Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh "spot"

Jetamio

By Jetamio
in Dermatitis Herpetiformis

Recommended Posts

Jetamio Apprentice
Jetamio
Posted

Hi everyone. The beginning of this year, prior to my blood work, I got a nasty spot on my arm that at first I thought was from a reaction to a bite or something but it stayed for months! Long story short, it was DH. Went gluten free and it finally started clearing up. I can still see the mark in the area where it was but my skin marks really easy.

Accidently glutened myself Monday and by Tuesday, the spot started to re-appear with little blisters. It's not nearly like it was in January and it was a small amount of gluten but I'm wondering if it will heal quickly or if it will take forever to heal again. :(

My first real "gluttened" mistake - I'm sure there will be others - but I can't believe how bad it made me feel! The interesting thing was it helped me realize how far I've come.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Everyone is different. For me, a recurrence is less severe but runs the same course (2weeks). Before gluten-free it would just never go away....

squirmingitch Veteran
squirmingitch
Posted

I've been cc'd twice. The first was very early on & I hadn't hardly begun to heal yet so can't determine much by that one. The second time --- it was close to 4 weeks -- it came on sort of slow but ended up pretty much gangbusters.sad.gif

Jetamio Apprentice
Jetamio
Posted
  • Author

Thanks. More blisters have appeared today :( so I suspect it may take a bit to heal up again. Just when my arm was starting to look normal again. LOL!

squirmingitch Veteran
squirmingitch
Posted

May you not have a hard time of it & heal quickly! You just never know.

dani nero Community Regular
dani nero
Posted

I don't think you'll necessarily get blisters every time you get glutened. I got glutened a few days ago and so far my DH spot only got irritated and dry, but no blisters. I did get the blisters easily when I was eating a lot of iodine.. maybe low iodine can help in preventing a full-scale DH attack? This is just speculation :-)

Metoo Enthusiast
Metoo
Posted

Did you test positive for celiac? I tested negative and they wouldn't biopsy my spot, of what might be DH, I decided to go gluten free without waiting for them.

I have a spot of blisters. I have been gluten free for 6 months, and have been glutened 2 times. When i first went gluten free, it completely cleared up, but I could see where it was.

Then the first time I was glutened I broke out in the same area, it took me over 5 weeks to heal. Once I healed, after a few weeks I couldn't tell where the spot was.

The second time I was glutened I broke out in a larger area (even though I consumed less gluten) it took me under 4 weeks to heal.

The area is still a funny color though.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,594
    • Most Online (within 30 mins)
      7,748
    kathleenconley
    Newest Member
    kathleenconley
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.