Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping With My Cancer

GF Lover

By GF Lover
in Related Issues & Disorders

Recommended Posts

GF Lover Rising Star
GF Lover
Posted

Hi all,

I had my 2nd surgery on the 14th of Nov. All went really good.

They removed the surface lymph nodes in the left groin area. My Oncologist said they take the surface ones as a mass (I pictured an ice cream scoop lol). Then they take the front hip muscle, she said it's the one you use when you cross your leg, slice it vertically, then fold the half so it's now horizontal and it lays where the mass was and reattached. And yup, staples again, around 5-6 inches of them. I'm beginning to hate staples.

They kept me overnight this time and it's a good thing too cuz I couldn't move my leg an inch and had a catheter and a surgical drain.

As of this morning I'm feeling pretty good. I still have the drain, it's just plain uck, but working well. I can get from bed to the kitchen. I'm using my cane and the wall and I can now get my foot about an inch off the floor to walk, with drain safety pinned to my pajamas. I've made about 15 round trips so far. Today I am going to attempt my first shower since coming home and I'm pretty excited about that.

Hubs is feeding me well. Fried Chicken and mashed taters last night, serious yums. My appetite is doing really good and I'm eating and having snacks.

I have my follow up appointment on the 30th and will find out if these other nodes have any cancer. Keep your fingers crossed. Still starting interferon in Dec. My mom's coming to stay a few weeks when I start that. She lives in Hawaii, yes I'm jealous, and it's been over a year since I've seen her so I'm super excited about that.

That's it for now. Wish me luck on my shower. Remember that you are all warriors and keep up the fight for great health.

Colleen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

So sorry you are having to go through so much. Can't believe how quickly they send people home after a surgery like yours! Your dinner last night sounds yummy and you are so lucky to have a loving DH to help you heal and cook you good for sure safe food.. I hope you will heal quickly and will keep you in my thoughts and prayers.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Wishing you luck for that shower, its gonna feel sooo good. Glad surgery went well for you. I had a drain once, sympathy. Uck is the word.

All the best for healthy healing and good follow up.

Mw

GFinDC Veteran
GFinDC
Posted

Being able to get around so soon after the surgery is great! Even if it isn't dancing with the stars style getting around :)

nvsmom Community Regular
nvsmom
Posted

I'm glad your surgery went so well. :) I hope your recovery continues to go smoothly. Best wishes!

jerseyangel Proficient
jerseyangel
Posted

So glad to hear your surgery went well and you are up and around already. Many positive thoughts being sent your way. Take good care:)

love2travel Mentor
love2travel
Posted

That is quite the surgery! So sorry you have to go through this. Your good attitude and outlook will go a long way toward your healing. You must be looking forward to the reunion with your Mom. I'm glad you've got a great support system. Keep us posted, please.

I will be praying for you. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted
  • Author

Hi all,

Thanks for your thoughts, prayers and wishes. I sure do appreciate anyone who who can makes sense of my ramblings.

I've officially moved base camp to my living room chair, yay. Had a stumble in the shower this morning and knocked all the shampoo bottles over but no harm done. My drainage is getting better, from around 10 oz. In a 24 hour period to about 4-5 oz. Major progress. Pain is very manageable now, just a muscle relaxer every now and then. The best part is that I have REAL clothing on today, woohoo.

Otherwise, I've just been doing a ton of research on cancer therapies and clinical trials. Chemo is not effective with melanoma so choices are somewhat numbered and and have low rates of slowing down tumors. The organs of concern are the liver, lungs and brain, and spinal tumors. At this point it still looks like Interferon is next unless scans show distant mets. Then the choices are more difficult and complicated.

I heard somewhere that Thanksgiving is this week, I really need to be more informed on current events, lol.

Thankful to be alive, Colleen

nvsmom Community Regular
nvsmom
Posted

(hugs)

Suzanne Somers has a couple of good books out on health and one on treating cancer is very well researched. I think it's called Knockout or Breakthrough. It had some good ideas that made sense. It could be worth looking at.

Take care.

1desperateladysaved Proficient
1desperateladysaved
Posted

Get Well Soon. ***

Diana

GFinDC Veteran
GFinDC
Posted

Congrats Colleen on the big living room move. And Happy Thanksgiving too! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.