Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wowie Zowie!


bartfull

Recommended Posts

bartfull Rising Star

OK, so most of you know that I have an absessed tooth and had to start on a corn-filled antibiotic because the compounding pharmacy couldn't make the corn free stuff right away. I have been super sensitive to corn almost from the start.

Well, I finally got the good stuff last night. Before I got it though, I took five doses (ten capsules) of the ones that have corn starch as a filler. I know it has corn starch because the pharmacist told me.

I have had no reaction whatsoever!!!!!!

I have heard so many times that once we heal we can start adding back some of the foods that bother us, but because I was SO senstive to corn, I figured corn would be off limits forever.

Now, I'm not going to push it by going out and eating a bunch of corn, but once the absess is all better (and it IS getting better - the swelling is starting to go down), I might just go get some UDI'S, which would be the best treat I could ask for. And who knows, maybe I'll get nightshades back one day too.

Hope - the most beautiful word in the English language.

(I hate to think that I might start gaining back some of the weight, and I know that between the gluten-free bread and maybe eventually the Kettle Brand chips, I WILL gain some of it back, but if I have enough will power to have lived on such a limited diet for over a year, I can pace myself and not overdo it. I HOPE!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

That is wonderful news!

I am hopeful for your continued improvement -- which in turn will bring more hope to all of us :)

GFreeMO Proficient

Wonderful Bartful!!!!!!

kareng Grand Master

That's great! Even if you can't eat much corn it would make life easier

beachbirdie Contributor

WOOT!!

I am so glad you are feeling better, and that is REALLY good news about the corn. It is hard enough avoiding gluten, corn starch is in so many foods!

squirmingitch Veteran

What a marvelously empowering feeling bartful!!!!!!!!

I'm jumping up & down with joy for you. Doing a happy jig.laugh.giflaugh.giflaugh.giflaugh.giflaugh.gif

It DOES give the rest of us hope & inspiration.smile.gif

bartfull Rising Star

I heard on the radio this morning that 75% of the foods in grocery stores have some form of corn in them. If you consider that most fresh produce does not, that means almost 100% of processed foods do.

I will NOT start eating all that processed junk again, but it'll be nice to be able to buy those baby carrots that are washed in the corn-filled citrus wash again. And it will be WONDERFUL to start using the $6 a bottle Tylenol instead of paying $36 for the same sized bottle of the compounded stuff.

And if I go easy on the Udi's, just think - I'll be able to eat a CHEESEBURGER again!!!! Of course the meat will continue to be grass fed or bison, but to actually have one on bread will be a dream come true.

And PANCAKES! I will be able to get some Pamela's and make PANCAKES!!!

I need to stop dreaming in case it was just a fluke!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Trust me, take it very slowly! Are you sure that your pills do in fact have corn?

I'm not trying to "rain on your parade" I just don't want you to get sick! I know it's made you so sick in the past!

:)

bartfull Rising Star

Trust me, take it very slowly! Are you sure that your pills do in fact have corn?

I'm not trying to "rain on your parade" I just don't want you to get sick! I know it's made you so sick in the past!

:)

That's why it blows my mind. The pharmacist here in town knows I am intolerant to corn and that's why he warned me that the filler used in this med is corn starch. He questioned that the doc would prescribe it for me. When I explained, he understood, but he felt bad knowing that I was going to be sick from it.

I am definitely going to take it slowly. I'm going to wait to try the Udi's until the tooth is removed. That means at least another week or two. I will buy ONE loaf, and eat ONE slice. If I have no reaction I will eat another slice a couple or three days later. And even if I don't have a reaction after the second slice, I will continue to space it out that way - one slice every two or three days. (I can have an open faced cheeseburger.)

And yes, corn has made me sicker than gluten does. But if this continues, and it turns out I CAN eat corn again, that gives me hope for YOU. Like I said in the other thread, if you can just avoid getting accidently glutened or corned for several months, my hope is that you too will heal completely and be able to get corn back.

I am praying for us both!

IrishHeart Veteran

First, you could tolerate the vitamins & now this!!!

well, YEEHAW girl!! :D

HEALING HAPPENS and you are rightfully celebrating!

I am dancing for you on my front porch right now...look!...see me?? That's me doing the "yeah baby" dance...

You mentioned HOPE...girlfriend, I LIVE on HOPE .... It is what sustains me.

HOPE looks FORWARD ;)

Keep looking forward.

hugs and xx, IH

bartfull Rising Star

Thanks IH! I wish YOUR pain could magically go away too! I know how much you have and still are suffering. Yet you are here and cheerful every day. You have helped me and so many others, so much. Big (((((HUGS))))) to you!!

