Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ct Scans And Iodine


JaneWhoLovesRain

Recommended Posts

JaneWhoLovesRain Enthusiast

I'm wondering if it is safe to have a ct scan with contrast, seeing that the contrast agent has iodine in it and one of the questions always asked if if one is allergic to iodine.

I recently had a ct scan and refused the contrast and told the technician I have had a problem with topical iodine in that I break out in blisters if it is applied to my skin (this being from my experiment with the iodine patch). I did not tell him about my patch experiment nor I did I go into any further details with him but nevertheless he looked at me like I am nuts and asked if I am SURE it is iodine that I have a problem with. But I'm thinking if it can do what it does to my skin, what can it do to the insides of my veins?

On the other hand, if I apply an iodine patch to an area that is not suffering from "dh type lesions" I do not break out in a big blister, it is only if it is applied to an area near a lesion that I do. So maybe I would be okay with the contrast agent since I don't have dh in my veins.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I always say I can't have iodine in the contrast. So far, they've used some other type of contrast with me. I'm allergic to iodine both topically and internally, so there is no other option for me. As long as the technician is willing to use an alternative contrast, I would recommend that you keep refusing the iodine.

shadowicewolf Proficient

I have before as well. But, it was because it wasn't cleaned up properly after my surgery. So i broke out in a rash (not fun when you are recovering from a gallbladder surgery). Speak again with the doctor. Mine said it was because of this.

I do know if you have an allergy to shellfish you should avoid them, or so i've been told.

JaneWhoLovesRain Enthusiast

I think I need to clarify. I am referring specifcally to having iodine while having dermatitis herpetiformis, because iodine is know to aggravate dh; I'm not rerfering to having the contrast agent if there is a known allergy (not sensitivity) to shellfish or iodine, that is a definite contradiction. I'm wondering if the iodine will aggravate things internally the same way it does on the skin in someone who has active dh.

cahill Collaborator

I'm wondering if it is safe to have a ct scan with contrast, seeing that the contrast agent has iodine in it and one of the questions always asked if if one is allergic to iodine.

I recently had a ct scan and refused the contrast and told the technician I have had a problem with topical iodine in that I break out in blisters if it is applied to my skin (this being from my experiment with the iodine patch). I did not tell him about my patch experiment nor I did I go into any further details with him but nevertheless he looked at me like I am nuts and asked if I am SURE it is iodine that I have a problem with. But I'm thinking if it can do what it does to my skin, what can it do to the insides of my veins?

On the other hand, if I apply an iodine patch to an area that is not suffering from "dh type lesions" I do not break out in a big blister, it is only if it is applied to an area near a lesion that I do. So maybe I would be okay with the contrast agent since I don't have dh in my veins.

Yea I am used to the techs,docs and nurses looking at me like I am nuts. The procedures are so routine to them that they just dont even think about the risks or possible problems .

My GI laughs and says I keep him and his staff on their toes. ^_^

I have always refused the contrast in an ER situation. My GI never orders the contrast when he orders testing ,,,,I can not even begin to imagine what the iodine in the contrast would do to me and my DH. :ph34r:

squirmingitch Veteran

Check it out Jane:

Open Original Shared Link

And note that this person was on Dapsone while it happened & the Dapsone couldn't even control it.

No way, no how would I get an iodine contrast. It is taking iodine internally just as if you had eaten gobs of high iodine foods.

sisterlynr Explorer

I had many CT Scans with Iodine before, during and after chemo with no reaction. I then had a reaction of swelling and itching that affected the left side of my face. They escorted me to the infusion area and administered Benadryl via IV. I did not know I had DH then. I list IV Iodine contrast as an allergy now, per my doctor.

I did go out online and according to many sites, the iodine in IV contrast is NOT the same as what is put into table salt.

I have a friend who is allergic to shellfish and she reacted horribly to IV Iodine contrast. Her earrings popped out, she had difficulty breathing, swelling, immediate redness to her face, chest, etc. I would just tell them you have an allergy. . . better safe than sorry, IMO. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,748
    • Most Online (within 30 mins)
      7,748

    Hollee
    Newest Member
    Hollee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.