Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Complications?


karkar892

Recommended Posts

karkar892 Newbie

32 year old healthy woman, possible Celiac.

Have been off gluten for about 2 months and stomach pain resolved. However, went on a "gluten-binge" at an event about 2 weeks ago. Since then I've had (in the following order): Frequent urination, low-grade fever, abdominal and pelvic pain, fatigue, mental fog. Most of these have resolved. Had pretty severe constipation for about a week (only went twice) Last Wed I was in the ER for chest pain in the center of my chest (like a fist). Pain moderate and somewhat diffuse. Saturday I was back in ER for squeezing type pain in left chest, left upper arm, and left side of neck. Diagnosed with pre-ventricular contractions (PVCs) of unknown origin. Wearing halter monitor for 24 hours and have stress echo scheduled.

Still no diagnosis. Could this all have started from the gluten binge? Can celiac impact heart like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raven815 Rookie

I don't know, but I am 49 years old, just dx'd and I had triple bypass heart surgery at 42 years old. Coincidence? I wonder. I'll pray for you.

Laura :huh:

IrishHeart Veteran

Your symptoms sound like they are gluten-related. (and I had all the ones you list, including the pain in my chest)

Celiac disease is associated with MANY health problems and involves many organs: heart, thyroid, liver, kidneys, the skin. It affects the brain in ways that are many and varied. I wore a holter monitor 5 times in the last 20 years for erratic heart beat, a-fib and intense pounding, yet my EKG is always normal.

Off gluten, it is, essentially, resolved. But I still have heart palps and a sudden weakness in my body. My doc still watches me as both my parents had/have a-fib and my Dad ( a celiac if there ever was one) required an aortic heart valve transplant.

There are many Pub Med articles that show a relationship between heart disease and celiac. (just google and you will find them)

Here are the cardio symptoms listed in Recognizing Celiac Disease:

CARDIOVASCULAR SYSTEM PROBLEMS

Disorders of the heart and blood vessels.

Angina Pectoris

Aortic Vasculitis

Atherosclerosis

Cardiomegaly

Coronary Artery Disease

Easy Bruising (Ecchymosis)

Hypertension

Idiopathic Dilated Cardiomyopathy

Nosebleeds, Unexplained

I always say this to people who ask me if gluten is their problem:

If you go off gluten for a while and then reintroduce it and you have major debilitating symptoms, then yes, you may have a gluten issue.

You said you are a "healthy 32- year -old woman"

My first question is: what made you go off gluten in the first place ?

christianmom247 Explorer

Wow--I never even thought about a possible connection here! A couple days before I got my official celiac diagnosis, I had a sudden fainting/seizure spell where my blood pressure went down so low it wouldn't even register! So far they haven't been able to find a cause--my heart valve isn't the best, but not THAT bad. I also have high blood pressure even though my weight is normal and my diet very healthy, no drinking or smoking, etc.

Seems there's so much about celiac that they still don't know! :-\

Bubba's Mom Enthusiast

32 year old healthy woman, possible Celiac.

Have been off gluten for about 2 months and stomach pain resolved. However, went on a "gluten-binge" at an event about 2 weeks ago. Since then I've had (in the following order): Frequent urination, low-grade fever, abdominal and pelvic pain, fatigue, mental fog. Most of these have resolved. Had pretty severe constipation for about a week (only went twice) Last Wed I was in the ER for chest pain in the center of my chest (like a fist). Pain moderate and somewhat diffuse. Saturday I was back in ER for squeezing type pain in left chest, left upper arm, and left side of neck. Diagnosed with pre-ventricular contractions (PVCs) of unknown origin. Wearing halter monitor for 24 hours and have stress echo scheduled.

Still no diagnosis. Could this all have started from the gluten binge? Can celiac impact heart like this?

If I get a small dose of cc, one of my first symptoms is throwing PVCs. I've gotten chest pain that radiated to my jaw, arm, and back too.

Before my Dx I had a bad chest pain episode and was taken by ambulance to the ER. My blood pressure was sky high. They did a heart cath and found no blockages. My EKG looks normal unless I'm having PVCs at the time. They had no explanation for the cause of it.

