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What Do You Use For Shampoo?


RPM

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RPM Apprentice

Last I knew, Suave & Garnier Fructis were the two that a lot of people used...are they still fine?


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rosetapper23 Explorer

I only use shampoos and conditioners from Desert Essence Organics and EO (Essential Oil). Both are made with organic essential oils, and there is NO gluten to worry about. I get Dermatitis Herpetiformis on my face, so it's essential that my shampoos be absolutely gluten free.

sora Community Regular

I still use Garnier products.

jebby Enthusiast

I am very sensitive and have used Dove products for years without any issues.

NJceliac Apprentice

So is Everyday Shea, Beautifulcurls, Kinkycurly brands, all available at WholeFoods. Kinkycurly available at Target as well.

pinkdahilia2525 Newbie

I am waiting for a blood test to tell me if I have Celiac Disease. But I am pretty sure what the result is going to be. I already have two other auto immune disorders. I have had to use Dove products for body wash for years. I have been having problems with my hair falling out and my head hurting and I had no idea it could be caused by the products I was using on my hair not being gluten free. Are there any other brands I can use for hair stuff and how do you tell?

Takala Enthusiast

The Dove products are okay (for gluten). The celiac itself can cause you to be losing hair, and the resulting non- absorbing of nutrients because of damage to the lining of the gut can play havoc with skin and hair quality. Thyroid problems can also cause hair loss. Going gluten free can result in your hair coming back in thicker (mine did).

You can get a rash from ingredients other than gluten (or cross contaminated oats used in some brands), it is not always the gluten. I have to be really careful because I have super sensitive skin, and a sensitive pet with allergies who can react to licking my hand if I use the wrong lotion. This is why I tend to not use commercial hair conditioners, which can leave a residue. Instead I use water and pure apple cider vinegar for a detangling rinse, followed by a bit of pure coconut oil or shea butter.

People tell by reading the labels for the obvious, checking websites for updated information, (doing a search on "gluten free name of product") and contacting the manufacturer and then posting results .... some companies are good about calling out allergens on the labels.


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CarolinaKip Community Regular

I use Johnson and Johnson baby shampoo and Garnier conditioner.

cavernio Enthusiast

I use Live Clean products including shampoo, conditioner, handsoap and moisturizers. Their website claims that all of their products are gluten free, despite nothing on the outward label. I have only seen them on the market where I live, Eastern Canada, for a couple of years. I was surprised to see that WalMart carried a whole slew of their products, but I originally bought their pump handsoap because it wasn't antimicrobial and was vegan. I found it at Sobeys.

I just bought Green Beaver shampoo and conditioner to try out (the cranberry smells so nice, which is a plus since I dislike or get nauseated by so many other smells) as it is labelled gluten free as well. This brand I could only find at my local organic store however. But it's canadian and also appears to create a bunch of other products including gluten free toothpaste.

I don't usually think of myself as having sensitive skin, but the most recent lip balm that I bought (gluten free of course) made the area around my lips break out, and the very natural deodorant I just bought to try out (smells nice) make my armpits itchy. The only ingredient I can fathom that I react to in that deodorant is the shea butter.

I've had dandruff issues since I was about 10, and I still have dandruff although I was hoping being gluten free and using gluten free shampoos would have resolved that. It's the really itchy kind that makes scabs that sorta stick to the scalp and feels much worse if my scalp is oily. It hasn't improved in 6 months. I have to occasionally use Nizoral (the only antidandruff shampoo to have ever had any noticeable effect to me) to keep it at bay. I haven't checked the gluten status of Nizoral.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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