Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crazy Amounts Of Energy

NewNicole

By NewNicole
in Coping with Celiac Disease

Recommended Posts

NewNicole Apprentice
NewNicole
Posted

When someone asks me what it's like to have celiac disease I tell them it's like being on the wildest roller coaster you could ever imagine. It's been a little over a year now that I have been gluten free. I started out in severe pain, incredibly hungry, massive headaches, every muscle aching, and sleeping 14 hours a day and still feeling like I got ran over by a truck. Now I can say that after the withdrawal symptoms subsided I no longer even want bread. Ok maybe somedays I pine for a small little taste of a nice soft piece of fresh italian bread. But for the most part I don't think twice about it. During this last year I have experienced so many new symptoms while getting rid of the old ones. I traded severe abdominal pain for wierd arm pains that doctors were baffled by. It was here on this forum that I figured out that it was probably a vitamin issue that was causing my problems. Now the crazy new experience I seem to have is this thing called energy. I've never experienced it before. I literally feel like I drank 12 cups of coffee in a row. I haven't figured out how to use this energy yet. I must look like a bug on drugs to people at this point. I just seem to ramble and run around like a chicken with it's head cut off. It used to be that I only had one day a month that I felt good enough to do much of anything. So I still run around doing all the housework and all my chores in one day anticipating that tomorrow I will be dead to the world. I can't tell you how many nights I went to bed before dinner making my husband fend for himself and taking care of all the kids. Now I can actually cook, (which due to the amount of work it takes to make gluten free food I need all this energy), and I can even clean up after. My iron has always been very low and my thyroid levels were high. I learned to function that way. I can't believe this is how normal people live. I don't know if this is actually my thyroid going the opposite way or if this is my new norm, but I figure I better do as much as possible now before my body realizes it needs to turn into that slug again. So although I wouldn't say that I'm 100% and I still have some issues, I am really happy with how much better my life is without gluten. So for all those newly diagnosed people out there I want them to know not to give up. It is a roller coaster, but in the end you too will be able to do laundry, cook, and do the dishes all in one day. lol.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

"Bug on drugs" *snort...

Very happy for you!

kittty Contributor
kittty
Posted

I had a similar energy burst about 6 weeks ago, and then got glutened and haven't got it back again yet. It felt good to be so energized, but it was also unnerving because I felt too energetic - almost like a mania. Maybe because normal feels so abnormal after all these years!

luvrdeo Apprentice
luvrdeo
Posted

Thanks for giving me hope!! I've gotten past the massive headaches but a short 2 weeks in and I'm beyond exhausted, all the time! I love hearing that there is something to look forward to :)

squirmingitch Veteran
squirmingitch
Posted

Always great to hear positive results! Good stories are wonderful.smile.gif

IrishHeart Veteran
IrishHeart
Posted

You said:

"I can't believe this is how normal people live"

NewNicole, this is YOUR new "normal"!! :)

This is what healing feels like. This is how a body works as it is designed. (I get this part BIG time --because I am starting to feel it myself after a life time of wondering what "normal" felt like, too)

Congrats, honey!!

So happy for you.

Cheers, IH

tctwhite Apprentice
tctwhite
Posted

Its great reading someone's results after a year with the gluten-free life. Im only a month in and Ive had more energy this month than Ive had in YEARS! If it gets any better with time, I might have to take up marathon running! I do still have days where Im exhausted and just need to rest. But I believe that is because Ive been without energy for so long that I wear myself out. Im actually sleeping at night with NO medication. DH wonders why Im so tired at night. I said isn't that how normal people are? Im still bloated so much of the time, but the pains are disappearing as are the quick dashes for the bathroom.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


srall Contributor
srall
Posted

I didn't realize that it was normal to feel good and have energy. It was mind blowing. I went from feeling about 70 years old to feeling 20 (I was 42 when I went gluten free). Keep taking care of yourself and take your vitamins and you should continue to feel great. And to those just starting out, there IS a beautiful light at the end of the tunnel. Stick with it!

NewNicole Apprentice
NewNicole
Posted
  • Author

Kitty, mania is a great way to describe it. It takes me forever to heal after being glutened too. I hope you bounce back soon. Lvrdeo, I'm so glad that I can give you hope. I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few nights ago and did a dance of joy when I reached the top. Hey, it was exciting. Tctwhite, I told a friend of mine that next year I want to do a warrior dash marathon with her. I'm thinking I may be overguessing my physical abilities in this one. But the mere fact that I can consider it is huge. Who knows maybe in a couple years I can climb mount Everest....or maybe not. lol. Irishheart, it's great to feel a little human, isn't it? Who knew someone could feel like this? Srall, I have to tell you that up until about a month ago my 74 year old mother out ran me and she needs a walker. lol.

IrishHeart Veteran
IrishHeart
Posted

I know that it's hard to think you will ever feel better. But you will reach a point when you realized that you went up the stairs without needing to rest. I actually went up a few nights ago and did a dance of joy when I reached the top. Hey, it was exciting.

This is GREAT news!!! I know what you mean. When I was very ill, I could not walk the length of my driveway (160 ft.) without being short of breath, just gasping for air and my whole body was shaking from the strain of this small activity. I was a burning mess of weak muscles and bone pain. I could not lift my arms over my head or dress myself at one point. Everything was painful and tiring.

A few weeks ago, I went kayaking. :)

This summer, for the first time since 2008, I could get in and out my pool (by myself) and swim around a little. I could not do that for 4 summers....a miracle? Nope, just the body "doing what it is made to do".

Continued healing to you and enjoy your "crazy energy"! ;)

Cheers, IH

NewNicole Apprentice
NewNicole
Posted
  • Author

You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.

IrishHeart Veteran
IrishHeart
Posted

You went kayaking....that's fantastic. That's on my to do list to. And we just put in a pool so I'm hoping by next summer I will be able to enjoy it. It's almost like a kid in a candy store...you want to do it all right now. Good for IrishHeart. I hope you get to make up for lost time.

You too!..go get 'em kiddo. It's all good now. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,542
    • Most Online (within 30 mins)
      7,748
    Jacqueline Dee
    Newest Member
    Jacqueline Dee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.