Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nothing Seen On Scope... Chances Biopsy Still Positive?


yankeegirl

Recommended Posts

yankeegirl Newbie

I had my endoscopy today, and it showed a few things.. Like possible delay in stomach emptying (which I had an emptying study done for as well), mild gastritis and some edema and glandular changes in the duodenum. He took multiple biopsies, and we will see what those show. I am just at a point that I have been dealing with sickness for long enough that I want a diagnosis so badly. What are the chances biopsy will show what could not be seen on endoscopy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

The biopsy can show damage not seen with the scope. Microscopic damage is looked for and much more is visible to them. It is entirely possible and I've seen it reported here that no damage was visible by the Dr. but the pathologist was able to see it. So you could still be positive. They are supposed to take 6 biopsies though as the Celiac damage can be what they call "patchy". I sure hope they did. If only one or two are taken and not in the spots with damage then of course they won't see it even if it is there.

1974girl Enthusiast

Many adult GI doctors will not even biopsy unless they can see it. And that was told to me by a nurse for a GI doctor and my dd pediatric doctor. I am glad yours at least took samples. My dd had no visible damage but "simplification" of the villi which is the start. You just don't go from healthy villi to total atrophy overnight!

eatmeat4good Enthusiast

Many adult GI doctors will not even biopsy unless they can see it. And that was told to me by a nurse for a GI doctor and my dd pediatric doctor. I am glad yours at least took samples. My dd had no visible damage but "simplification" of the villi which is the start. You just don't go from healthy villi to total atrophy overnight!

If that is true I think it is terrible.

It seems to defy the point of a biopsy...to look under the microscope.

Wow.

Thank you for sharing that.

MitziG Enthusiast

It is actually uncommon for celiac damage to be visible- only the most severe cases are. The delayed gastric emptying is a big clue that celiac may be the culprit. However, if you have been on PPI's for a long time, they can also cause it.

yankeegirl Newbie

Thanks so much for the info! He took multiple biopsies throughout.. So we'll see... Now to wait!

sa1937 Community Regular

Thanks so much for the info! He took multiple biopsies throughout.. So we'll see... Now to wait!

Also, make sure you pick up a copy of the pathology report for your records when you meet again with the doctor to find out the results. I agree with others...many times damage is only visible upon examination with a microscope unless it's severe and can be seen with the naked eye.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



yankeegirl Newbie

I just don't see how in conjunction with this nasty rash it could be anything else.. If the biopsies show nothing, I think I will go to a derm to biopsy the rash too

Cara in Boston Enthusiast

Since your biopsy is already done, there is nothing keeping you from beginning the gluten free diet right away. Even if your biopsy is negative, you might see great results on the diet. Think of it as the "final" test . . .

Cara

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,269
    • Most Online (within 30 mins)
      7,748

    David Kutos
    Newest Member
    David Kutos
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      All I can say is this site is great!
    • Scott Adams
      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
×
×
  • Create New...