Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Months Gluten Free, Still Have Issues

sce2012

Recommended Posts

sce2012 Newbie
sce2012
Posted
  • Author

He did say I could just stop it...I don't know if it was because I was on a low dose? 25 mg.

Thanks for chatting w me about this. :-)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

If you just started it, yes, you can stop it but if you have been taking it for a while, you need to ramp down.

I really think you are just still pretty rocky right now, hon.

I never take anything to stop the D when I get it (which is rare now), I want whatever is giving me grief OUT :lol: , but if you need to take something, Pepto Bismal is okay.

Just don't freak when you see the black stool that results. It's just what happens from that stuff.

He has ruled out other bowel diseases, right?

sce2012 Newbie
sce2012
Posted
  • Author

I guess? I had a colonoscopy in addition to the upper endoscopy. Had a ct scan...normal. Have been treated for small intestine bacterial overgrowth. He's calling it ibs but idk.

IrishHeart Veteran
IrishHeart
Posted

I guess? I had a colonoscopy in addition to the upper endoscopy. Had a ct scan...normal. Have been treated for small intestine bacterial overgrowth. He's calling it ibs but idk.

When was the SIBO treated?

sce2012 Newbie
sce2012
Posted
  • Author

Early to mid march

IrishHeart Veteran
IrishHeart
Posted

have you read this?

Open Original Shared Link

IrishHeart Veteran
IrishHeart
Posted

Early to mid march

with what Cipro? how long?

Did he say that would be enough?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sce2012 Newbie
sce2012
Posted
  • Author

Rifaxim for 10 days. I have thought about asking him to treat it again, although he has never done the breath test for it. Diagnosed based on symptoms.

IrishHeart Veteran
IrishHeart
Posted

Rifaxim for 10 days. I have thought about asking him to treat it again, although he has never done the breath test for it. Diagnosed based on symptoms.

Okay, so he treated it without testing for it. No follow up?

But it was an antibiotic, so now you need PRObiotics. okay?

Maybe you are having some die off?

Stay the course, hon. Drink a lot of water so you do not get dehydrated. Avoid too much sugary stuff like brownies for now and if you still have problems, go back and see him.

Hope you feel better in a day or two. Periods can wreak extra havoc for sure.

sce2012 Newbie
sce2012
Posted
  • Author

Well I had a follow up appointment and I told him I had felt better on the antibiotic. I'll give it a day or two and then contact him again I guess. Thanks for your help!

IrishHeart Veteran
IrishHeart
Posted

Well I had a follow up appointment and I told him I had felt better on the antibiotic. I'll give it a day or two and then contact him again I guess. Thanks for your help!

Wish I had more answers for you, but you are right in wanting to make sure you're on the right path here. Give him a call.

I hope you feel better soon!

  • 2 weeks later...
Mom-of-Two Contributor
Mom-of-Two
Posted

What sort of digestive enzymes do you use? Just curious, something I was looking at.

Thanks!

IrishHeart Veteran
IrishHeart
Posted

I use Digest Gold by Enzymedica.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748
    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.