Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee


Mrs. C

Recommended Posts

pricklypear1971 Community Regular

Okay, I called Gevalia. If anyone else calls just press 1.

Talked with a nice lady that answered "no" to my question "Do Gevalia coffees contain wheat, barley, or rye gluten"?

I then explained that a friend had sent a request through the website asking if their coffees were gluten-free and received a response they contain trace gluten. I then explained the article from 2009 about corn gluten.

She then checked somewhere else (including reading a box of coffee to see what it said) and came back with the response that the FLAVORED coffees contain gluten, but she didn't know what type of gluten.

She is having the question bumped up and someone is supposed to call me tomorrow.

BTW Gevalia hasn't ever called back. Or if they did, no message.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

come dance with me Enthusiast

They never emailed me back after the stupid response about the amount of gluten being suitable for diabetics. Any company that doesn't known the difference between gluten and glucose is scary for anyone consuming these products.

Alarm bells there for sure!

psawyer Proficient

The coffee bean is gluten-free without any doubt. While it is possible that the flavor contains hidden gluten as malted barley, it is not likely. Barley malt is expensive, so rather than hide it, manufacturers will usually highlight it.

I don't like flavor in my coffee, so this is not so much of a concern for me. But I do drink plain coffee all the time, and have never had an issue with it.

  • 3 weeks later...
CeliacAndCfsCrusader Apprentice

If a company says "may contain traces of gluten" AND someone is reporting a reaction, that's enough for me to choose another brand.

Thanks for the information!

  • 1 month later...
zamm0 Apprentice

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

AandGsmomma Apprentice

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbrookes Community Regular

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

psawyer Proficient

Is Gevala really coffee? Wait, I'm thinking of Postum. That has grain, but I don't know what kind. I know I'm safe with my Community with Chicory.

Postum is made from wheat and wheat bran, among other ingredients. It is a Kraft brand, so any gluten will be clearly listed, but in this case the wheat is front and center.

Lisa Mentor

Dunkin Donuts French Vanilla ground coffee isnt gluten free. The label just says "Natural and Artificial flavors" but I reacted to it several times. I couldnt figure out what was making me ill so I emailed and got a CYA explination that their flavored coffee can have gluten.

Can you post the reply, Please? I am not denying your illness, but often times, we react to different things. It does not always mean that a product or a drink contains gluten.

But it would make sense that there would be a CYA statement, when you buy a cup of coffee in a Donut Shop. :blink:

I would like to see their response. :)

zamm0 Apprentice

Have to say I have noticed less of a trend for reaction (and it is always so mild anyway with me) with my own coffee made in a cafetiere. I use Starbucks Verona blend from Asda with a little milk. I am more likely to get a reaction when buying a coffee out and particularly with ones with a higher milk content such as lattes and cappucinos (lactose issue rather than direct gluten issue?), being mindful not to add any 'sprinkles'. Haven't braved the flavoured coffees from such chains such as mochas - unsure as whether this may be a step too far with gluten in the flavouring. A dietician I saw earlier today recommended decaf for a few months (was diagnosed 6 weeks ago).

Sorry this is only really applicable for UK readers but here goes and just for info really:

1. Tried two Costa Mochas over the last two days and did not get a reaction and felt fine (their 'Flat White' coffees have given me a mild lactose-like reaction). See here for details:

Open Original Shared Link

2. For the Cafe Nero chain see here for gluten details for their drinks (note: mocha here has wheat) unlike Costa: Open Original Shared Link

  • 3 weeks later...
sandiz Apprentice

I have stopped drinking coffee as it made me sick to my stomach for days after. I also read some where that the roasting of coffee changes it some how and people who are gluten sensitive like me react to it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.