IrishHeart Veteran

Thanks IH! I wish YOUR pain could magically go away too! I know how much you have and still are suffering. Yet you are here and cheerful every day. You have helped me and so many others, so much. Big (((((HUGS))))) to you!!

:wub: aw, thank you, sweets! My day will come, too! never say die.

I am just glad you are okay!!

squirmingitch Veteran

Awwww, now you guys got me all weepy --- the good kind of weepy.

Razzle Dazzle Brazell Enthusiast

OK, so most of you know that I have an absessed tooth and had to start on a corn-filled antibiotic because the compounding pharmacy couldn't make the corn free stuff right away. I have been super sensitive to corn almost from the start.

Well, I finally got the good stuff last night. Before I got it though, I took five doses (ten capsules) of the ones that have corn starch as a filler. I know it has corn starch because the pharmacist told me.

I have had no reaction whatsoever!!!!!!

I have heard so many times that once we heal we can start adding back some of the foods that bother us, but because I was SO senstive to corn, I figured corn would be off limits forever.

Now, I'm not going to push it by going out and eating a bunch of corn, but once the absess is all better (and it IS getting better - the swelling is starting to go down), I might just go get some UDI'S, which would be the best treat I could ask for. And who knows, maybe I'll get nightshades back one day too.

Hope - the most beautiful word in the English language.

(I hate to think that I might start gaining back some of the weight, and I know that between the gluten-free bread and maybe eventually the Kettle Brand chips, I WILL gain some of it back, but if I have enough will power to have lived on such a limited diet for over a year, I can pace myself and not overdo it. I HOPE!)

Omg thanks for sharing Bartfull! That is so encouraging to someone who is just at the beginning of gluten-free and CF with other intolerances as well. Luckily i havent lost too much weight yet. I am amazed i still keep losing with the amount of food overall and specifically carbs but i guess i cant complain since i was overweight while i had a diet that was not gluten restricted :-) youre a tough one! I am so happy for you that you are seeing more options open up for you. Good luck!

love2travel Mentor

Thanks for sharing your awesome news. I know how concerning and downright painful an abscessed tooth can be (I had one and had to have an emergency root canal over Christmas). But I do not have an issue with corn as you do. Stories like this are good for the soul!

ciamarie Rookie

I loved the subject, so I had to look at the thread. :) That's great news! It is nice to be able to add something back, hopefully it works that way for you!

YoloGx Rookie

Hi Barful,

I am so glad to hear you did not react to the corn in the original antibiotics. I know for myself I have often been able to tolerate something once every 3 to 7 days. Some things its all the way up to once a month. But sometimes even then its worth it, eh?

Its nice to realize your leaky gut is a little less leaky more than likely. Good job!

Meanwhile I hope you get your tooth extracted by the good dentist. I found using yarrow tea afterwards helped keep the blood clot in place.

Cooled down Yarrow tea helped my good friend I mentioned who has gone through the same thing with an abscessed tooth recently. You can use the yarrow tea both before and after the operation. It helps take down pain and inflammation plus as said helps the blood to clot very effectively and stanches the bleeding. Be certain to not take it for over a week at a time. After two weeks its hard on the liver. It is bitter but will likely give you a little energy boost.

Be sure not to spit or use a straw or smoke. Take it easy physically too.

By the way, an extraction usually costs way less than a root canal etc. I am betting your dentist will allow you to make payments.

Good luck to you!

Bea

bartfull Rising Star

Thanks, Bea.

It never rains (especially lately!), but it sure does pour sometimes. Now my darned CAR has broken down! Money is so tight right now and I know I have to get this tooth out, but I need a car too. My friend looked at it and determined that it is the starter. On my car, you have to take the engine out to even GET to the starter so it's going to be pretty costly. I could walk to work (it's only a mile), but the walk home is up a very steep, very long hill, and in this heat and with the way I've been feeling, I don't think I could do it.

I'm just going to have to bum rides from people until I can save enough to get it fixed. I was HOPING to get my furnace fixed some time this summer. That stopped working this spring too. I have a couple of those oil filled electric radiators and those got me through the rest of spring. I think I'm going to buy one more (at a yard sale) so I can put one in the basement to keep the pipes from freezing this winter.

Everything seems to be falling apart! :angry:

Bubba's Mom Enthusiast

I'm so happy that you aren't getting the bad reactions that you were! That gives me hope that I might get some things back too, one day.

I hope you can get that tooth taken care of. Dental problems are just miserable. I had 2 teeth break..two months apart. Needed crowns on both. That was expensive.

Fresh corn on the cob looks so good when my family is eating it. Maybe next summer I can join them? :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,950
    • Most Online (within 30 mins)
      7,748

    stichael
    Newest Member
    stichael
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.