Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Of The Scalp

DutchGirl

By DutchGirl
in Dermatitis Herpetiformis

Recommended Posts

DutchGirl Apprentice
DutchGirl
Posted

I am newly diagnosed with celiac disease. I have had DH on my scalp for a few years but I didn't realize that's what it was until I was diagnosed recently. I have given up gluten but is there anything I can or should do to help heal my scalp?? It is so itchy, flaky, and burning, I would love some relief!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Lakefront Brewery
Smith & Truslow

Celiac.com Sponsor (A8-M):
Tierra Farm

pricklypear1971 Community Regular
pricklypear1971
Posted

Id start with ensuring your hair products are gluten free and don't irritate your scalp for any other reason. Even though topical gluten isn't supposed to cause DH, many of us find better results when we do.

It's difficult to moisturize the scalp (compared to an arm) but I found my DH needed lotion a few times a day. I used Vanicream. In short, be nice to the rash.

I'm sure others here have dealt with it on the scalp. I haven't. I'm sure they'll chime in.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

I'm finding that anything to moisturize with will be difficult, I have thick hair down to the middle of my back. But with all of the itching, there are days I just want to shave it all off!! :)

pricklypear1971 Community Regular
pricklypear1971
Posted

If you can do it every few days how about a scalp massage with a pure oil like almond, jojoba...?

I'd think the biggest thing would be to not use styling agents, shampoos or conditioners that irritate it. And I have no idea what that would be for you.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

I will give it a try! I need some relief! Thank you!

pricklypear1971 Community Regular
pricklypear1971
Posted

You should also read the DH forum for tips.

squirmingitch Veteran
squirmingitch
Posted

I agree with what pricklypear said. I also have long hair down to my legs & BAD dh in my scalp. I know the feeling of wanting to shave it all off! This is going to sound gross & it is gross (at least to me) & it's very difficult to stand doing this BUT I have found that the longer you can possibly go without washing your hair the better off you will be when you have the dh in your scalp. When that skin is trying to heal it's best to not abrade it by shampooing even gently as the new skin is so fragile & thin. If you can go 3,4,5 days or as long as you possibly can then it gives that new skin a chance to thicken up & not bust open again. When you shampoo, do not use your nails --- only the fleshy fingertips gently. And for heavens sake do not let the brush bristles run across your scalp & tear it up. Be gentle, be very gentle.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Tierra Farm

Celiac.com Sponsor (A8-M):
Smith & Truslow

DutchGirl Apprentice
DutchGirl
Posted
  • Author

I already go about 3 days between washing since my hair is so thick, I'll try going a day or two longer. My scalp is so itchy it's hard not to scratch but I'm trying! Thanks for the advice!!

squirmingitch Veteran
squirmingitch
Posted

It's impossible not to EVER scratch! But we do the best we can right? Right now I feel totally filthy. I haven't washed my hair for 3 days & it's driving me crazy but I am determined to go a couple more. This also allows our natural oils to help our scalp.

Hang in there.

sisterlynr Explorer
sisterlynr
Posted

I already go about 3 days between washing since my hair is so thick, I'll try going a day or two longer. My scalp is so itchy it's hard not to scratch but I'm trying! Thanks for the advice!!

I have used Scalpicin, a product for scalp itch. It does work! I have applied olive oil to my scalp and left it a couple of days. It is hard not to scratch and I have a horrible time trying not to pick at the scabs. :(

GFreeMO Proficient
GFreeMO
Posted

Johnsons Baby shampoo has been helping my scalp DH.  Maybe give it a try.

Lady Eowyn Apprentice
Lady Eowyn
Posted

Hi

Really important to find shampoo/cond that doesn't aggravate it - this might take some time and trial!

Mine is rapidly affected by iodine and I have to limit oily fish and sea salt or it goes beserk. I haven't tried a low iodine diet because of the health benefits of iodine but I do have to watch some things.

DutchGirl Apprentice
DutchGirl
Posted
  • Author

Hi

Really important to find shampoo/cond that doesn't aggravate it - this might take some time and trial!

Mine is rapidly affected by iodine and I have to limit oily fish and sea salt or it goes beserk. I haven't tried a low iodine diet because of the health benefits of iodine but I do have to watch some things.

