Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosing A Lactose Intolerence


Adalaide

Recommended Posts

Adalaide Mentor

What sentence? :huh:

:lol:

Not exactly buying the paragon of innocence routine. Sorry. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ButterflyChaser Enthusiast

... the "how fast can I get to a loo when out in public" thingy, because yeah, I thought I, too was done with that malarkey I endured for 40+ years and so...

gee, and I am whining because the same has lasted for about 6 months for me! :(

Adelaide, any chance it may not be milk, or cheese per se, but some additive they sneak into the cheese? That did happen to me, causing severe D and blistery rash.

Adalaide Mentor

The cheese is simply listed as having cream, cultures, enzymes and salt. Exactly what it takes to make cheese.

My problem is most assuredly not A1 casein. I drank like a quart of milk and feel pretty much fine. I think I'm just going to attempt to shrug it off at this point and try to fit more pieces if/when I get that sick again. Until then it will remain a mystery and I will try to forget it ever happened so it doesn't eat away at me.

IrishHeart Veteran

Not exactly buying the paragon of innocence routine. Sorry. :D

...eh, thought it was worth a shot......... :lol:

IrishHeart Veteran

I think I'm just going to attempt to shrug it off at this point and try to fit more pieces if/when I get that sick again. Until then it will remain a mystery and I will try to forget it ever happened so it doesn't eat away at me.

I hear you. Sometimes, even after I wrack my brain trying to figure out what made me feel yucky (when I had been enjoying a

decent stretch of "peace in the land"), I just give it up, too.

This healing road is so up and down and sometimes, I think it's just a wonky day for the old GI tract.

It is frustrating for sure, but not worth making ourselves nuts.

(or any more nutty than we already are....) :D

foam Apprentice

Strongly suggest you get onto A2 milk only asap, cheese is only concentrated Milk, you can have a mild problem with milk and a much larger problem with Cheese and milk chocolate. Nothing to do with lactose sugar imho, just the A1 milk protein. Yoghurt is the go because the bacteria eat the lactose before you eat it anyway and you really don't want to eat much sugar with a dodgy gut. I originally thought all milk problems were lactose related but after getting more and more unwell on vintage cheese which has no lactose I've seen that theory is just not true.

Adalaide Mentor

Thanks for the tip, and maybe I wasn't totally clear on this with all of my comments on testing and trying to expand my diet. I have completely given up trying to expand my diet. I have for over two months now been on raw milk which I didn't know then, but understand now is A2. It has been for that entire time, until "the incident" been the exclusive source of milk for me. I do not eat milk chocolate as that crap is horrid and nasty, milk has no place in chocolate. I am quite a chocolate snob as a matter of fact. I even made my own peppermint bark out of rather pricey chocolate. It is oh so good!

After drinking milk, eating cheese and going through various type of pain for no apparent reason for that cheese "product" thing I tried I have determined that I in no way have any sort of issue at all with milk. Not lactose, not casein. I will continue with my raw milk though because it is not iodine contaminated and I can also buy cheese made from it. I find that the milk you can buy in the store tastes like crap and frankly if I have to pay almost three times as much for my milk, then so be it. At least it won't give me a rash or suck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



foam Apprentice

That's great you have a source of raw A2 milk, I have a friend with a A2 cow, I should probably be asking her for some milk too. I work at a dairy farm occasionally also who mostly have A1 cows but also some Jersy cows which are mostly A2 so I have a contact there, I could in theory get my own pure A2 cow one day :0 could just have it in the heard and milk it separately into a container.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,106
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.