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Glutenfree4her

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Glutenfree4her Rookie

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.


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Roda Rising Star

My opinion it should be part of the service they provide at the pharmacy. I've had problems with chain pharmacys, but I do well at a private pharmacy where I live. In the event I can't use the private pharmacy, I still have to call myself and shop around. Sucks!

rosetapper23 Explorer

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

Adalaide Mentor

I always ask for the name of the manufacturer so I can call myself. We need to be responsible for our own health. It sucks, but pharmacies seem to always be busy and we really just can't trust some harried person who doesn't even understand what gluten is to be responsible for knowing if something is gluten free. Usually when I ask for the number, they always ask why then look at the bottle and respond with something like "gluten is listed as an ingredient" or "it doesn't say there's wheat in it" or some other thing that makes us who know the in's and out's want to bang our heads on walls. There have been several instances where I have had to fill a prescription at an alternate pharmacy.

TiaMichi2 Apprentice

Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

I agree with you it should be the Pharmacy's responsability, but I do feel safer when I call the mfg. myself. Sometimes they can give me the number, sometimes is only a name, and I have to do the research myself :blink:

In the past 8 months I have had to do it like 3 times, since my Pharmacy keeps changing Manufacturers on one of my meds. At times I've had to call 5 or 6 places to get an actual person to get me the answers I am looking for, a royal pain in the you know what!!!!!

-Miriam

Gemini Experienced

Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

I totally agree with this! I trust no one to get this right, especially someone who doe not have celiac disease. Everyone is responsible for their own health, ultimately, so need to do their own homework. It's another good reason to only take meds you absolutely have to have and not ones doctors push on you for no good reason.

FernW Rookie

I got glutened once from a brand name medicine. My doctor gave me some samples. I called the mfg they said it was fine but also gave me a cya answer. I took it an got sick for my usual month. I had 2 pills tested and they both had over 50 ppm. Taking meds is always risky, I still call every single time, but I also hold my breath after I take the pill.


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      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
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      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
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      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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