Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Major Help With Constipation


MaZoodleTwins

Recommended Posts

MaZoodleTwins Newbie

We have only been on the gluten-free diet for a little over a week now and I know it can take a while to heal and for symptoms to improve but I am just curious how long it took anyone who had constipation as a symptom of gluten to stop being constipated once going gluten free. They never had diarrhea, just constipation.

My girls are 3 1/2 and are constantly constipated, the only way they are able to go is with daily Miralax but even with that, they will still get constipated a lot of the time. And I don't like when my tiny little girls are screaming and telling me how bad their butts hurt and asking why their poo won't come out :(

And does anything work better than Miralax? Nothing ever seems to work, or it might work at first but then stops, like increased juice, coconut oil, raisins, prunes, some of that worked for a couple of days or maybe even a couple weeks but then it would stop working and we'd be back to constipated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie C. Newbie

My daughter had celiac-related constipation too. It took her about a month or so to be back to normal in that area. Good luck!

MaZoodleTwins Newbie

My daughter had celiac-related constipation too. It took her about a month or so to be back to normal in that area. Good luck!

Thank You, I hope it only takes a month or 2 for my girls too. One of my girls have been dx with Celiac and the other has the same symptoms but neg. blood & biobsy and a pos. fecal gluten test from Enterolab. I THINK she has Celiac but want to wait and see if the gluten free diet clears up her constipation before eliminating other things from the diet.

CeliacMom2012 Newbie

I have been hoping for several months that my sons constipation would clear up. But not yet, and were going on 6 months gluten-free.

Finally-45 Contributor

I had the constipation problem too, maybe not as bad, since I'd eventually "go," but bad enough that people would wonder how I could drink so much grape juice, prune juice, and other things and not have loose bowels. Now I know what was wrong.

Anyway, my most reliable treatment has been sticking to the gluten-free diet of course, but before this, I always took fish oil capsules (or any oil supplement) 2-3x day. After a couple of days, worked like a charm. Laxatives would cause me pain, without reward. Glad to be able to offer someone else advice finally.

Lfrost Explorer

We have only been on the gluten-free diet for a little over a week now and I know it can take a while to heal and for symptoms to improve but I am just curious how long it took anyone who had constipation as a symptom of gluten to stop being constipated once going gluten free. They never had diarrhea, just constipation.

My girls are 3 1/2 and are constantly constipated, the only way they are able to go is with daily Miralax but even with that, they will still get constipated a lot of the time. And I don't like when my tiny little girls are screaming and telling me how bad their butts hurt and asking why their poo won't come out :(

And does anything work better than Miralax? Nothing ever seems to work, or it might work at first but then stops, like increased juice, coconut oil, raisins, prunes, some of that worked for a couple of days or maybe even a couple weeks but then it would stop working and we'd be back to constipated.

I am curious...did you cut the dairy out of their diets, too? My son has not been diagnosed Celiac (neg. blood test), but he did test positive to allergies (wheat being his highest food allergy). When we cut the dairy out (along with the gluten), the constipation issues were very much improved in about a week. (His poo still 'gets stuck' at times, but nowhere near like before).

I know all too well the feeling of the crying. My son used to sob and beg me to please take it out for him. :( We have been to the ER on days that he was literally 'giving birth' to his poo. We have had concerned friends of my son wondering why he is crying ("owie, owie") in the bathroom as he tries to go. Not fun at all! I hope your girls feel better soon! Hang in there, mommy. (((((((HUGS)))))))

Bubba's Mom Enthusiast

Have the girls been tested for bacterial overgrowth? It can cause constipation. Probiotics are very helpful. Culturelle makes a formulation for kids.

If your twins were born via c-section they may not have the "good bacteria" that babies pick up while going through the birth process. Just wondered, because they're pretty young to have the constipation symptom.

A lot of times you need to cut out dairy for a while too. Maybe try So Delicious brand coconut milk? It's high in the calcium little ones need.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MaZoodleTwins Newbie

Thanks for the replies everyone :)

I have not yet cut dairy out of their diet, I was wanting to see if just a gluten free diet would fix the constipation. Only 1 of my girls were dx with Celiac but they both have the same symptoms so I am still trying to figure out if the other twin has it as well despite negative blood & biobsy tests, she did have a positive Enterolab stool test.

Both of my girls LOVE dairy, milk, cheese, yogurt, sour cream so I certainly hope that I don't also have to cut dairy from their diet, gluten is bad enough but both dairy & gluten, that would be horrible.

I take fish oil and it does help keep me regular but I know that is something that my girls wouldn't be able to swallow and they wouldn't eat it either, unfortunatly. They are very Picky, Picky, Picky so sneaking it into anything wouldn't work either.

My girls were born au-natural, lol, not c-section but that is very interesting about the bacteria overgrowth if born c-section. I can't remember when but I do remember a while back that our Pedi had my girls on probiotics, I can't remamber why though, probably constipation. They used to get sick so often I feel like we used to live at the Dr's office.

I guess that I'll just stick with the gluten free diet for another month or 2 and if I see no constipation improvement I will try cutting out dairy for a week or so to see if that helps.

