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How Do You Comfort Yourself When Glutened?

Guest BERNESES

By Guest BERNESES
in Coping with Celiac Disease

Recommended Posts

Guest BERNESES
Guest BERNESES
Posted

I'm just wondering what people do to comfort themselves when glutened. I sleep and tell myself it will pass but I'm wondering if others have ways of coping. Things I'm interested in are things you do- not vitamins you take, etc. It seems that lately sleeping and telling myself it will pass has not been enough and I've been crying a lot with frustration. The people on this board have been a HUGE comfort but I'm just wondering if there's other things I could do, even if just to lift my mood and distract me for awhile. So what do you do to help yourself? Thanks, Beverly

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KaitiUSA Enthusiast
KaitiUSA
Posted

I like to sleep but something I love to do to lift my mood is watch comedies. Whenever I get laughing I seem to forget about how bad I feel and it really helps me to feel better.

I also love to eat my comfort foods too

lorka150 Collaborator
lorka150
Posted

I lay down (I can never sleep, but am so tired I want to die! Good ol' molasses feeling), and chill out. I usually need time to myself because it is always depressing for me. I drink lots of herbal tea and when it's meal times, steam everything to mush. I always feel good eating mushy vegetables.

I tend to feel sorry for myself the first day, which isn't good, but i'm still new at all of this. It's so frustrating still. :(

tarnalberry Community Regular
tarnalberry
Posted

Go about my normal practices. I know it sounds ... something ... but I'm often cranky, so I might whine "I don't want to go to yoga; I want to sit on my ass tonight", but I go. I'll generally be somewhat quiet, sleeping when I need to sleep and doing other low key things like reading or surfing the net or updating my website until the abdominal bits pass. I try to spend some time meditating too, but my ability to not get distracted varies. ;-)

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Hi -

Good post!

What do I do?

I do some more reading/research about what to avoid, and what to be more suspect of, to help prevent it from happening again. I also commit right away to being MUCH more careful about what I put in my mouth, and that makes it easier to not take similar risks again.

I also drink more water, get more sleep and take digestive enzymes...and Tylenol PM (or Ambien or Valium) if I need it for sleep...to let my body rest and heal up...

Plus, my cat, Mr. Bo Jangles, seems to know when I am not feeling well...so, he's always a great source of warmth and cuddling :-)

Gina

burdee Enthusiast
burdee
Posted

What helps me is to relax the cramps, cope with the bloat and move the gas. So I drink really strong herbal peppermint tea, wear my 'celiac' episode clothes (really loose fitting tops and elastic waist pants) and walk, do yoga positions or elevate the foot of my 'tempurpedic' bed while I watch funny movies or "Funniest Animal Videos". :D Also just focussing on anything else which I feel passionate about distracts me enough to remember "This too shall pass ..." I just assumed leadership of our local floundering leaderless celiac support group. I've been soooo busy that I only noticed the excruciating pain once in awhile, even though I've had several 'episodes' in a row this week. :o I'm still not sure what caused this last one. I've been too busy to do adequate post episode contamination culprit sleuthing. :lol:

BURDEE

Rachel--24 Collaborator
Rachel--24
Posted

The only thing that really helps me is sleep....and lots of it. I do get extremely tired but also it helps me escape the pain. If the reaction is bad I'll sleep for most of 2 days. Also I cry alot but after a crying session I'll feel better...then I'll fall into a deep sleep. If the reaction is mild then I'll go outside in the sun and start doing yardwork or something. For some reason being in the sun relieves some of my symptoms. My doc told me its because I'm lacking vitamin D...I don't know if thats the real reason...I just know that it works for me. Luckily I havent had many of the real bad reactions lately.

