Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


Mrs. C

Recommended Posts

pricklypear1971 Community Regular

Okay, I called Gevalia. If anyone else calls just press 1.

Talked with a nice lady that answered "no" to my question "Do Gevalia coffees contain wheat, barley, or rye gluten"?

I then explained that a friend had sent a request through the website asking if their coffees were gluten-free and received a response they contain trace gluten. I then explained the article from 2009 about corn gluten.

She then checked somewhere else (including reading a box of coffee to see what it said) and came back with the response that the FLAVORED coffees contain gluten, but she didn't know what type of gluten.

She is having the question bumped up and someone is supposed to call me tomorrow.

BTW Gevalia hasn't ever called back. Or if they did, no message.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

come dance with me Enthusiast

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

Alarm bells there for sure!

psawyer Proficient

The coffee bean is gluten-free without any doubt. While it is possible that the flavor contains hidden gluten as malted barley, it is not likely. Barley malt is expensive, so rather than hide it, manufacturers will usually highlight it.

I don't like flavor in my coffee, so this is not so much of a concern for me. But I do drink plain coffee all the time, and have never had an issue with it.

  • 3 weeks later...
CeliacAndCfsCrusader Apprentice

If a company says "may contain traces of gluten" AND someone is reporting a reaction, that's enough for me to choose another brand.

Thanks for the information!

  • 1 month later...
zamm0 Apprentice

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

AandGsmomma Apprentice

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

psawyer Proficient

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

Postum is made from wheat and wheat bran, among other ingredients. It is a Kraft brand, so any gluten will be clearly listed, but in this case the wheat is front and center.

Lisa Mentor

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

Can you post the reply, Please? I am not denying your illness, but often times, we react to different things. It does not always mean that a product or a drink contains gluten.

But it would make sense that there would be a CYA statement, when you buy a cup of coffee in a Donut Shop. :blink:

I would like to see their response. :)

zamm0 Apprentice

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

Sorry this is only really applicable for UK readers but here goes and just for info really:

1. Tried two Costa Mochas over the last two days and did not get a reaction and felt fine (their 'Flat White' coffees have given me a mild lactose-like reaction). See here for details:

Open Original Shared Link

2. For the Cafe Nero chain see here for gluten details for their drinks (note: mocha here has wheat) unlike Costa: Open Original Shared Link

  • 3 weeks later...
sandiz Apprentice

I have stopped drinking coffee as it made me sick to my stomach for days after. I also read some where that the roasting of coffee changes it some how and people who are gluten sensitive like me react to it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,216
    • Most Online (within 30 mins)
      7,748

    jan ohlson
    Newest Member
    jan ohlson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.