wonder what causes withdrawal symptoms from gluten.

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

One really nice thing happened rather quickly for me was that I stopped craving bread and sweets. I still love my corn tortillas, potatoes and Asian rice dishes.

Here's a little tale off topic but so typical of me. I have already smacked myself good over this one. After about 3 weeks of gluten-free food I was craving fried rice. I easily found gluten-free soy sauce and after lots of recipe reading I made a delicious version that my husband now asks for once a week. I always start with cold, long grain rice cooked in broth, at least 8 hours old. Two days in the fridge is even better. I use sauted chicken, pork if I have it and shrimp. Onions, a tiny bit of ginger, some sesame oil, soy sauce, peas and it is easy and so satisfying. So we've had this maybe half a dozen times. Visiting family last week they all wanted Chinese take out so I just asked for a side of fried rice. It was filling and I was happy. At 3:00 in the morning I woke up scratching myself raw. DH flare up! I completely forgot that the soy sauce they used was likely full of gluten!

Sheesh!

peter99ff Rookie

Give it about six months, so ya got 5.5 months to go. I read in a couple of places thats how long, about , for it to get out of your system. GL :)

peter99ff Rookie

Sorry to hear about the soy sauce. Look into salt triggering dh also. I use sea salt, no iodine. ;)

And theres a lot of different types of sea salt, go figure :lol: I dont even use surgical scrub on my hands or I break out.

JustNana Apprentice

Peter

I just today started looking at all the evidence for iodine triggering the DH stuff! I am currently cooking and seasoning food with Kosher salt but using "Iodized table salt" sparingly as I dont want to go totally without.

I am going to really pay attention to the DH reactions to try to figure it out.

All of these things are so NEW to me as my Dr is good but not an expert by any any stretch on the whole celiac/DH/Hashimoto's thing. I am alternately grateful and frustrated at all the issues presented on this forum.

Bless all of you. Thank you so much for taking the time to respond. I appreciate it very much.

  • 1 month later...
Raywuwei Explorer

I guess I am fortunate I had none. The carbs I deleted by going gluten-free I just naturally made up for by eating more rice, corn and even some sweets. ( Mind you, this was not from any logical nutritional decisions but, rather, my tendency to indulge myself because I was feeling "deprived.". LOL

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

sa1937 Community Regular

Same here! I am on day 5 of being gluten-free and getting a little nervous that I'm not having any withdrawals at all. I should probably note that I was diagnosed on accident after suffering from stress induced ulcer-like indigestion. The testing came back negative for an ulcer, but my doctor tested me for celiac just in case... and I had it! I took Prilosec for 10 days and all of my stomach pain went away... Now I feel fine, and I feel a little bit guilty when I read all of the comments on this forum.

Did you have a lot of pain being diagnosed. And did you find that after being on the gluten-free diet for a long time that you started having more severe symptoms when you were glutened?

I was one of the lucky ones who did not experience withdrawal symptoms when I went gluten-free the day of my endoscopy, Some people do; others do not.

I did not have a lot of pain when diagnosed...only the big D, which was bad enough. I do think we become more sensitive after we've been diagnosed and go gluten-free. Sometimes we find other intolerances, which are many times difficult to figure out.

mommida Enthusiast

For some people there is an opiate affect on the brain. :blink:

To ease some of the headache pain. Vitamin supplemented water (smartwater), sublingual vitamin B12, deep breathing as if you were smoking a cigarette, and slowly stretching your neck and shoulders. Use the mantra. Remember what it feels like not to have a headache.

If the headache is still persistant, or you have a fever,, stiff neck get medical attention.

Seriously this really can take away a lot of headache pain. I drove myself to the doctor's office when I had meningitus. (Was promptly wrongly diagnosed with a migraine and sent home.) So like I said any fever with a severe headache, hurts to move your eyes (side to side will send bands of pain), putting your head forward and the pain just explodes, my neck was also swollen to twice the size.

Adults usually do not seek treatment for most viral cases of meningitus. :huh:

  • 3 weeks later...
EPrasn Newbie

**well this thread really makes me excited to start going gluten-free** :unsure:

lol, I can't wait for my bloodtest to confirm this or not for me.

bartfull Rising Star

I LIVED on gluten, and I did have withdrawal symptoms, but they only lasted a few weeks, and during that time OTHER things started feeling better so it was no big deal.

  • 1 month later...
FruitEnthusiast Enthusiast

I have been Gluten free for a week, and today I have a terrible headache on and off all day.. Is this normal??

It's usual to feel worse during withdrawal from anything as the toxins leaving your body cause symptoms. The toxins get stirred up in the process. A detox bath in Epsom salts could help and drinking lots of water, of course. Hope that helps. Hope you feel better :)

  • 2 weeks later...
katt983 Newbie

I'm not sure if it's normal or not. When I first went completely gluten-free, I felt some serious fatigue for a few days - week. I usually really feel it throughout my body when I get some gluten in my diet and feel quite a bit better when following a strict gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748

    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.