Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency

christianmom247

Recommended Posts

christianmom247 Explorer
christianmom247
Posted

What would you guys recommend as the best way for a celiac to increase their intake of Vitamin D? My blood test showed I have a Vitamin D deficiency, even though I have been taking a multivitamin daily with 1000IU (250% daily value) and was drinking 3-4 glasses of milk before my diagnosis. I assume that means that my body isn't able to absorb the vitamin in pill form, and perhaps I need a liquid version or something? My doctor knows even less than I do about this, so I need to know what to push for when I call him back. Thank you so much for you willingness to share your hard-earned expertise! :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

The amount of supplementation for deficiencies depends on how deficient you are.

What was your level?

A doctor should know how much to suggest to you, so honestly, I am surprised he does not know.

If you are very low, some suggest anywhere from 2000- 5000 ius a day and repeat the test in 3 months to see if the level has come up. I took over a year to see improvement in mine. I took 4000 IUs a day--under a doctor's supervision.

But you really should know what baseline you are starting with.

mushroom Proficient
mushroom
Posted

Make sure you are taking D3, not D2. And 1000 per day is not very much. The recommended 400 is a nonsense. People who are really deficient need a loading dose of 5000/day for a few weeks, then every week, to get their levels back up.

love2travel Mentor
love2travel
Posted

After bloodwork, my doctor started me on 5000 (D3) iu per day. It took nearly a year for my values to increase a little. I am now taking 4000 per day and my doctor is closely monitoring me. But then I have chronic pain which is a factor as well. Every body is different.

This is something your doctor should know and help you with.

ldymistic Newbie
ldymistic
Posted

ya know if you want some free vit D, just lay in the sun. :)

frieze Community Regular
frieze
Posted

ya know if you want some free vit D, just lay in the sun. :)

Yup, this IS the way nature intended you to get Vit D. Go out in the mid day sun, 10 min. to a side (lol) and come back in. you DO NOT want to get a tan! that reduces the amount of Vit D made! If you are very fair, you may need to do less, and if darker, more. good luck

love2travel Mentor
love2travel
Posted

ya know if you want some free vit D, just lay in the sun. :)

I have fair skin and cannot lie in the sun; however, I spend time outside, go for walks and so on and do get Vitamin D the natural way. But for me it is not enough - my values are still too low. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

ya know if you want some free vit D, just lay in the sun. :)

Yes, it is true that it does provide some Vitamin D for maintaining adequate D levels.

People with severely tanked levels from long term malabsorption (as mine were) are not going to get their levels up quickly enough to stop serious symptoms by just laying out in the sun. Some of us can't even lie or sit down comfortably for long because we have bone/muscle pain that prohibits that. And some folks just cannot tolerate that much direct sun.

kwylee Apprentice
kwylee
Posted

I think that CONTROLLED sun exposure is a great source of Vit D and the best in my opinion, but I've read that the time needed to reap any benefit is dependent on your place in relationship to the equator. I ran across this website that may shed some light on it, you'll just need to know your latitude and longitude (pretty easily attainable online these days).

Open Original Shared Link

I live in the south U.S. so sun is pretty strong and plentiful here, but I still augment with D3 and from time to time, even a Vit D lamp I purchased awhile back when my Vit D levels dipped to almost non-existent. (I haven't exactly been a sun bunny since my 30's).

Now my Vit D levels hover around the 45 mark having used all 3 sources for the past few years. As I understand it, the D3 is not water soluble, and can build up in your system so you need to be retested periodically, but the sun source will just stop absorbing if not needed by the body, so you can't overdose that particular way.

IrishHeart Veteran
IrishHeart
Posted

I ran across this website that may shed some light on it,

..... the D3 is not water soluble, and can build up in your system so you need to be retested periodically,

Nice pun, kwylee B)

and

absolutely agree---on the re-testing!

Also, those of us in the NE states--less sunny here, sadly----and LOVETOTRAVEL--well, she is still in winter up there, I think! :P

LOVEY? well, did the snow melt yet???

kwylee Apprentice
kwylee
Posted

Nice pun, kwylee B)

haha I didn't even realize I made a pun!!! Gosh, I'm such a robot sometimes!

