Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swelling Of Ankles And Hands?

Mjohnson73

By Mjohnson73
in Coping with Celiac Disease

Recommended Posts

Mjohnson73 Apprentice
Mjohnson73
Posted

Hey all,

my ankles and hands have been swelling lately and I was wondering if that would be a symptom of my fibromyalgia or my Gluten Intolerance...

anyhow... let me know what you guys think....

--Maya

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdford Contributor
cdford
Posted

I have both FMS and GI...and my hands and feet swell something fierce, especially during the summer months. My shoes are loose in the morning yet leave whelps by evening and I am just now getting to where I can wear my wedding band again after several years.

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

ok so it is from both or one or the other but not sure which one :)

got it ... thanks...

it is just frustrating cause it is painful...

thanks for the info...

--Maya

ravenwoodglass Mentor
ravenwoodglass
Posted
ok so it is from both or one or the other but not sure which one :)

got it ... thanks...

it is just frustrating cause it is painful...

thanks for the info...

--Maya

<{POST_SNAPBACK}>

Yea, I get both, by the way my fibro was caused by the gluten and has been gone now for a while so you may see that resovle. Hears what my PT told me to do and I found it helps a bit. I would lie on my bed with my legs straight up at the hips against the wall and my hands on 3 pillows to keep them as high as possible, She had me do this a couple times a day and again 3 hours before bed. This would help drain some of the fluid which I could then pee out before sleeping instead of waking up 3 or 4 times a night. Also cut your salt intake sharply in the summer months or when glutened. A massage therapist may be able to show you how to do a lympahtic massage on your arms and legs also to rid your body of the excess fluid. I found after about a year gluten-free this was no longer an extreme occurance. Unless I am glutened now I find I only sweel the 'normal' amount everyone else does.

VydorScope Proficient
VydorScope
Posted

Lots and lots of things can cause that, too much salt in your for examlpe, diabeates is another. So realy hard to blame it on anything. :(

Guest kfrancisvt
Guest kfrancisvt
Posted

I find that if I don't eat gluten free my fingers will swell and my joints will ache like you wouldn't believe. Once I get the gluten out of my system, my swelling and aches go down.

Eliza13 Contributor
Eliza13
Posted

Kfran....

The EXACT same thing happens to me. That was the final straw that got me complaining to my doc prior to diagnosis. Bad joint pain, swollen feet and hands, and itchy legs. I was never checked for the fibrom though....wondering if I should now, but all of that is gone by going gluten-free (and I have yo-yoed!!!).

:)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


zakismom Newbie
zakismom
Posted

I was the same way before finding out I had celiac. It was so bad my hands cramped into one shape and I could barely hold on to anything (I'm an optician so this was a HUGE problem.) Also, my feet were so big I couldn't wear my regular shoes. A few a the medical people I saw actually started to think I had a heart problem because of them. After going gluten free the swelling went down within a month or so but, the pain didin't really go away until a year or so. It is much better now so keep the gluten out of your diet!

Guest kfrancisvt
Guest kfrancisvt
Posted

Skarlet13...

You mentioned the itchy legs ... I too have that at times but I thought it was because I wore nylon trouser socks during the day (and I don't usually wear them when I am in Florida) and that I was in a different, drier environment. But the itchy legs do tend to correspond when I have eaten something with gluten.

Thanks for the insight!!!!

bluelotus Contributor
bluelotus
Posted

I don't get the swelling, but I do get sore joints - esp. my ankles and knees. I remember seeing a physical therapist years prior to celiac disease diagnosis and she couldn't figure out what was up with my ankle (usually my left one that is most bothersome, kind of weird that it is not symmetrical). Anyway, nice to know that I wasn't the only one with these odder symptoms.

Here's an ignorant question - what is fibromyalgia? Is that related to your celiac disease?

nettiebeads Apprentice
nettiebeads
Posted

[(usually my left one that is most bothersome, kind of weird that it is not symmetrical). Anyway, nice to know that I wasn't the only one with these odder symptoms.

Here's an ignorant question - what is fibromyalgia? Is that related to your celiac disease?

<{POST_SNAPBACK}>

  • 2 weeks later...
de caps Contributor
de caps
Posted

I had very severe swelling in my lower legs. I could put a hand print on my shin it was so bad. After being gluten free for one week it went away completely.

