Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally Some Improvement, Updates At 5


ruuning like a zombie

Recommended Posts

ruuning like a zombie Newbie

Well ladies and gents of the internets, I have a silver lining to my thunderstorm. First ill start off by saying a little more abt me. I'm 27 and have been controlled by nerve racking pain and nasty other symptoms for the last 7 years. I've had trouble gaining weight in the process and always seemed to be at a vitamin deficit. Well over the past 8 days I have given up gluten and been feeling so much better. I know that this is a very short period of time but hey happiness can be found in everything. Since giving it up I have actually been able to semi take back control of my life. Stomach pains are almost non existing and I actually feel great. My family told me that I am not as grumpy and even seem to be considerably more alert. I spoke with my doc who wants to do more blood work and recheck everything. She seems very hopeful that we might have finally found an answer to my issues. Forgive my extreme happiness, I feel like I would burst at the seams if I didn't tell someone. God knows my family and friends are tired of hearing about it. Sincerely, - a happy zombie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

This is wonderful to hear.

Know that many of us improve right away and experience some set backs - just remember how much you improved in this short time and go easy - recovering Zombies need lots of rest and loads of whole foods!

Thanks for sharing - let us know if you have questions.

Hopeful for you :)

1desperateladysaved Proficient

Great! Keep up the good work. From another Zombie with a tired of hearing about it family.

I am not tired of hearing about it!

Diana

nvsmom Community Regular

"Recovering zombie"... LOL Love it! :P

Congrats on figuring it out for yourself and good luck with the gluten-free diet. I wish you continued success. :)

mushroom Proficient

Whew! I know what a relief that must be for you, to find an answer after all that suffering :) Make sure she does the testing to confirm your self diagnosis, and do keep us informed of how you progress. Fire away with any questions that come up.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    Bea71
    Newest Member
    Bea71
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.