Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Group In Boston

jenna

By jenna
in Introduce Yourself / Share Stuff

Recommended Posts

jenna Newbie
jenna
Posted

Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sb4480 Newbie
sb4480
Posted
Hi

this is my first time here.

new to celiac-can someone pls email me re: a supt group in boston area-actually live in watertown

<{POST_SNAPBACK}>

Hi Jenna,

I live in Reading but I would be totally willing to be an email buddy until you find a group. I'm looking for one as well.

Steph

Stephberry2002@yahoo.com

jenvan Collaborator
jenvan
Posted

Hey ladies! Here is info I could find on you for boston groups--just contact them and ck it out. Good luck!

Group: The Healthy Villi, Boston Chapter, CSA/USA

City: Boston

Contacts:

Ann Dodds-Frerichs

84 Mill St.

Westwood, MA 02090

781-255-9033

Nola Ford

6 Ellery Square

Cambridge, MA 02138

617-547-1828

Marjorie Rogers

28 Bacon St.

Natick, MA 01760

508-653-5465

Internet:

Marjorie Rogers, mwrogers67@aol.com

Danna Feldgoise, gooseink@BITWISE.NET

Nixie Raymond, raymond@world.std.com

Updated: 10 Mar 2001

Group: Children's Celiac Support Group

City: Boston

Contacts:

Laurie A. Higgins

GI/Nutrition, Hunnwell grd

Children's Hospital

300 Longwood Ave.

Boston, MA 02115

Tracy Keegan

617-355-2127

Internet:

Laurie A. Higgins, Higgins@a1.tch.harvard.edu

Tracy Keegan, eaglekeeg@aol.com

WWW: WWW.childrenshospital.org/celiac

Updated: 21 Mar 2003

Chaula Hopefisher, Pittsfield

413-499-4380, hopefisher@chaula.com

CSA Healthy Villi Boston Chapter #67 Click here for this chapter's Website

Greater Boston Celiac/DH Support Group, Inc. Chapter phone #: 617-262-5422 toll-free: 1-888-4-CELIAC

CSA Massachusetts & Rhode Island Celiac Support Group for Children and Adults, Too #72 Click here for this chapter's Website

Mary Arruda, West Greenwich, RI

401/385-9175

Tanis E. Collard, Attleboro

508/399-6229, csgc@ix.netcom.com

  • 2 years later...
fruhead Newbie
fruhead
Posted

hi there,

Unfortunately, I am unable to find **any** local support groups in Boston. :unsure: I am aware of The Healthy Villi (and joined a month or so ago)...their meetings are OUTSIDE the general Boston area. I understand this is due to traffic volume issues. However, this poses a problem to people (like me!) who do not own a car. :(

Is there a way to get a Boston group going? Actually **IN** the city of Boston...or at the very least, accessible by the MBTA system? (Preferably by train, not by bus.)

Otherwise, if anyone attends the Healthy Villi meetings, would they be willing to give us car-less folk a ride to the meetings?

I am at wits' end looking for a support group. I was just diagnosed earlier this year and mostly have a grip on it, but I would still like a support system of folks who have gone through the same illness as me.

thank you,

Lisa

melmak5 Contributor
melmak5
Posted

I am in Cambridge and in the same "no car" situation.

Maybe if there are enough people who post in this thread we could all meet up and go from there.

rbh Apprentice
rbh
Posted

Hi Lisa -- unfortunately I can't be of help in getting to the Healthy Villi meeting as we probably won't go this time. However, I did want to let you know that the Not Your Average Joe's Restaurant in Watertown is very willing to accommodate gluten free diners. Apparently, they are in the midst of planning a specific gluten free menu too, but even now they are very friendly. (I live in Newton)

Rochelle

carriecraig Enthusiast
carriecraig
Posted

I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rbh Apprentice
rbh
Posted
I used to love going to Not Your Average Joe's in Needham (where I worked) and Watertown (where I lived)! I haven't been there since before I was diagnosed and used to LOVE eating their bread with that olive oil/garlic/cheese dipping sauce.

I now live in NJ, but I'm glad to know that NYAJ is going to have a gluten-free menu - it will be good for when I visit.

The dipping sauce for the bread itself is gluten free, so if you bring your own bread, they will mix up the sauce.

  • 3 weeks later...
melmak5 Contributor
melmak5
Posted

Would anyone seriously be interested in meeting up in/around Boston?

  • 3 months later...
superbeansprout Rookie
superbeansprout
Posted

Would anyone seriously be interested in meeting up in/around Boston?

Hi there, so I know this thread has been not answered in a while, but if anyone out there in Boston or thereabouts is still interested in getting together, I'm game. My name is Liz, I work in Medford (there is a Not Your Average Joe's in my office complex!) and it's accessible by MBTA orange line at Wellington Station. I am also willing to travel around the city and to the south shore as well, as I live in Marshfield...and have a car...so if anyone hears of a good support group, and wants to go, I'm willing to carpool. Or if we just want to start our own group, we can do that too!

Nina12488 Rookie
Nina12488
Posted

I am in college during the school year... but am from Hull, MA! If a support group does get started around the Boston area... let me know!

sallyterpsichore Explorer
sallyterpsichore
Posted

Darn it, I just lost my post. Anyway, I live in Brookline, work in JP, and am a member of the Healthy Villi, but also am dependent on public trans. I was thinking awhile ago about starting a dinner group with local celiacs in the area, but have since added other things to my platter and don't have enough time anymore for that, really.

However, I'd be very open to meeting up with all of you. We could just head downtown and grab a bite at Legals or PF Changs. None of my friends have celiac and they're probably sick of hearing about it! :D

There's also a place out by me in Washington Square that has Redbridge and are aware of celiac disease and know enough about the diet to be able to make gluten free stuff, I've heard.

Looking forward to meeting you all!

~Sally

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.