How long after you eat those things do you start having issues with your DH? How do you link the two together? I'd like to figure out what aggravates mine.

VeggieGal Contributor
VeggieGal
Posted

Hi, I had an incredibly itchy scalp for years and was really embarassed about it. After 5 weeks being gluten free it had almost disappeared then I realised that coffee seemed to trigger odd blisters so Ive cut out coffee for the last 2 weeks and I'm completed itch free :) . Not sure if coffee was an allergy for me or if it was cross reactive or what it was but if you drink coffee (i even seemed to react to decaf), it may worth eliminating for awhile

Lady Eowyn Apprentice
Lady Eowyn
Posted

If I eat sea salt (which sadly, I really like) my DH worsens from about the 2nd day of having it. This applies to putting it in things I'm making and eating too. I don't eat salty things normally but occasionally some sea salt is lovely :unsure: .

When I was eating oily fish (mainly salmon) three times a week it got a lot worse but of course, it was some time before I realised what the problem was.

Can't take cod liver oil (concentrate) either as this makes me hypothyroid too, in about three days.

 

This gives me a double whammy over iodine :blink: although I have never tried to go on the low iodine diet that some have had success with here.

squirmingitch Veteran
squirmingitch
Posted

The sea salt & the seafood including cod liver oil since cod come from the sea are all high iodine. That's why you have a problem with it.

sisterlynr Explorer
sisterlynr
Posted

I am newly diagnosed with celiac disease. I have had DH on my scalp for a few years but I didn't realize that's what it was until I was diagnosed recently. I have given up gluten but is there anything I can or should do to help heal my scalp?? It is so itchy, flaky, and burning, I would love some relief!

 

Scalpicin will take the itch away, immediately.

  • 3 years later...
Antonette Rookie
Antonette
Posted

I have it for a month and it's driving me crazy. i love scalpicin and dermovate for scalp it's painful and feels good at the same time when it's itchy. But it makes my blood pressure go up when inuse steroids so right now i don't know what to do. I have DH all over my scalp and i have crust and snowflakes all over my bed and couch and everywhere. I have it all over my chest and back and arm tummy. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Lakefront Brewery
    Food for Life


    Celiac.com Sponsors (A17-M):

    Tierra Farm


  • Recent Activity

    1. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    2. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS. I seriously doubt I have celiac but I appreciate your input a...
    3. trents
      - trents replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    4. RMJ
      - RMJ replied to Alibu's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods...
    5. The Logician
      - The Logician replied to The Logician's topic in Related Issues & Disorders
      9

      Gluten Sensitivity

      Thanks for the advice, if my sensitivity comes back i’ll do that but I am 74, in good health for my age and probably have been sensitive to gluten for over 30 years the beginning of which I didn’t even know or suspect It was gluten. I’m seen by my doctor every three months with fasting labs, he knows I avoid gluten and has never suggested I should be conce...
  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse


  • Member Statistics

    • Total Members
      129,991
    • Most Online (within 30 mins)
      7,748
    Jubaroo
    Newest Member
    Jubaroo
    Joined
  • Celiac.com Sponsor (A20):
    Daura Damm

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Celiac.com Sponsor (A21):
    Lakefront Brewery


  • Upcoming Events

  • Posts

    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      Gluten Sensitivity

      By trents · Posted

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By RMJ · Posted

      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      Thanks for the advice, if my sensitivity comes back i’ll do that but I am 74, in good health for my age and probably have been sensitive to gluten for over 30 years the beginning of which I didn’t even know or suspect It was gluten. I’m seen by my doctor every three months with fasting labs, he knows I avoid gluten and has never suggested I should be concerned. It is quite possible a doctor did those tests on me 30 years ago, I just don’t remember, if they did and they were negative that’s why I wouldn’t remember. If you are interested I’ll keep you posted, but from what i’ve read there is no cure for genetic celiac disease and right now I’ve never felt worse than diarrhea eating wheat or better than I do now eating wheat. If there is no cure I doubt my episode with an antibiotic is the cure which means I don’t have celiac. This antibiotic may be a cure for sensitivity however….i hope.
×
×
  • Create New...