Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Want Some Virtual Hugs

aquaholical

Recommended Posts

aquaholical Apprentice
aquaholical
Posted

I have Lyme Disease and the Celiac symptoms started last September. Officially diagnosed Celiac end of this last March. The last 6 months have been a blur of unbearable pain. As we all well know, going completely gluten free has a steep learning curve and I feel like I am always either accidentally glutening myself or having a lyme flare-up. Always in such debilitating pain and it's starting to get to me. So difficult to cook for/take care of yourself when you're in crippling pain. Trying to decide if I want to take some time off work. Luckily, I have a very understanding/supportive job & co-workers and short term disability available. It's looking more appealing each day, esp on ones like today when I'm incapable anything other than lying in bed..

I just want some hugs.

<3

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Oscar Apprentice
Oscar
Posted

{{{Hug}}} {{{Hug}}} {{{Hug}}} :wub:

See, I'm not really such a grouch after all. ;)

psawyer Proficient
psawyer
Posted

During my journey through celiac hell, which lasted about five years, I had many days like that. I don't share the Lyme issue, so my experience may not be the same as yours. The descent took several years; the rise didn't happen overnight. Although I saw some improvement quickly, it was about four months before I felt normal, and I still had some symptoms for another few months. Coming up on twelve years gluten-free, I have never felt better!

Oh, and you asked for ((((HUGS)))) - there you go!

cahill Collaborator
cahill
Posted

((((HUGS))))

alex11602 Collaborator
alex11602
Posted

(((((((((((HUGS)))))))))))

aquaholical Apprentice
aquaholical
Posted
  • Author

Thank you!!!! {{{{{{HUGS BACK AT YA}}}}}

squirmingitch Veteran
squirmingitch
Posted

Here come some more (((((HUGS)))))!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

I have Lyme Disease and the Celiac symptoms started last September. Officially diagnosed Celiac end of this last March. The last 6 months have been a blur of unbearable pain. As we all well know, going completely gluten free has a steep learning curve and I feel like I am always either accidentally glutening myself or having a lyme flare-up. Always in such debilitating pain and it's starting to get to me. So difficult to cook for/take care of yourself when you're in crippling pain. Trying to decide if I want to take some time off work. Luckily, I have a very understanding/supportive job & co-workers and short term disability available. It's looking more appealing each day, esp on ones like today when I'm incapable anything other than lying in bed..

I just want some hugs.

<3

Lyme is no fun. You have a double-barreled challenge going on right now.

{{{{{{{{{HUGS}}}}}}}}}

MitziG Enthusiast
MitziG
Posted

Many hugs to you! If you have the benefit, take advantage of that. Rest and reducing stress does much good towards helping your body recover!

farmer jennings Newbie
farmer jennings
Posted

Many hugs from us here including my silkie chickens- great snugglers. I know what it is like to have multiple problems. Remember we are all here to support you. I will keep prayers going for you. God Bless!!!

dani nero Community Regular
dani nero
Posted

*Really giant big fat hug* :-D

jeanzdyn Apprentice
jeanzdyn
Posted

(((HUGS))) for you aquaholical.

I really feel bad for those with celiac disease who have other afflictions as well --makes it so much tougher.

And I am greatful that I have not been terribly sick. I have had symptoms that can be attributed to celiac disease since about 1977. I did a lot of research on my own to find 'cures' for various ailments, or, if not cures, then relief in some form. The result was that, long before I was diagnosed with celiac disease, I had eliminated many foods from my diet. So that part has been easier for me.

Anyway, I feel for you! more (((HUGS))) to you.

bartfull Rising Star
bartfull
Posted

Having to deal with constant pain while you are going through this is almost too much for anyone to deal with. Yet you are doing it. You must be a very strong person, and are to be admired for still working. If you think taking time off would help, do it. If you think continuing to work will keep your mind occupied so you have something else to think about besides the pain, do that.

But in the meantime, here's a great big (((((HUG))))) from me, and one from my kitty, Grommit (((((PURR)))))

JNBunnie1 Community Regular
JNBunnie1
Posted

But in the meantime, here's a great big (((((HUG))))) from me, and one from my kitty, Grommit (((((PURR)))))

This is a great idea! Virtual hugs for everyone!!!

Also, do you have any friends with gentle pets? Pet hugs work really good. Also, a Netflix subscription! Lots of comedy that will at least make you laugh, which is very good for your hugs needs!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Lyme disease AND Celiac? :blink:

I don't know how you hold it together!

(((HUGS)))

squirmingitch Veteran
squirmingitch
Posted

Lyme disease AND Celiac? :blink:

I don't know how you hold it together!

