Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet Or Gluten Free Lifestyle?


captaincrab55

Recommended Posts

cahill Collaborator

Sorry to be late but I missed both the bus and the train :lol: :lol:

I am gluten -soy-corn-grain ( with the exception of rice ) free ( to name just a few :rolleyes: ) ,,,, so what does that make me :huh: ????

Wait I know........ I am living the " if the food is not trying to kill me I will eat it " lifestyle B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 109
  • Created
  • Last Reply
Adalaide Mentor

Sorry to be late but I missed both the bus and the train :lol: :lol:

I am gluten -soy-corn-grain ( with the exception of rice ) free ( to name just a few :rolleyes: ) ,,,, so what does that make me :huh: ????

Wait I know........ I am living the " if the food is not trying to kill me I will eat it " lifestyle B)

Sounds like you got the clown car. :lol:

IrishHeart Veteran

There's a bus? Oh no! I got on the train. OMG... what do I do? WHAT DO I DO!?!?

First, "DON'T Panic"........ right, Kaaaaaayyyyy?

Sorry to be late but I missed both the bus and the train :lol: :lol:

I am gluten -soy-corn-grain ( with the exception of rice ) free ( to name just a few :rolleyes: ) ,,,, so what does that make me :huh: ????

Wait I know........ I am living the " if the food is not trying to kill me I will eat it " lifestyle B)

Works for me, Chill. B)

IrishHeart Veteran

Sounds like you got the clown car. :lol:

:lol: :lol:

I've been in that car

:ph34r:

tarnalberry Community Regular

As the primary definition (not colloquial use) of diet is "food habitually consumed", I say diet. The same way, when I talk about my dog's (or, in the past, my bird's) diet, I'm not referring to a weight loss approach. Same way, when I tell my toddler, "a cow's diet consists primarily of hay" and I'm not referring to putting a cow on a diet. 'Cause I like using terms properly and all. :P

mushroom Proficient

And I hate 'lifestyle' because there is something in that word that implies 'choice' and we have none when it comes to gluten.

IrishHeart Veteran

Amen, sister.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Gluten Free Lifestyle Sounds Like We Are Doing A Reality Show In the Whole Feuds Aisle !

mushroom Proficient

:rolleyes:

:D

kareng Grand Master

Gluten Free Lifestyle Sounds Like We Are Doing A Reality Show In the Whole Feuds Aisle !

Housewives of Celiac!

Anyone notice the Crabby Captain hasn't been on since he started this nonsense?

IrishHeart Veteran

Fantastic, Takala! :lol:

Okay everyone.....Try and recall ROBIN LEACH's voiceover....remember that?? Hear him say this:

TONIGHT 's episode ON "LIfestyles of the celiac housewives who dream they can swap their hubs out for cabana boys and nibble on the fingers of KAREN"....we examine the ways we negotiate this "lifestyle" while driving a bus, hopping a train and washing down the contaminated shelves of the grocery aisles while trying not to slap silly the idiots who only THINK they know what a Gluten Free "diet" really means.

Adalaide Mentor

Fantastic, Takala! :lol:

Okay everyone.....Try and recall ROBIN LEACH's voiceover....remember that?? Hear him say this:

TONIGHT 's episode ON "LIfestyles of the celiac housewives who dream they can swap their hubs out for cabana boys and nibble on the fingers of KAREN"....we examine the ways we negotiate this "lifestyle" while driving a bus, hopping a train and washing down the contaminated shelves of the grocery aisles while trying not to slap silly the idiots who only THINK they know what a Gluten Free "diet" really means.

You win. Want a cookie?

IrishHeart Veteran

You win. Want a cookie?

hell yeah! Got one? :lol:

cahill Collaborator

trying not to slap silly the idiots who only THINK they know what a Gluten Free "diet" really means.

My biggest challenge in life :ph34r:

Adalaide Mentor

hell yeah! Got one? :lol:

No. But Bartfull has cookies. All aboard!!! We're going on a road trip.

My biggest challenge in life :ph34r:

This is my biggest challenge some days also. Or sometimes not slapping people for about 100 other stupid reasons. Mostly I just have the urge to slap people a lot.

sora Community Regular

So after reading this whole thread my brain is pretty scrambled and the only thing I can think of is Dr. Who. :huh:

(OK, cabana boys too)

Adalaide Mentor

So after reading this whole thread my brain is pretty scrambled and the only thing I can think of is Dr. Who. :huh:

(OK, cabana boys too)

Is that why we don't have our muumuus yet? Or did you think we would forget?

mushroom Proficient

Talking of food and lifestyles, I just saw a cooking show on the foods of Brazil and they featured the carioca boyz.... in Rio. :rolleyes: Now dat's a lifestyle if ever I saw one. No muumuus there!

sora Community Regular

Is that why we don't have our muumuus yet? Or did you think we would forget?

Darn, caught me. I have been so distracted lately, I blame IH.

IrishHeart Veteran

Mostly I just have the urge to slap people a lot.

"indicative of celiac housewives and the NEW Gluten free lifestyle."

my brain is pretty scrambled and the only thing I can think of is Dr. Who. :huh:

(OK, cabana boys too)

"indicative of celiac housewives and the NEW Gluten free lifestyle"

watching a cooking show on the foods of Brazil and they featured the carioca boyz.... in Rio. :rolleyes:

"indicative of celiac housewives and the NEW Gluten free lifestyle"

captaincrab55 Collaborator

Housewives of Celiac!

Anyone notice the Crabby Captain hasn't been on since he started this nonsense?

The Captain is working 10 hour days this week, but only worked 8s on Sat & Sun. Please excuse me....
kareng Grand Master

The Captain is working 10 hour days this week, but only worked 8s on Sat & Sun. Please excuse me....

Thought we might have scared you away. That's a lot of working, Captain!

IrishHeart Veteran

Darn, caught me. I have been so distracted lately, I blame IH.

" most definitely....Indicative of celiac housewives and the NEW gluten free lifestyle"

inability to take responsibility and blaming others seems to be a symptom of this new" gluten-free lifestyle" and I blame Karen for it....

IrishHeart Veteran

The Captain is working 10 hour days this week, but only worked 8s on Sat & Sun. Please excuse me....

poor Cap...geesh, that a lot of hours to work..... sorry :(

but aren't you glad you asked what we thought? :lol:

Adalaide Mentor

poor Cap...geesh, that a lot of hours to work..... sorry :(

but aren't you glad you asked what we thought? :lol:

Because we always wait for our opinions to be solicited. B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    2. - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

    3. - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

    4. - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

    5. - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748

    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.