Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Reaction


RonSchon

Recommended Posts

RonSchon Explorer

The most frustrating part of being gluten clean is the learning process.

I could eat from a very tight menu and be ok, and maybe that is what I'll end up doing.

I got hit again last night. It could have only been "Wonderful Pistacios", unless it was some kind of odd cross contact.

They say on the packaging, contains no gluten. I know that doesn't mean gluten free.

I keep getting burned by "contains no gluten" as I try and see what will work for me. Gets expensive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FruitEnthusiast Enthusiast

The most frustrating part of being gluten clean is the learning process.

I could eat from a very tight menu and be ok, and maybe that is what I'll end up doing.

I got hit again last night. It could have only been "Wonderful Pistacios", unless it was some kind of odd cross contact.

They say on the packaging, contains no gluten. I know that doesn't mean gluten free.

I keep getting burned by "contains no gluten" as I try and see what will work for me. Gets expensive.

Try looking for a green symbol that's a circle with gluten-free inside on the back of products. Those products are supposed to be certified gluten free. Other things that say they are gluten free, may or may not be, as I have also found out the hard way. Some manufacturing facilities are certified gluten free, even better. Health food stores are best for the safe stuff. A chain near me called "Sprouts" offers a booklet that lists which of their products are actually gluten free. Very helpful.

Adalaide Mentor

I've eaten the Wonderful Pistachios with no reaction. I haven't ever contacted the company to verify that they are processed in a gluten free facility, and would probably do so before having them again once I am able to add nuts back to my diet. You're right that just because a food in it's natural state is gluten free it doesn't mean that it remains gluten free but a quick call to the company would clear this up quick instead of eliminating a perfectly healthy food if you don't need to.

mamaw Community Regular

Cashews & pistachio's are two nuts that give me trouble. SO it may not be that you were glutened but just don't tolerate pistachio's...

RonSchon Explorer

Cashews & pistachio's are two nuts that give me trouble. SO it may not be that you were glutened but just don't tolerate pistachio's...

Good point, Mamaw... I didn't get my symptoms as heavily as I have from my other contaminations - enough, bloating was full on, D, and light fog with light eyesight degradation. My previous reactions over the past couple of weeks were much worse.

Adalaide, I think the reason they don't go the route of gluten-free is because of shared equipment. The planters brand nuts won't even say "no gluten" on them which Wonderful actually does.

1974girl Enthusiast

My non celiac husband spends most of Christmas in the bathroom because every year my 88 yr old Memaw gives him cashews. He can't eat just one. He eats the whole thing in 1 sitting!

IrishHeart Veteran

The planters brand nuts won't even say "no gluten" on them which Wonderful actually does.

The Planter's peanuts are fine. They are a Kraft food, which will clearly display "contains wheat" if they do.

http://www.gfoverflow.com/results.php?q=brand:+Planters

Any company can "say" ....."no gluten ingredients" or "naturally gluten free" or "gluten free" but if it does not have the GIG certification, which is a black G F in a circle, then they are not "certified" .

Some people need to eat from dedicated facilities. Some people tolerate foods that are processed in shared facilities with wheat and some folks do fine with foods processed on shared equipment.

And some foods which are really "naturally gluten free" --like oranges and eggs---do not require any label.

Labeling laws require they list "contains WHEAT". But, that's it.

Many companies, like Kraft will label allergens on the products.

The rest if up to us INDIVIDUALLY to figure out if it is "safe enough". Read the labels.

If you are newly Dxed, anything could still be sparking a "reaction". It does not mean it is gluten or cross- contaminated by gluten.

I had continuing symptoms for more than 10 months post-DX and I was as "clean" as it comes. My home, my food, my husband :) and my whole foods diet.

Read about food labeling laws so you understand how it protects us. Knowing the company policies helps.

I suggest something like Cecelia's Marketplace Gluten Free Shopping Guide if you want a comprehensive guide of gluten-free products.

Just know that companies can change ingredients and processing at any time.

I have been "burned" by a company telling me "we clean the lines that process wheat before we do the gluten free products--you'll be fine"...I wasn't...but that's just me and my system. Others do fine with that.

I eat Planter's peanuts and have no problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 6 years later...
Guest

Well, I am not allergic to the gluten and can eat most nuts like cashews, pistachios, and almonds etc. without any worries.But, when it comes to pistachios, I prefer the unsalted one. 

salted pistachios can increase the water retention in the body and may imbalance the blood pressure level.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    3. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748

    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.