My Primmary Care MD , didn't consider celiac disease. It was my oncologist( I have Melanoma) who diagnosed me. MY primary MD still won't admit this was from the celiac disease. I'm now looking for a new Primary care doctor.

judy05 Apprentice
judy05
Posted
I was the same way before finding out I had celiac.  It was so bad my hands cramped into one shape and I could barely hold on to anything (I'm an optician so this was a HUGE problem.)  Also, my feet were so big I couldn't wear my regular shoes.  A few a the medical people I saw actually started to think I had a heart problem because of them.  After going gluten free the swelling went down within a month or so but, the pain didin't really go away until a year or so.  It is much better now so keep the gluten out of your diet!

<{POST_SNAPBACK}>

I used to get the cramps in my hands, I would have to massage them and it really hurt, as long as I stay on the diet I'm OK..

GC1 Rookie
GC1
Posted

Maya,

I've been gluten-free for about 9 weeks. My hands had stated swelling (and turning 'white') about 3 yrs ago. They no longer swell, unless I eat a large meal of beef or pork (or naturally gluten--2 times since gluten-free). To show how long it had been effecting me, that I didn't even realize; a ring that I wear everyday, now fits very loosely, and it was bought over 5 yrs ago.

As others stated, many things cause swelling, but if it's not something fully controllable, you might consider Black Cohosh as an aid... but get an OK from a professional; BC is VERY potent. It is an excellent anti-inflamatory, but is one of the most potent 'herbs' available. I take it about every 3 days, and have no doubt it is helping me heal from yrs of gluten posioning.

GC

Mjohnson73 Apprentice
Mjohnson73
Posted
  • Author

Thanks for all the information!

I am glad I am not the only one with swollen ankles and hands...

Lately my right ankle has been really bad even tho I have been 100% gluten free.... but it could just be edema too (I have been diagnosed with that in the past too...)

somedays I keep telling my hubby that the first day they offer brain implants into other bodies...sign me up! Altho a lot of it is "In the head" so I guess that won't work after all....

sigh...

oh well...

--Maya

  • 2 weeks later...
Stephanie1 Newbie
Stephanie1
Posted

I've only been gluten-free for about a week and a half. Blood work points to celiac, but waiting for the biopsy until next week. My swelling of ankles and hands didn't start until AFTER I went on the gluten-free diet...is that weird? It seemed like once my vomitting and diarrehea symptoms went away when I stopped eating gluten, the swelling started, and I've never retained water like this! (I just delivered a baby 2 months ago...was NEVER swollen) Am I doing something obviously wrong? It's really getting frustrating because when I get rid of one problem, it seems another comes along! Help!!

aikiducky Apprentice
aikiducky
Posted

Give it more time before you panic, Stephanie. It could be that with the vomiting and D that you just couldn't retain that much fluid before... <_< Hopefully it'll improve when you start to heal.

Pauliina

  • 10 years later...
AnitaL Newbie
AnitaL
Posted

Just learning about all this...I had intense achiness, fatigue, and swelling in my ankles and feet yesterday within an hour of eating some bagels. So I googled Celiac + ankle swelling, and this article came up. But for Maya and anyone else who may be interested in finding out more, I'm halfway through reading a (lengthy) article called "Celiac Disease 101: A Beginner's Guide" by the folks at SCD lifestyle (probably won't be able to post the link here, otherwise I would). Sounds like they're saying that edema and FMS (I have it too) are both caused by Celiac. And WebMD.boots mentions swelling being a serious side effect of Celiac, due to an inability to absorb nutrients, including protein. Yikes!

kareng Grand Master
kareng
Posted
1 hour ago, AnitaL said:

Just learning about all this...I had intense achiness, fatigue, and swelling in my ankles and feet yesterday within an hour of eating some bagels. So I googled Celiac + ankle swelling, and this article came up. But for Maya and anyone else who may be interested in finding out more, I'm halfway through reading a (lengthy) article called "Celiac Disease 101: A Beginner's Guide" by the folks at SCD lifestyle (probably won't be able to post the link here, otherwise I would). Sounds like they're saying that edema and FMS (I have it too) are both caused by Celiac. And WebMD.boots mentions swelling being a serious side effect of Celiac, due to an inability to absorb nutrients, including protein. Yikes!

Before you self diagnoses yourself with an autoimmune disease, please see a doctor for some blood work.  Celiac usually doesn't just "pop-up" one day after a bagel.  Keep eating a regular gluten diet until all testing is finished

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Gut nutrition supplements?

      By xxnonamexx · Posted

      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      Gluten free Yogurt suggest

      By Jane07 · Posted

      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.