Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


Mrs. C

Recommended Posts

pricklypear1971 Community Regular

Okay, I called Gevalia. If anyone else calls just press 1.

Talked with a nice lady that answered "no" to my question "Do Gevalia coffees contain wheat, barley, or rye gluten"?

I then explained that a friend had sent a request through the website asking if their coffees were gluten-free and received a response they contain trace gluten. I then explained the article from 2009 about corn gluten.

She then checked somewhere else (including reading a box of coffee to see what it said) and came back with the response that the FLAVORED coffees contain gluten, but she didn't know what type of gluten.

She is having the question bumped up and someone is supposed to call me tomorrow.

BTW Gevalia hasn't ever called back. Or if they did, no message.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

come dance with me Enthusiast

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

Alarm bells there for sure!

psawyer Proficient

The coffee bean is gluten-free without any doubt. While it is possible that the flavor contains hidden gluten as malted barley, it is not likely. Barley malt is expensive, so rather than hide it, manufacturers will usually highlight it.

I don't like flavor in my coffee, so this is not so much of a concern for me. But I do drink plain coffee all the time, and have never had an issue with it.

  • 3 weeks later...
CeliacAndCfsCrusader Apprentice

If a company says "may contain traces of gluten" AND someone is reporting a reaction, that's enough for me to choose another brand.

Thanks for the information!

  • 1 month later...
zamm0 Apprentice

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

AandGsmomma Apprentice

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

psawyer Proficient

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

Postum is made from wheat and wheat bran, among other ingredients. It is a Kraft brand, so any gluten will be clearly listed, but in this case the wheat is front and center.

Lisa Mentor

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

Can you post the reply, Please? I am not denying your illness, but often times, we react to different things. It does not always mean that a product or a drink contains gluten.

But it would make sense that there would be a CYA statement, when you buy a cup of coffee in a Donut Shop. :blink:

I would like to see their response. :)

zamm0 Apprentice

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

Sorry this is only really applicable for UK readers but here goes and just for info really:

1. Tried two Costa Mochas over the last two days and did not get a reaction and felt fine (their 'Flat White' coffees have given me a mild lactose-like reaction). See here for details:

Open Original Shared Link

2. For the Cafe Nero chain see here for gluten details for their drinks (note: mocha here has wheat) unlike Costa: Open Original Shared Link

  • 3 weeks later...
sandiz Apprentice

I have stopped drinking coffee as it made me sick to my stomach for days after. I also read some where that the roasting of coffee changes it some how and people who are gluten sensitive like me react to it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,394
    • Most Online (within 30 mins)
      7,748

    Graceland.h
    Newest Member
    Graceland.h
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.