Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where's The Gluten?

Sarahsmile416

Recommended Posts

Sarahsmile416 Apprentice
Sarahsmile416
Posted

Not celiac, recently diagnosed with EE, but suspect I am sensitive to gluten so am trying a gluten free diet to see if it eliminates my problems.

Went to a restaurant and asked for their gluten free menu...if said they could do any of their burgers without a bun, so I figured I'd be safe as I'm not sure how sensitive I am to CC yet. Anyway, so I got a turkey burger with cheese and guacamole on top with brocolli on the side. I know the brocolli is okay, so I'm wondering where else the gluten could be because while my reaction hasn't been severe, I'm having tons of reflux and mild D. So where could the gluten be?? Can anyone help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

As incredible as it seems, some companies/people feel the urge to put gluten in guacamole. I was surprised myself when a know gluten freer asked if my guacamole was gluten free. I said yes (before I was eating gluten free) and he said "How do you know?" I said because I made it myself. He then decided to eat it. When in doubt, ask, or don't eat it.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

I was afraid of that, mushroom...that was the only thing I could think of short of CC..,only thing I am wondering is what type of gluten they might put in there...my mom makes it all the time and just adds lemon and garlic...well live and learn! I think I will avoid guacamole unless I or my mother makes it!!

kareng Grand Master
kareng
Posted

Have you checked what causes reflux? Fatty things, spicy things, large meal, eating to close to bed, etc. maybe it had nothing to do with gluten and that is what is causing you issues?

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

I really don't do any of those things though. I don't eat large meals, almost never eat fatty foods and haven't eaten spicy foods in some times. And honestly, reflux is a side issue for me...the bigger issue is still C and D. Plus, there was inflammation in my intestines...

kareng Grand Master
kareng
Posted

Sorry. You said you had " tons of reflux" so I thought maybe, with the EE diagnosis, you would want to try that diet.

If I remember, you are getting the copies of the medical records to find out what the inflammation in the sm intestines is, correct? If I'm thinking of someone else, make sure you get them. And ask that GI what you are supposed to do about this EE and inflammation. There has to be a cause for the inflammation. It's nuts these docs that give you a " diagnosis" and no instructions.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

Sorry. You said you had " tons of reflux" so I thought maybe, with the EE diagnosis, you would want to try that diet.

If I remember, you are getting the copies of the medical records to find out what the inflammation in the sm intestines is, correct? If I'm thinking of someone else, make sure you get them. And ask that GI what you are supposed to do about this EE and inflammation. There has to be a cause for the inflammation. It's nuts these docs that give you a " diagnosis" and no instructions.

Hi Karen-

Yes that was me...I probably won't get them until the new year, but hopefully will talk to the doctor on Wednesday. The problem is exactly that - I know there is inflammation - but I don't know the extent of it. And yes , all diagnosis, but no instruction save, take this pill for the reflux...no word about everything else, which was my presenting problem and NOT the reflux. Kills me because I thought she was a good doctor..I was really impressed. Not impressed so much anymore. It always annoys me when doctors leave it to other people to talk to patients and not themselves!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I know that when my mother made hamburgers she added bread crumbs.

ajnemajrje Newbie
ajnemajrje
Posted

Many restaurant nowadays have food prepared off site. There might be gluten in the burger

OR

They might have had it prepared as usual, remembered all of a sudden that it was to be without a bun and then took the bun away.

That has happened to me at a restaurant once. The only reason I knew was that there was a crumb fromthe bun the they forgot to brush off or I would not have known.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

I admit I was pretty suspicious that something like that may have happened when I noticed a piece of lettuce on the burger when there was not supposed to be. At least made me suspect there was some error occurring there.

cavernio Enthusiast
cavernio
Posted

BBQ sauce or regular spices can have gluten, and both could have been added to the patty itself. Furthermore, they're the sort of items wheat-heads might not even consider as having gluten.

It might not be gluten at all though. I know I didn't have any issues with lactose at all until going gluten free. (I've since discerned why, because gluten causes celiacs intestines to create much larger gaps than usual, so the lactose was probably getting into my bloodstream whole, whereas when immediately stopping the gluten and with the intestines not breaking lactose down or the lactose getting absorbed, that's when it causes problems.) The cheese (if not an aged cheese) may have been the culprit.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

BBQ sauce or regular spices can have gluten, and both could have been added to the patty itself. Furthermore, they're the sort of items wheat-heads might not even consider as having gluten.

It might not be gluten at all though. I know I didn't have any issues with lactose at all until going gluten free. (I've since discerned why, because gluten causes celiacs intestines to create much larger gaps than usual, so the lactose was probably getting into my bloodstream whole, whereas when immediately stopping the gluten and with the intestines not breaking lactose down or the lactose getting absorbed, that's when it causes problems.) The cheese (if not an aged cheese) may have been the culprit.

Actually I was thinking lactose might have been what caused it. Tonight I had chicken with polenta and corn and green beans and I had a reaction...then my SIL told me the sauce the chicken was in had sour cream. Thus, I have determined, I may need to cut out lactose as well. Sigh...

mushroom Proficient
mushroom
Posted

Actually I was thinking lactose might have been what caused it. Tonight I had chicken with polenta and corn and green beans and I had a reaction...then my SIL told me the sauce the chicken was in had sour cream. Thus, I have determined, I may need to cut out lactose as well. Sigh...

Why don't you do a trial of totally dairy free? It could be coming from the casein or the lactose. Maybe not even gluten??? I don't know if you have trialled gluten without dairy? That could be a possibility.

Sarahsmile416 Apprentice
Sarahsmile416
Posted
  • Author

Why don't you do a trial of totally dairy free? It could be coming from the casein or the lactose. Maybe not even gluten??? I don't know if you have trialled gluten without dairy? That could be a possibility.

It's a possibility, although I have had reactions (horrible ones) from eating pretzels when no dairy was present. I do plan to cut out dairy after tonight though.

Though, this may be a stupid question - what are caseins?

mushroom Proficient
mushroom
Posted

Not a stupid question. Milk is made up of milk sugars (lactose), protein (casein) and fat. You need different enzymes to digest the different parts of the milk. The milk enzyme is made in the part of the small intestine that is destroyed by gluten so the lactose part is not digestible until you heal your gut. The casein is digested by a different enzyme and some people do not have this enzyme and are therefore dairy intolerant and no amount of healing the gut will restore this enzyme.

So if you are celiac, you are generally temporarily lactose intolerant as well. Since you were fairly gluten light there is really no way of knowing if your test results were accurate, so I guess you are just going to have to experiment with your diet and find out what things are bothering you. The easiest way would be to eliminate both gluten and dairy, and then see what happens.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,853
    • Most Online (within 30 mins)
      7,748
    Procurement
    Newest Member
    Procurement
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.