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Carriefaith Enthusiast
Carriefaith
Posted

I usually try my best to go to school, work, ect, but I don't push it. When I am extremley tired and not feeling well from the gluten I will sleep in for the morning and go to school late. When I get severe pain while I am out or at home I just have to sit there and wait it out.

bratcat Apprentice
bratcat
Posted

Most of the time I walk.Just go out in the yard and wear out the grass.I can't be still,because I am so uncormfortable.I tend to withdraw from everyone and try to walk where no one will bother me.I don't like for people(even family) to see me when I am not my best.I have a hard time coping with being sick.I have never been a whiner,nor could I tolerate anyone who was.If I can't go outside,I do to another room and do some kind of craft--standing up.When I sit down I feel like there is something on top of my stomach that doesn't belong there.Sometimes I get into a good hot bath and just lie there.

jenvan Collaborator
jenvan
Posted

Rest, watch funny shows like Kaiti mentioned... I'll put on some Sex in the City or Gilmore Girls... Focus on normalcy, because I will be there again, take a walk, even a slow one and get some fresh air. I also just taken everything slower and cut back on what I do. If I am really in a bad spot, I may choose to lay down and veg, rather than clean the sink. That's important for types like me who have a tendency to do too much...

rmmadden Contributor
rmmadden
Posted

When I feel lousy I usually try and go for walks to get my mind off how I feel. I also like to listen to jazz or other light music and sleep as much as possible. Finally I rely heavily on my natural magnet belt to ease my aches & pains associated with the bloating etc.

Cleveland Bob B)

Guest BERNESES
Guest BERNESES
Posted

Thanks Everyone- I really appreciate it. I think I need a mental coping scheme. I know what to do physically but sometimes I am just so uncomfortable all I can do is cry. I hate it- I consider myself a relatively strong person but this has pushed me to my limits and I want to find more positive things to do that don't require a lot of physical energy. But maybe some yoga, comedy, sleep and a little walk would help. Calling my sister helps too. Just tired of moaning to my husband and crying on his shoulder. I've noticed if I get distracted I can usually forget how crappy I feel. Best, Beverly

laurelfla Enthusiast
laurelfla
Posted

i'm new to all this, so it's good to see other strategies for coping with the ickiness!

first i call one of my very good friends (i rotate them out so no one has to deal with a crying Laurel every time she talks to me!) and i rant for a few minutes about how awful i feel. after the phone call i lie on the couch and let my cat put his warm paw on my arm (that's what he does when i'm upset -- it's too cute). and i watch my mexican soap opera that i am addicted to. or sex and the city. Bridget Jones is probably my favorite, though, for when i'm feeling down. and i am just as slothful as i need to be until i feel better. (not counting work/school of course). oh, and sometimes i journal about it first, just to get all the emotional response out. then i distract myself with the tv or movies.

Rachel--24 Collaborator
Rachel--24
Posted
i'm new to all this, so it's good to see other strategies for coping with the ickiness!

first i call one of my very good friends (i rotate them out so no one has to deal with a crying Laurel every time she talks to me!) and i rant for a few minutes about how awful i feel.

<{POST_SNAPBACK}>

I do the same thing...its very rare now but for 2 years it was nearly daily. I'm surprised I still have ANY friends! :o Sometimes they'd jokingly say "Isn't it someone else's turn today." He-He...I guess I tortured them. Then when I started to feel better I was out and about and all of a sudden no-one could reach me. They were like "What the heck?...Before we couldn't get rid of you...now you're so busy we cant even *find* you."

I remembered a couple other things I do to feel better....I go to the gym and sit in the sauna and the steam room...which is relaxing and a good way to detox. If I'm feeling like things are hopeless (sometimes I forget that the reactions are temporary) I'll start reading positive info. on this board or elsewhere..that always lifts my spirits. I also watch Sex and the City...funny how many of us turn to that show for comfort. I just finally watched the final episode this week. I didn't get hooked on it till after it stopped airing so I had to wait for the DVD's. Anyway, it was the ending I had hoped for. :D

Guest BERNESES
Guest BERNESES
Posted

Let's turn this into a list. I'll start a new thread. I was thinking about it yesterday when I picked up my pack of "52 Silly Thyings to do When You Are Blue Card" and threw out all the ones that had to do with food. :P Beverly

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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