And also, all this natural sun exposure is supposed to be WITHOUT sunscreen, which makes me nervous, and even more important to control your time in the sun carefully, and in the smallest doses possible. I guess it's that ozone layer thing.

love2travel Mentor
love2travel
Posted

Yes, it is true that it does provide some Vitamin D for maintaining adequate D levels.

People with severely tanked levels from long term malabsorption (as mine were) are not going to get their levels up quickly enough to stop serious symptoms by just laying out in the sun. Some of us can't even lie or sit down comfortably for long because we have bone/muscle pain that prohibits that. And some folks just cannot tolerate that much direct sun.

I agree wholeheartedly. Like you, my D3 levels were extremely low. Just spent time in Croatia/Italy and was in the sun a fair amount (not sunbathing - I detest that) but just walking and doing things. Not that using sunscreen and wearing a hat would contribute to D. I mean VITAMIN D.

By the way, our snow has melted ( :P ) and most trees have their leaves. Some stragglers still haven't had them pop out yet. I just planted my vegetable seeds in the raised beds yesterday!

We get far less sun here than most; thankfully our summers, though very short, boast long and sunny days. :)

IrishHeart Veteran
IrishHeart
Posted

I just planted my vegetable seeds in the raised beds yesterday!

Good for you, girl! ;) Our toms and herbs are in as of yesterday.

and it was (weirdly) 93 yesterday, so yes, this girl got some D too (vitamin D that is) :D

love2travel Mentor
love2travel
Posted

Good for you, girl! ;) Our toms and herbs are in as of yesterday.

and it was (weirdly) 93 yesterday, so yes, this girl got some D too (vitamin D that is) :D

Really? Just yesterday? Whew - it's not just me! :P

IrishHeart Veteran
IrishHeart
Posted

Really? Just yesterday? Whew - it's not just me! :P

we've had a slow start this year... :lol:

love2travel Mentor
love2travel
Posted

we've had a slow start this year... :lol:

And here I thought everyone outside the prairie provinces were already eating their own produce. In Croatia we enjoyed freshly-dug potatoes, peas, cherries, zucchini blossoms, green beans and so on. It was wonderful!

mushroom Proficient
mushroom
Posted

Sun exposure in the southern latitudes under the ozone hole is not recommended for a gal of Irish extraction who has already had basal cell, squamous cell, and malignant (is there any other kind) melanoma. I get my D from supplements, thanks. :P

And I just planted my herbs for the bunnie who roams our patio :rolleyes: (in northern latitude)

IrishHeart Veteran
IrishHeart
Posted

And I just planted my herbs for the bunnie who roams our patio :rolleyes: (in northern latitude)

This bunny-lover thinks you're very sweet to feed them :)

The ones on our property know better than to eat anything I plant.

mushroom Proficient
mushroom
Posted

This bunny-lover thinks you're very sweet to feed them :)

The ones on our property know better than to eat anything I plant.

Sweet be damned!!! I'd like to wring the little varmint's neck and throw him in the sautee pan :lol: Bunnies are only good when they eat other peoples' stuff. And here I was happy to get away from the squirels who always found a way to get to my basil.

IrishHeart Veteran
IrishHeart
Posted

I'd like to wring the little varmint's neck and throw him in the sautee pan :lol:

GASP!! :o and with a thud, IH fell to the floor, faint from the very thought........

woodnewt Rookie
woodnewt
Posted

What would you guys recommend as the best way for a celiac to increase their intake of Vitamin D? My blood test showed I have a Vitamin D deficiency, even though I have been taking a multivitamin daily with 1000IU

I had a vitamin D deficiency (<20) despite living near the equator and getting adequate daily sun exposure. I take vitamin D3 drops x1 a day at a dose of 2000 IU. My D3 elevated to normal levels after about 6 months. This is the only thing that has worked for me.

Roda Rising Star
Roda
Posted

I've been on prescription vitamin D(50,000 iu/gel cap)once weekly since Jan. 2009. My levels are monitored every 3-4 months.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,372
    • Most Online (within 30 mins)
      7,748
    cianb4121
    Newest Member
    cianb4121
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Coeliac UK Research Conference 2025

      By Russ H · Posted

      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.