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- trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs4Help understand results
It takes weeks/months for the celiac-related antibodies to dissipate once gluten is withdrawn but it also takes that amount of time for them to build up to detectable levels in the blood once gluten is reintroduced. I'm not certain about this but unlike the individual IGA celiac antibody tests results, I don't think IGA deficiency is tied to gluten consumption... -
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- mamaof7 replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs4Help understand results
Ok.. these test was ordered by her primary. There was one other test showing that she is IGA deficient. I am hoping that the GI is able to give us more info in April. That just seems like an extremely long time from now. We don't typically eat much gluten because it makes me feel awful (bloating, fatigue, abdominal pain, extreme joint pain, mouth... -
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- knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Insomnia help
@hjayne19, welcome to the forum. Sorry to hear you're having a bumpy start in your journey. Let's see if we can smooth the way a bit for you. To correct anemia, more than just iron and B12 supplements are needed. Other B vitamins including Folate B 9, Riboflavin B2, Pyridoxine B 6 and Thiamine B 1 are needed. Wheat flour (and other products...
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It takes weeks/months for the celiac-related antibodies to dissipate once gluten is withdrawn but it also takes that amount of time for them to build up to detectable levels in the blood once gluten is reintroduced. I'm not certain about this but unlike the individual IGA celiac antibody tests results, I don't think IGA deficiency is tied to gluten consumption. You all seem to be in a Catch 22 situation here. You GP ordered the wrong test. He/she should have ordered an IGG panel. -
Ok.. these test was ordered by her primary. There was one other test showing that she is IGA deficient. I am hoping that the GI is able to give us more info in April. That just seems like an extremely long time from now. We don't typically eat much gluten because it makes me feel awful (bloating, fatigue, abdominal pain, extreme joint pain, mouth sores, migraines...) but I've never been diagnosed with anything because i refuse to eat gluten in order to be tested. I dont need a dr to tell me it makes me feel poorly.. But, anyway, 2 weeks prior to this test, shortly before she started having symptoms, we dramatically increased the amount of gluten consumption in the household due to holidays and visitors and easy meals due to family sickness.. so I'm wondering if she just hadn't eaten enough to test positive??? Symptoms just kept getting worse and now that she's been off gluten again all the symptoms have disappeared. Husband and I are going to keep her off gluten for a while and try again to see if symptoms reoccur after reintroduction to gluten. Gi Dr isn't going to see her until the end of April anyways.
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By knitty kitty · Posted
@hjayne19, welcome to the forum. Sorry to hear you're having a bumpy start in your journey. Let's see if we can smooth the way a bit for you. To correct anemia, more than just iron and B12 supplements are needed. Other B vitamins including Folate B 9, Riboflavin B2, Pyridoxine B 6 and Thiamine B 1 are needed. Wheat flour (and other products containing gluten) are mandated to have vitamins and minerals added to them to replace the vitamins lost in processing. Gluten free processed foods are not required to have vitamins and minerals added to them. Now that you are gluten free, you must get your vitamins and minerals from a nutritionally dense diet. I'm glad to hear a dietician is helping with that. However, newly diagnosed celiac patients tend to have subclinical deficiencies and absorption problems, so adding a B Complex supplement is beneficial. The B vitamins are water soluble and easily excreted by the kidneys if not needed. I had terrible night sweats, but correcting a severe Vitamin D deficiency cleared that up quickly. Optimal Vitamin D levels are between 75 and 100 ng/mL. Vitamin D levels should be corrected quickly with high doses. Vitamin D helps regulate the immune system. Your Vitamin D level was affected and falsely elevated because you were taking a Vitamin D supplement. The bloodstream is a transportation system and not a reflection of the amount inside cells where the vitamins are used. Same thing with your B12 and iron levels. One should be off supplements for eight to twelve weeks before blood tests to look for deficiencies. Blood tests for B vitamins are not accurate. Doctors don't agree on optimal levels or even minimum levels required to prevent illness. Blood levels don't reflect how much is inside cells where the vitamins are utilized. One can have "normal" blood levels, but still have deficiency symptoms within organs and tissues before blood levels change. This is especially true if Thiamine B 1. Athletes require more Thiamine than people less active. We need more Thiamine when we are physically ill, emotionally stressed and physically active. We need more Thiamine when we eat a diet high in carbohydrates. The more carbs we eat, the more Thiamine we need. Anxiety is an early symptom of insufficiency of many of the B vitamins. The eight B vitamins work together in concert, so the insufficiency symptoms tend to overlap. My anxiety resolved after taking a B Complex and additional Thiamine in the forms Benfotiamine (shown to promote intestinal healing as well as enhanced athletic performance and recovery time). My insomnia and the racing thoughts keeping me awake also resolved with additional Thiamine in the form Thiamine TTFD (tetrahydrofurfuryl disulfide). This TTFD form of thiamine, along with Neuromag, a form of magnesium, really has helped with brain function, anxiety and insomnia. Don't take Thiamine close to bedtime as it may keep you too alert or energetic to sleep. Take in the morning, and at lunch, but not after supper. I also have taken Tryptophan and Lysine as well as Theanine, all essential amino acids, that our bodies use to relax, heal and sleep. Passion flower tea or supplements also aid in getting sleepy without feeling groggy the next morning. Chamomile tea or Oolong also help with insomnia. Interesting Reading: Effect of physical activity on thiamine, riboflavin, and vitamin B-6 requirements https://pubmed.ncbi.nlm.nih.gov/10919966/ The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://pmc.ncbi.nlm.nih.gov/articles/PMC4241913/ Effects of thiamine supplementation on exercise-induced fatigue https://pubmed.ncbi.nlm.nih.gov/8815395/ Exploring the Relationship between Micronutrients and Athletic Performance: A Comprehensive Scientific Systematic Review of the Literature in Sports Medicine https://www.mdpi.com/2075-4663/11/6/109 Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Impact of a Gluten-Free Diet in Adults With Celiac Disease: Nutritional Deficiencies and Challenges https://pmc.ncbi.nlm.nih.gov/articles/PMC11692684/ -
By knitty kitty · Posted
Which supplement says take 3 four times a day? Take the B Complex, one Benfotiamine, one Thiamax and one Neuromag at breakfast. You can take more Thiamax and Benfotiamine at lunch with another Neuromag. -
Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough. Case Report: A case of cough, lymphocytic bronchoalveolitis and coeliac disease with improvement following a gluten free diet
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