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Possible Celiac

gypsyrosenfmommy

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gypsyrosenfmommy Newbie
gypsyrosenfmommy
Posted

My 2 year old just had blood drawn for a comprehensive test. We should hear back tomorow. He gets very bloted, gassy, has diareaoften, wakes up with gas pains crying and very foul poops. I know they say 25% of people with our geneti disorder (nerofibromatosis) has it. I also have bowl issues. Such as i often have mucus in my bm. Often that is all i poop is mucus. What are the chances of a false negitive for a comprehensive celiac test? Does it sound like celiac?

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kareng Grand Master
kareng
Posted

This assumes a "normal" diet with gluten in it.

For adults:

Open Original Shared Link

"Is it possible to have a negative blood test, but a positive biopsy?

While rare, it is possible to have a negative blood test and still have celiac disease. tTG sensitivity is approximately 98%, which means that 2% of all celiacs may have a normal tTG level. Sometimes tTG antibodies are not produced enough to show up in the blood stream and can only be detected in the intestinal mucosa by special means.

IgA deficiency is a reason why you might have a negative blood test, but a positive biopsy.

Further medical evaluation is important for anyone still experiencing symptoms in order to establish the diagnosis or to rule out celiac disease as a part of establishing another diagnosis. In some cases, celiac disease is the wrong diagnosis as such conditions as Crohn’s Disease and food protein allergy Open Original Shared Link"

For little ones:

Open Original Shared Link

"At what age should children get tested for celiac disease?

Generally, children are screened for celiac disease at age 2 or 3 unless symptoms are seen beforehand. In children younger than 3, with symptoms, antibody testing may not always be accurate. Children must be eating wheat or barley-based cereals for some time, up to one year, before they can generate an autoimmune response to gluten that shows up in testing. A pediatric gastroenterologist should evaluate young children experiencing a failure to thrive or persistent diarrhea for celiac disease."

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