Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Food In The Hospital?


rachelh4207

Recommended Posts

rachelh4207 Apprentice

Can they do that? I never eat anything that ANYBODY has cooked. I am so scared about having the baby! It is number 5 for us though so Dh can't take care of the others plus bring me food three times per day (hospital is 1 hour away) So what should I do? Any advise? I know my doctor said he would "order" me a gluten free diet but what about cross contamination?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

From most of the experiences I have heard, it is very unlikely you would get a really gluten-free meal at a hospital. Pack a small cooler & a bag of food or have someone bring in food. You should be able to eat packaged things like milk, jello, yogurt that the hospital has.

You could talk to the dietary staff ahead of time. If it were me, I wouldn't want to add a gluten reaction to all of the just had a baby stuff. Its probably only 3 meals anyway.

rachelh4207 Apprentice

Well for me, It will be more than that. I have to have another c-section so it will be three full days. With two of my children I have stayed more like 4 or 5 because they had to go to the NICU. After all the surgery and stuff, I CAN'T risk getting glutened. My sister in law works for the hospital so I thought about asking her if she could talk to all the nurses and see if they would keep me food in there refrigerator and bring me stuff as I need it. I am also scared to even eat something "gluten free" from chic fila or somewhere. I never tolerate eating out good period!

JillianLindsay Enthusiast

I was just in hospital overnight Tuesday to Wednesday and got a gluten-free breakfast Wednesday morning. It sucked, but it was gluten-free. It was krispy rice cereal (I think envirokidz), a gluten-free muffin, and coffee and orange juice. No fruit, no protein, just carbs, but I did not get sick from it. For the big day (I'm due Nov. 6), I will definitely bring some of my own food, but my hospital is able to provide gluten-free food too. I double-checked when they dropped it off and it said gluten-free on the paper that came with the meal.

Can they do that? I never eat anything that ANYBODY has cooked. I am so scared about having the baby! It is number 5 for us though so Dh can't take care of the others plus bring me food three times per day (hospital is 1 hour away) So what should I do? Any advise? I know my doctor said he would "order" me a gluten free diet but what about cross contamination?

rachelh4207 Apprentice

For the big day (I'm due Nov. 6), I will definitely bring some of my own food, but my hospital is able to provide gluten-free food too. I double-checked when they dropped it off and it said gluten-free on the paper that came with the meal.

That's awesome to hear. I plan to contact the hospital and maybe even run by and talk to the people in the cafeteria to see what options I have. Maybe if I do my homework now, my sister in law can push them to order some stuff if they don't have a lot. :) Hey, it is worth a shot. I plan to bring stuff too, I just would love the option of them being able to bring me food too. It is SO MUCH EASIER

pricklypear1971 Community Regular

I suggest cooking stuff like stews and freezing in individual bags. Put a cooler in your room and have someone heat it up for you in a micro.

Much safer and you won't stress.

Roda Rising Star

I'm facing this same issue soon(not having a baby though :lol::P ). I meet with a surgeon this Friday about getting my gallbladder taken out. I'm hoping that it will be done through same day surgery and I get to go home. But there is always a possibility I may have to stay overnight. I'm nervous about having surgery anyway and don't want to add getting glutened to the mix.

I plan to pack some food items for me and will certainly contact the hospital cafeteria to see what can be offered safely.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

.....and everyone of you that has to bring food....demand an adjustment in your bill!

mushroom Proficient

If you could manage it, I would recommend talking to the dietician ahead of time. I know, I know, some of them are hopeless about gluten; and you probably can't hope to luck out like I did (the dietician was a celiac), but they can help you and talk to the kitchen staff and give them a brush up on gluten free. The hospital I was in did not have a gluten free menu but they did have Udi's bread (as a salt-free bread :lol: ) and the dietician made out a meal plan for me for every meal (and I was there three weeks!!). I ate a lot of salads with olive oil and balsamic vinegar, lots and lots of fruit and yogurt, sandwiches on Udi's, chicken and salmon with rice.

Roda Rising Star

If you could manage it, I would recommend talking to the dietician ahead of time. I know, I know, some of them are hopeless about gluten; and you probably can't hope to luck out like I did (the dietician was a celiac), but they can help you and talk to the kitchen staff and give them a brush up on gluten free. The hospital I was in did not have a gluten free menu but they did have Udi's bread (as a salt-free bread :lol: ) and the dietician made out a meal plan for me for every meal (and I was there three weeks!!). I ate a lot of salads with olive oil and balsamic vinegar, lots and lots of fruit and yogurt, sandwiches on Udi's, chicken and salmon with rice.

