Celiac Disease And Eczema

[Spartans1960]

Any Celiacs out there have a problem with eczema and itchy red spots or itchy skin, including the body and scalp? please advise, Doug

[Adalaide]

I do have eczema and have since I was a teen. If possible (and not embarrassing) I would try to get a few pics or maybe just check out what you can find in the DH forums. You want to be sure you aren't confusing eczema for DH. I'm special.... I have both!

I was advised by my dermatologist when I was first diagnosed with eczema to use Eucerin lotion. I find that this is by far still the most helpful for me. If I ever have an especially bad flair I'll go with Aquaphor instead. They also make a body wash that is the only thing that keeps me sane. I have no idea what the ingredients are to be honest and that's really high on my list of I don't rightly care. If you are after the body wash and can't find it, Aquaphor also has one but it is marketed as for babies so you may have luck finding it in the baby section. It says it is baby wash and shampoo so I suppose it could be used as both to help with the scalp stuff. I'm far too stuck up about my hair to try it.

[Laenie]

Any Celiacs out there have a problem with eczema and itchy red spots or itchy skin, including the body and scalp? please advise, Doug

I have had a type of rash for about 8 years on my scalp, went to a few Derm Doctors and no one could figure out quite what it is. Was diagnosed with Sjorgren's Syndrome and then Gluten Sensitivity a year later, since going gluten free (3 months) the rash is almost gone, and no itching. laenie

[Laenie]

I do have eczema and have since I was a teen. If possible (and not embarrassing) I would try to get a few pics or maybe just check out what you can find in the DH forums. You want to be sure you aren't confusing eczema for DH. I'm special.... I have both!

I was advised by my dermatologist when I was first diagnosed with eczema to use Eucerin lotion. I find that this is by far still the most helpful for me. If I ever have an especially bad flair I'll go with Aquaphor instead. They also make a body wash that is the only thing that keeps me sane. I have no idea what the ingredients are to be honest and that's really high on my list of I don't rightly care. If you are after the body wash and can't find it, Aquaphor also has one but it is marketed as for babies so you may have luck finding it in the baby section. It says it is baby wash and shampoo so I suppose it could be used as both to help with the scalp stuff. I'm far too stuck up about my hair to try it.

Just a question, what is DH? Thanks, laenie

[kareng]

Just a question, what is DH? Thanks, laenie

Dermatitis Herpetiformis - the skin condition associated with Celiac. Not everyone has it. There is a section on this forum about it.

[1desperateladysaved]

I had exzema throughout my teens and early twenties. It went away. I did several things that might have helped. I did not know that I had celiac at the time. I began a supplement program as recommended by a chiropractor. I covered my hands with rabbit fur gloves as soon as the weather cooled in fall. I learned how to make homemade soap. Now, I won't go anywhere without my homemade soap..

I know eczema is itchy and keeps coming back. I remembering dispair set in when a dermatologist had no good answer for what caused it. They also had the only treatment anyone could figure out: hydrocortisone cream. It could make my sores go away, but they seemed to come back with fury. It is also dangerous for kidneys my pharmacist said.

[ktienken]

I'm really hoping someone can explain to me WHY I got Eczema when I stopped the gluten...?? I've never had it before now. I was just diagnosed w Celiac in October, and in November I developed Eczema all over my chin, upper lip, nose , and part of my forehead . Does anyone know why? AND, will it go away???

[myrajacobs]

OMG, thank you for this blog I have had eczema for only 6 mo but it has pretty much stopped me in my tracks. My doctor told me I was at the end of the line, treatment wise! The only thing left is some sort of injectable… side affect; anaphalayctic shock and i would have to carry an epi-pen… the uv lights burned me… I am working with a homeopath and I’ve found a few things that semi-stop the itch! I am also taking high cbd/low thc weed to sleep at night..why or why can’t they make something to suppress my everyday health, besides steroids… although who doesn’t love no rash and that feeling of power… yes the little bumps etc return with a vengeance when the drug is stopped.. :((

[cyclinglady]

7 hours ago, myrajacobs said:

OMG, thank you for this blog I have had eczema for only 6 mo but it has pretty much stopped me in my tracks. My doctor told me I was at the end of the line, treatment wise! The only thing left is some sort of injectable… side affect; anaphalayctic shock and i would have to carry an epi-pen… the uv lights burned me… I am working with a homeopath and I’ve found a few things that semi-stop the itch! I am also taking high cbd/low thc weed to sleep at night..why or why can’t they make something to suppress my everyday health, besides steroids… although who doesn’t love no rash and that feeling of power… yes the little bumps etc return with a vengeance when the drug is stopped.. :((

Are you sure it is eczema?  Has your dermatologist ruled out  Dermatitis Herpetiformis?  DH is an insanely itchy rash that is usually bilateral (both sides of body).  It is actually celiac disease and can only be treated on a strict gluten free diet.  

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[myrajacobs]

Yes, its eczema,  as said I working with a homeopath hence got confirmation its eczema,  it's in my gene... Mom had now its passed to me.... I checked with the dermatologist and online resources  they have ruled out celiac. 

[ravenwoodglass]

3 hours ago, myrajacobs said:

Yes, its eczema,  as said I working with a homeopath hence got confirmation its eczema,  it's in my gene... Mom had now its passed to me.... I checked with the dermatologist and online resources  they have ruled out celiac. 

What tests did the derm do? Did they run a celiac panel or do a biopsy on the clear skin next to an area of an outbreak? Have you seen a GI or regular MD about this? If so what tests have you done? A gene test can't diagnose anything it can only tell you what you may develop. Please also note, since you mention steroids, that steroids will give you a false negative on celiac testing.

[myrajacobs]

I had a patch test .followed with other test to rule out other skin diseases... ....I am seeing a derm...for my condition