Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten In Processed Food?how Do I Spot It, Or Is It A Myth?


ldslara

Recommended Posts

ldslara Rookie

Hi! I started eating gluten free about a month ago and have some questions about avoiding gluten in processed foods. I know, avoiding processed food is a good idea in general, but when I do partake, is a food safe if it doesn't say "wheat" "barley" or "rye" in the ingredient list, or is it really more compicated than that? My understanding is that any product with wheat MUST include in on the ingredient list on the label or with a "contains wheat" or, if cross contamination is a concerned, a warning to the effecgt that it may contain traces of wheat. And though I understand that barley and rye don't have to be listed so clearly, they typically are. Does that all sound right?

With this in mind, two products have me wondering in the past few weeks "Where's the gluten":

I read that Resse's peanut butter cups are gluten free, but holiday items (like the trees) have gluten. I bought some of the trees for my kids stockings, and I don't see any wheat in the ingredients or warning that it is there. Is there really gluten there, and if so, where is it hiding on the label? It's bothering me that I can't identify it...

I liked to eat oatmeal for breakfast, but I heard cross-contamination is a problem with most brands, so I've been planning on getting some that was certified gluten free. But I have noticed that there is no warning on regular containers of oatmeal, not even a statement saying it may contain traces of wheat. If cross-contamination is so common, how can they not say that on the label? When I mentioned this to my Gastroentronologist a couple week ago, he said that oatmeal was fine and I shoudn't worry about it at all. Is that right? Is croos contamination of oatmeal just a concern for people super sensitve to gluten? Or is my gastroentronologist misinformed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No. All the Celiac organizations recommend gluten-free oatmeal. In fact, it is usually recommended that a person with Celiac not eat oatmeal for at least 6 months as a small percentage react to it like gluten.

There is no law in the US that forces a company to say if something may accidentally have a gluten ingredient in it. If they add wheat, they must disclose this. Rye is rarely on anything except rye bread. Barley ( malt) is usually disclosed because it is a distinct ingredient.

Remember, your GI has had no diet training and, unless he is in a Celiac Center or has a child with Celiac, has no idea about gluten in food. A sad fact of life.

rosetapper23 Explorer

When it comes to processed foods, if "gluten-free" isn't stated on the package, I call the company if I truly want to eat it. It's just not worth getting glutened.

SensitiveMe Rookie

My digestive disease doctor didn't know about any connection between oatmeal and wheat either. Until you can get some glutenfree oats there are substitutes for hot cereal...for a similar consistency to oatmeal you might try Kasha which is roasted Buckwheat Groats or else Cream of Buckwheat (don't be intimidated by the name since buckwheat is actually a fruit and you should see the words glutenfree on the boxes). I am a big fan of quinoa flakes as a hot cereal which also should say glutenfree on the box...for a thicker consistency add less water to it but it does thicken up quite a bit on standing with the water amount recommendation on the box.

In regards to hidden barley there is a product called Rice Dream milk which uses a barley enzyme and doesn't mention it on the containers. You wouldn't know it because it says Gluten Free on it, and the ingredient involving use of the barley in it is partially milled brown rice. The company says they extract the barley and test but barley testing can supposedly be very inaccurate. I suggest you never use this product as I have heard of quite a few people (including myself) having reactions to it.

Best to read everything on all packages. Quite a few times I checked all the ingredients while in the store then got home and later saw some little small writing on it that says processed on equipment which also processes wheat.

cavernio Enthusiast

In Canada I'm fairly certain cross contaminates don't have to be mentioned. If they knowingly put in wheat or other glutinous grains the law says that have to label it as containing them in an obvious way.

So while you might look at 2 different packages of, oh, nuts, and one says 'May contain traces of wheat' while the other one doesn't, that doesn't mean the one package is necessarily safe.

My GI told me to not even try oats, saying my intestines were too bad to even risk the gluten free ones. My sister has noticeable issues with oats but not wheat, (her blood test for celiac is negative...lets not get into testing and families etc here, just explaining my background), and I don't have a discernable gluten reaction, so it's a no-brainer for me to avoid them completely, at least until my intestines show healing. I have wondered about oat cross contamination in otherwise gluten-free flours though. I've seen at least one post in the forums about someone blaming traces of oats for their reactions to gluten free flours.

"The company says they extract the barley and test but barley testing can supposedly be very inaccurate."

I know this is off-topic, but I've wondered if this were a possibility myself when I started to wonder about how gluten is measured. Barley's 'gluten' doesn't have the same exact structure as wheat gluten. Do you have a reference or anything about that?

psawyer Proficient

Neither the US nor Canada require "may contain" warnings. Canada has a policy that says they may be used only if, despite best efforts to clean/separate, a real risk still exists.

Contamination can happen at any point on the supply chain, not just at the final production facility. In the case of oats, this happens at every step of the way, because oats and wheat are grown on the same farms, harvested with the same equipment, etc. Commercial oats may contain as much as 1% wheat from unintentional sources.

In the US, look for oats labeled gluten-free. In Canada, look for "certified pure oats," or "uncontaminated oats." There are no "gluten-free" oats in Canada, as Health Canada considers oats to be a gluten grain.

auzzi Newbie

REESE'S Peanut Butter Trees Ingredients

Peanuts, Milk Chocolate (Sugar, Cocoa Butter, Chocolate, Nonfat Milk, Milk Fat, Lactose, and Soy Lecithin, PGPR, Emulsifier), Sugar, Dextrose, Chocolate, Nonfat Milk, Contain 2% or Less of: Vegetable Oil (Cocoa Butter, Palm, Shea, Sunflower and/or Safflower Oil), Salt, Whey (Milk), Milk Fat, Soy Lecithin, TBHQ (Preservative), Vanillin, Artificial Flavor.

Purely guessing: I would say the dextrose - nothing else contains gluten .. unless it is manufactured in a gluten facitity/uses gluten starch to stop it sticking in/on the machinery/contaminated by not being separated ..

... If they say it is there, you can only accept it ..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient
I would say the dextrose - nothing else contains gluten

Dextrose is pure sugar and is gluten-free. Other gluten-free sweeteners include aspartame, brown sugar, corn syrup, fructose, glucose, lactose, maltitol, maltose, mannitol, saccharin, sorbitol, stevia, sucralose, sucrose, and xylitol.

GFinDC Veteran

Ingredients can vary by country also, so it is important verify the ingredients for the country where they are bought.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,486
    • Most Online (within 30 mins)
      7,748

    Takea-moment
    Newest Member
    Takea-moment
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.