The dietician I consulted with after I was diagnosed just read off things from a pamplet and when I pointed out several mistakes she said that it seemed like I already knew enough. Didn't even mention the whole CC issue. Luckily my insurance paid for it cause it really wasn't worth my time. I know there are better ones out there though.

For me the biggest concern is getting CC'd from PO meds. I'm thinking my stay will be outpatient surgery so I can manage the food. I still plan on contacting the dietary staff just in case I have to stay overnight.

  • 1 month later...
rachelh4207 Apprentice

If you could manage it, I would recommend talking to the dietician ahead of time. I know, I know, some of them are hopeless about gluten; and you probably can't hope to luck out like I did (the dietician was a celiac), but they can help you and talk to the kitchen staff and give them a brush up on gluten free. The hospital I was in did not have a gluten free menu but they did have Udi's bread (as a salt-free bread laugh.gif ) and the dietician made out a meal plan for me for every meal (and I was there three weeks!!). I ate a lot of salads with olive oil and balsamic vinegar, lots and lots of fruit and yogurt, sandwiches on Udi's, chicken and salmon with rice.

I called and talked to them and she said she had no doubt they could handle getting food for me that I could have as they are a 24hour room service type thing...I still doubted...So I tried to explain more...lol...she said If i will get her a list of foods I like (gluten free) that she will go herself and buy them to have on hand for me. But that still doesn't rule out cross contamination....Apparently when I eat gluten, I know while it is still in my mouth, as my mouth and throat starts burning right away. And I get a headache right away and gassy belly......So I might try it but if that happens, skip the meals and have my husband bring me food. But oh I don't want to learn the hard way :(

my3monkees Rookie

When my mother had open heart surgery 2 yrs. ago. The food was horrible and she wasn't really hungry anyway. So the dietician came up to see why she wasn't eating. My mom told her that she was having a hard time eating, but maybe if she could just have bowl of mashed potatoes that would go down well. At that point the dietician informed her, that no she couldn't eat potatoes, they contained gluten! LOL

Juliebove Rising Star

When my mother had open heart surgery 2 yrs. ago. The food was horrible and she wasn't really hungry anyway. So the dietician came up to see why she wasn't eating. My mom told her that she was having a hard time eating, but maybe if she could just have bowl of mashed potatoes that would go down well. At that point the dietician informed her, that no she couldn't eat potatoes, they contained gluten! LOL

If they were instant they could have. I don't know of any at the moment that do but when my daughter was diagnosed some years ago, some brands did.

Juliebove Rising Star

I really wish more hospitals would do what Children's in Oakland does. They had everything listed as a side dish. You could get black olives, green beans, baby carrots, string cheese, all sorts of things like that. Of course there is still a chance of cc but you know that you are getting whole foods.

come dance with me Enthusiast

Our public hospitals provide really well and cater to all needs. My daughter was in earlier this year and was given gluten free, vegan food that was really nice, no cross contamination risk because they have to deal with allergies and intolerances as well as preferences all the time so have to be vigilant.

mommyto2kids Collaborator

I'd pack some foods. You can get bananas and applesauce, cream of rice and jellow. You can live on that if you have to, along with your favorite bars that you will bring. Best of luck with having the baby.

  • 1 month later...
ajnemajrje Newbie

The last time I was in a hospital, I made sure to tell them I had celiac. They wrote it down on my form and gave me a bracelet saying what i was allergic to - gluten and apples. When it came time for dinner what did they bring me? A sandwich and an apple and then the nurse who brought me my food acted irritated by the fact that I could not eat what she brought me. So I would say the best thing to do would to bring your own food if you are staying for any amount of time in a hospital.

  • 1 month later...
Bronwen Newbie

I went to a private hospital and had a great experience but whe LO got jaundice I ended up at a different hospital and got glutened by their staff for like 3 days but didnt really notice because I was so intent on baby being ill. Just felt like crap but I also didnt sleep for two days.

I suggest calling hospital and asking to meet with dietary/cafeteria manager and the service/nursing manager. I got them to come to my room before I ate because my section was emergency

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Finding gluten free ingredients

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.