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kingman

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kingman Rookie

I was diagnosed celiac as an infant. I had seemingly built up a tolerance but in my 20


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love2travel Mentor

I have 3 herniated discs in my lower back, disc degeration, myofascial pain syndrome, IT band syndrome and fibromyalgia. So, I understand pain. :( I did get several rounds of injections but they did nothing for my pain whatsoever. But that is partially because there are so many trigger and tender points on my body and I had to pick and choose the worst. How can I choose 5-10 sites when most of my body is riddled with pain? But I am thinking of giving it a try again, at least for the very worst sites. I'd be interested if you try it again, too. If so, I sincerely hope you find lasting relief! :)

  • 2 weeks later...
Kiwiwio Newbie

I used to be a professional athlete and had a ruptured disc in my cervical spine. After one round of cortisone, feeling returned to my hand and the pain subsided but never stopped completely. I recommend nightly (light) muscle relaxers and IBuprofein several times in the day (unless you start to vomit blood). You can look into surgical options but I have had the fortune to speak to some of the best surgeons and sports doctors in the world from France, USA, Germany and New Zealand and the information I received from them and my fellow athletes with the same injury was AVOID surgery, if you can. Also, you can try stretches and rehab. Once you become gluten free, you may find the swelling goes down and life is more tolerable- I did.

I was diagnosed celiac as an infant. I had seemingly built up a tolerance but in my 20

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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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