(((HUGS)))

Makes the rest of us look like wusses doesn't it?unsure.gif

jigsawfallingintoplace Newbie
jigsawfallingintoplace
Posted

Awwww (((hugs))

i have just come out of a bad glutening after being symptom free for just over 2 months. Its a rocky road that is for sure but someone once saod to me that 'the most difficult paths lead to the most wonderful views'

You are right to feel low - pain in crippling and takes over every waking moment when you are poorly so be gentle and kind to yourself and hold on to the fact that you will come through this and get even stronger. and in the meantime keep coming back here where there is a lot of love and understanding for you sweetie - you are work in progress and you will get there - do whatever it takes to nurture your health and aid your recovery xx

cait Apprentice
cait
Posted

Right there with you. Coming up on 11 years with Lyme. Recently determined it is still active infection, but no good way of treating it since I didn't really respond to years of antibiotics and other fun treatment. Continually adjusting my diet to see if I can get anywhere near how I felt right after going gluten-free. No luck. Exhausted, so exhausted. Pain. Can't keep up with my life. Don't want this to be my life. Don't know what to do.

I feel your pain. Big hugs.

mamaupupup Contributor
mamaupupup
Posted

Hugs Hugs Hugs!

  • 11 months later...
Loey Rising Star
Loey
Posted

Lyme is no fun. You have a double-barreled challenge going on right now.

 

{{{{{{{{{HUGS}}}}}}}}}

 

 

Sending lots of healing (((hugs))))

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,481
    • Most Online (within 30 mins)
      7,748
    NanaE
    Newest Member
    NanaE
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • CeliacPsycho246
      Alprazolam gluten free?

      By CeliacPsycho246 · Posted

      RESPONSE FROM SANDOZ PHARMACEUTICAL - Thank you for your interest in Sandoz. We appreciate you taking the time to contact us.   You requested information about the ingredients of Alprazolam 0.25 TABLETS   Our verification is of the active and inactive ingredients in the local labelling for each product. Sandoz cannot certify our products to be latex free, as we do not test for latex. Sandoz cannot guarantee that the raw materials obtained from external suppliers did not come in contact with minute amounts of other ingredients including gluten, corn, iodine, gelatin, lactose, or animal byproducts during their manufacturing process. Patients are advised to speak with their healthcare providers regarding their treatment.   Please see link for a list of the ingredients and Important Safety Information.   https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=d9b0e228-17cf-40d7-b62e-5050311c571c
    • Scott Adams
      10 years later, my celiac is progressing

      By Scott Adams · Posted

      I think you mean this one.
    • NanaE
      Products

      By NanaE · Posted

      Can anyone suggest a gluten-free heat protectant for hair. My granddaughter is13 and is beginning to use a curling iron. We are needing a heat protectant. She is very sensitive to gluten. She was diagnosed at 3. Diet and products are her life line. 
    • knitty kitty
      10 years later, my celiac is progressing

      By knitty kitty · Posted

      Hashimoto's is a type four hypersensitivity.   Read what this doctor did about hers... https://thyroidpharmacist.com/articles/food-sensitivities-and-hashimotos/ She adopted a Paleo diet. Once you get your inflammation down, and your nutrients up, your body's immune system can calm down and quit reacting to every little thing.
    • GardeningForHealth
      10 years later, my celiac is progressing

      By GardeningForHealth · Posted

      Most doctors would dismiss the experiences I have described here, including my food diary, as somatic reactions, and begin to think of me as a hypochondriac--so I am very careful about what I share with doctors.  Most of the research done so far in the medical field has focused on Type I hypersensitivity: classic IgE-mediated allergic responses. I wasn't even aware of Type IV (or had forgotten about it) until knittykitty reminded me about it with her post. But even when talking about an allergist, does an allergist understand that Celiac is a Type IV hypersensitivity reaction? And if so, would an allergist believe or understand that other foods can cause a Type IV hypersensitivity reaction? And if so, are there objective tests that prove these non-gluten reactions, such as a hypothetical Type IV hypersensitivity reaction to apples, plums, sausage, cassava flour, etc? I do not believe these tests exist right now.  And lets say that these tests did exist, and I could take them, and obtain objective proof (besides my food diary) of my reactions to these foods. Now what? Is there a treatment besides avoiding those foods? I am not aware of it. I would simply be told: avoid all of those foods forever.  And that is not reasonable either. Avoid all of those foods forever? Really? There are times that I feel malnourished. I then will eat a food from the bad list, and suddenly feel much better nourished, but then I have a reaction that begins the next day or the day after that, and lasting many days afterwards. The reaction is always the same: brain fog, fatigue, dizziness, headache, significant enough to impair any productivity. I have been on this elimination diet for about 3 months now, but each time I attempt to re-introduce a food item that I initially reacted to, I have the same reaction. Therefore, I do not believe it will ever be safe in the future to re-introduce a food back into my diet safely. This is a big problem with no solution.
×
×
  • Create New...