Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Prescriptions


Glutenfree4her

Recommended Posts

Glutenfree4her Rookie

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

My opinion it should be part of the service they provide at the pharmacy. I've had problems with chain pharmacys, but I do well at a private pharmacy where I live. In the event I can't use the private pharmacy, I still have to call myself and shop around. Sucks!

rosetapper23 Explorer

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

Adalaide Mentor

I always ask for the name of the manufacturer so I can call myself. We need to be responsible for our own health. It sucks, but pharmacies seem to always be busy and we really just can't trust some harried person who doesn't even understand what gluten is to be responsible for knowing if something is gluten free. Usually when I ask for the number, they always ask why then look at the bottle and respond with something like "gluten is listed as an ingredient" or "it doesn't say there's wheat in it" or some other thing that makes us who know the in's and out's want to bang our heads on walls. There have been several instances where I have had to fill a prescription at an alternate pharmacy.

TiaMichi2 Apprentice

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

I agree with you it should be the Pharmacy's responsability, but I do feel safer when I call the mfg. myself. Sometimes they can give me the number, sometimes is only a name, and I have to do the research myself :blink:

In the past 8 months I have had to do it like 3 times, since my Pharmacy keeps changing Manufacturers on one of my meds. At times I've had to call 5 or 6 places to get an actual person to get me the answers I am looking for, a royal pain in the you know what!!!!!

-Miriam

Gemini Experienced

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

I totally agree with this! I trust no one to get this right, especially someone who doe not have celiac disease. Everyone is responsible for their own health, ultimately, so need to do their own homework. It's another good reason to only take meds you absolutely have to have and not ones doctors push on you for no good reason.

FernW Rookie

I got glutened once from a brand name medicine. My doctor gave me some samples. I called the mfg they said it was fine but also gave me a cya answer. I took it an got sick for my usual month. I had 2 pills tested and they both had over 50 ppm. Taking meds is always risky, I still call every single time, but I also hold my breath after I take the pill.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,613
    • Most Online (within 30 mins)
      7,748

    RainSunCombo
    Newest Member
    RainSunCombo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.