My hubby, who I suspect has Celiac had a nearly fatal heart attack at the age of 50.

My cousin, who I suspect has Celiac has had open heart surgery and is currently on a heart transplant waiting list.

Now that I'm gluten-free I only get heart symptoms if accidentally getting gluten by cc.

mushroom Proficient

I just last week had an ablation procedure for atrial fibrillation which I trace back directly to food reactions. It has been my major food problem. Used to cause fainting initially. I cannot state with certainty that it is gluten; I believe it to be lectins (a different kind of protein) that I react to.

peeptoad Apprentice

I get PVCs even when I haven't been glutened... although so many things can be connected to the consumption of gluten that it wouldn't surprise me if the two were connected.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

recently learned that my blood pressure had been in 2007 as high as 180/115, My pulse was almost undetectable at times. I remember a nurse having trouble with that in my tiny second grade arm. Later symptoms included heavy periods, fluctuating weight gain and loss, water retention, intestinal irritablility, frequent urination, extreme thirst, skin numbness and temperature flushes. My blood pressure would plummet when I went from laying down to standing. In other words I was in serious trouble physically.

This condition was reversed by supplements that helped make up for nutrients I was deficient in. We did not know I had Celiac, though.

I just bought a copy of Gluteen-Free Living. There was a listing of Auto-immune diseases. "Cardiomyopathy is an inflammatory disorder of the heart=muscle." The kind assoicated with Celiac most often is congestive cardiomyopathy. The muscles of the heart swell and the heart gets weak. It states that a gluten free diet helps the heart to function better.

I expect that I will have some ineviditable consequences of living with 30 years of gluten intolerance or more. I expect to be amazed at the design of the body going forward and heal as best I can.

Lucy Lastic Newbie

If I get a small dose of cc, one of my first symptoms is throwing PVCs. I've gotten chest pain that radiated to my jaw, arm, and back too.

Before my Dx I had a bad chest pain episode and was taken by ambulance to the ER. My blood pressure was sky high. They did a heart cath and found no blockages. My EKG looks normal unless I'm having PVCs at the time. They had no explanation for the cause of it.

My hubby, who I suspect has Celiac had a nearly fatal heart attack at the age of 50.

My cousin, who I suspect has Celiac has had open heart surgery and is currently on a heart transplant waiting list.

Now that I'm gluten-free I only get heart symptoms if accidentally getting gluten by cc.

That's interesting. I didn't know what PVC was until after I read this and looked it up but I have had skipped heart beats and palpitations for the last 20 years which is the same length of time I have had IBS. They seem worse when my intestines and stomach are flared up too. Wow.

karkar892 Newbie

Update:

Blood shows potassium and magnesium right on the dot for lowest possible level of "normal" but perhaps that is low and not normal to me bc of malabsorption?

Stress echo normal. Kicked up 1000 pvcs while on halter. Still having symptoms....

mushroom Proficient

Update:

Blood shows potassium and magnesium right on the dot for lowest possible level of "normal" but perhaps that is low and not normal to me bc of malabsorption?

Stress echo normal. Kicked up 1000 pvcs while on halter. Still having symptoms....

Lowest possible level of normal is not "normal". You need to really up your electrolytes, keep a 4:1 ratio of potassium to sodium,for the sodium/potassium pump to work properly, and make sure that your magnesium is getting into the cells, not just between them. Can't stress enough how important good levels of K and Mg are. There is a test called the Exatest to check your intracellular magnesium. When I find out how to get it I will let you know - I am on its path :ph34r:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Teaganwhowantsanexpltion posted a topic in Introduce Yourself / Share Stuff
      0

      A little about me and my celiac disease

    2. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    3. - Paulyw commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. - xxnonamexx posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Healthy Gluten Free Foods low sugar that you found?

    5. - Jmartes71 replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,232
    • Most Online (within 30 mins)
      7,748

    Melvin McDowell
    Newest Member
    Melvin McDowell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.