Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got Glutened...ugh

luvrdeo

By luvrdeo
in Coping with Celiac Disease

Recommended Posts

luvrdeo Apprentice
luvrdeo
Posted

I let a friend cook an extravagant dinner for a group, she knows I have celiac...but something slipped in there obviously.  This was LAST Sunday...as in, the 13th.  It took a few days before I knew what was going on...but then it hit me, and hit me hard.  And still is.  I've been gluten-free for over a year now...this has to be my biggest unknown slip-up, and I'm miserable!  My stomach is making noises it never should.  Food is literally running out of me.  It's been almost 2 weeks...anything I can do to ease the "pain"??  I thought it would be out of my system by now!  Dang food anyway...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flowerqueen Community Regular
flowerqueen
Posted

I've had a similar experience recently and the only thing that helped me was gluten and wheat free slippery elm (in capsule form). Hope this helps. Good luck. Hope you feel better soon.

notme Experienced
notme
Posted

i am right there with you - not last saturday, but the saturday before we went out of town and one of the places we ate at (yeah, i broke my own rules - sick of hearing 'we're hungry, where should we eat" so i did the 'find me gluten-free' app (which is actually pretty good on the phone - i thought it was better than the website) and let them pick some places - MISTAAAKKE!)  evidently glutened me.  i am just starting to feel a little better today  :(  this thing is soooo miserable.  my digestive issues weren't as bad as the neuro ones this time.  i am going to take that as i am doing pretty good with healing after 3 years lolz - but - i thought it might go away sooner(it's 14 days for me)  but i am still dragging and staying pretty close to the bathroom :( and bed :( 

 

hard to believe i used to feel like this (or worse!) all the time...  wait it out, be gentle on your insides as far as foods, drink water, for me,. hot showers maybe, i guess mostly time.  feel better soon!  :)

IrishHeart Veteran
IrishHeart
Posted

When I have been hit, I double the probiotics for a week  (dose in morning, dose at bedtime) and it knocks down the inflammation

and I drink a lot of water. Take it slow, rest. It's all we can do.

 

Time heals.

 

I eat mostly carby stuff (I know, fattening) but toast with jam  just makes me feel better and then, just ride it out.

 

Sorry, hunny ((HUGS))

luvrdeo Apprentice
luvrdeo
Posted
  • Author

Thanks for all the good advice, and support!  I know we all try hard to be super careful...but sometimes it happens!  I really need to get back on a good probiotic...I used to take it religously, but have slacked lately.  Hadn't heard of the slippery elm...I'll look into that too!  I am just sick of having to run to the bathroom 100 times a day...gets old!! :angry:

nvsmom Community Regular
nvsmom
Posted

I've heard papaya extract (papayne sp?) can be helpful but I think after two weeks, it wouldn't do much.  :(

 

L-glutamine is helpful in healing muscular linings (ie. the intestines). That might be one to try. It's usually in health food stores.

 

I hope you turn a corner this weekend.  (hugs)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    2. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    3. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    4. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
    5. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott. Have manufacturers ever said why that should be the case?
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,436
    • Most Online (within 30 mins)
      7,748
    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.