Lfrost Explorer

There are so many alternatives to milk, almond, rice, coconut, etc. My son was a huge milk drinker and when we switched to almond the constipation cleared up quite quickly (less than a week) and he didn't mind. From what I heard, if your villi (they line the small intestine) are damaged (as with celiac) your body becomes lactose intolerant until the villi heal.

It's worth a shot. It is no fun having kids in pain as they try to do their business!

Bubba's Mom Enthusiast

Thanks for the replies everyone :)

I have not yet cut dairy out of their diet, I was wanting to see if just a gluten free diet would fix the constipation. Only 1 of my girls were dx with Celiac but they both have the same symptoms so I am still trying to figure out if the other twin has it as well despite negative blood & biobsy tests, she did have a positive Enterolab stool test.

Both of my girls LOVE dairy, milk, cheese, yogurt, sour cream so I certainly hope that I don't also have to cut dairy from their diet, gluten is bad enough but both dairy & gluten, that would be horrible.

I take fish oil and it does help keep me regular but I know that is something that my girls wouldn't be able to swallow and they wouldn't eat it either, unfortunatly. They are very Picky, Picky, Picky so sneaking it into anything wouldn't work either.

My girls were born au-natural, lol, not c-section but that is very interesting about the bacteria overgrowth if born c-section. I can't remember when but I do remember a while back that our Pedi had my girls on probiotics, I can't remamber why though, probably constipation. They used to get sick so often I feel like we used to live at the Dr's office.

I guess that I'll just stick with the gluten free diet for another month or 2 and if I see no constipation improvement I will try cutting out dairy for a week or so to see if that helps.

Probiotics help the immune system work more efficiently. If the girls were on any antibiotics the probiotics help replace the good bacteria that gets wiped out along with the bad. It's good to take them together. Most Dr.s don't suggest them, so it's good yours is knowledable about that. They can also help with constipation. Maybe start them again?

tarnalberry Community Regular

You've gotten a lot of good advice. Regardless of a strict dairy issue, calcium is binding, and can cause constipation. Reducing dairy or eliminating it may be a good idea. You could also try adding magnesium supplements (or high magnesium foods, but it's hard to get the higher doses).

You might want to try probiotics regardless. Not only do c-sections alter intestinal flora, but so do illness, antibiotic use, and stress.

auzzi Newbie
Open Original Shared Link
RiceGuy Collaborator

I second the magnesium suggestion, as well as keeping the calcium level from being too high. I'd not hesitate to remove dairy from their diets too. There are so many alternatives to dairy products, including milk, cheese, and the others you've mentioned. Even ice cream.

I've observed that people seem to LOVE the foods with which their bodies have difficulty. Ironic, but true. I suppose it's like the way powerful narcotics throw off body/brain chemistry, and removing the offending substance causes an intense craving. And, gluten and dairy can act as opiates, stimulating some of the same neurons in the brain as heroin (though generally to a far lesser degree).

As for how much magnesium, and what type, magnesium oxide would be the most effective against the big C. A teaspoon or two of magnesium oxide powder mixed into a glass of orange juice can work wonders. If your kids aren't keen to taking capsules, then the powdered form may be easier to get them to take. Although, even at their age, if you tell them it will help them go, I'd think they'd gladly accept it. However, when mixing the powder into juice, it must be consumed immediately afterward, because there is a natural reaction between the powder and most juices. It won't taste good if it is allowed to sit for more than a few minutes. Citrus juices like orange, lemon, pineapple, and grapefruit work best. The more acidic it is, the more effective it will be. Especially when it is high in citric acid. Avoid darkly-colored juices like grape, all berry juices, pomegranate, etc. Unlike many laxatives, magnesium is said to not induce dependency. It works by drawing water into the intestines. Therefore it is VERY IMPORTANT to drink plenty of water after taking it. An 8 oz glass of water every 30 minutes for about 2-3 hours after taking the magnesium should be sufficient. So it is definitely NOT something to be taken at bedtime! As far from meals as possible would be my recommendation.

<EDIT>

I'm not sure how much magnesium very small children should take, or how much water should be consumed afterward, but I'd think it'd be less than an adult.

Hope your children feel better soon!

1desperateladysaved Proficient
I take fish oil and it does help keep me regular but I know that is something that my girls wouldn't be able to swallow and they wouldn't eat it either, unfortunatly. They are very Picky, Picky, Picky so sneaking it into anything wouldn't work either.

I just wanted to say that Nordic Naturals have put out a chewable, flavored, fish oil softgel that some children really like. It is small and easy to swallow if desired.

I like my almond and cocunut milk. You might try beginning to use some subs especially where it is just an ingredient in something. My family likes cold water to drink.

tarnalberry Community Regular

Honestly, my daughter prefers (now that she's old enough to tell us) the almond/coconut milk blend better than whole cow's milk.

Awalls Newbie

My son has celiac disease (neg blood work and pos biobsy tests). He has always been constipated. He is 7 years old and has been on a gluten free diet for almost 2 years and still gets constipated if I dont give him 2 to 3 tablespoons of mineral oil every other day. I put the mineral oil in his choc milk or v8 splash and he drinks it just fine. He is also a very picky eater and doesnt gain weight well. If he gets glutened at school I know to up his mineral oil or he will bleed when he goes poop and it hurts!! Hope this helps. Good luck!!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.