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I Got Glutened...ugh

luvrdeo

By luvrdeo
in Coping with Celiac Disease

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luvrdeo Apprentice
luvrdeo
Posted

I let a friend cook an extravagant dinner for a group, she knows I have celiac...but something slipped in there obviously.  This was LAST Sunday...as in, the 13th.  It took a few days before I knew what was going on...but then it hit me, and hit me hard.  And still is.  I've been gluten-free for over a year now...this has to be my biggest unknown slip-up, and I'm miserable!  My stomach is making noises it never should.  Food is literally running out of me.  It's been almost 2 weeks...anything I can do to ease the "pain"??  I thought it would be out of my system by now!  Dang food anyway...

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flowerqueen Community Regular
flowerqueen
Posted

I've had a similar experience recently and the only thing that helped me was gluten and wheat free slippery elm (in capsule form). Hope this helps. Good luck. Hope you feel better soon.

notme Experienced
notme
Posted

i am right there with you - not last saturday, but the saturday before we went out of town and one of the places we ate at (yeah, i broke my own rules - sick of hearing 'we're hungry, where should we eat" so i did the 'find me gluten-free' app (which is actually pretty good on the phone - i thought it was better than the website) and let them pick some places - MISTAAAKKE!)  evidently glutened me.  i am just starting to feel a little better today  :(  this thing is soooo miserable.  my digestive issues weren't as bad as the neuro ones this time.  i am going to take that as i am doing pretty good with healing after 3 years lolz - but - i thought it might go away sooner(it's 14 days for me)  but i am still dragging and staying pretty close to the bathroom :( and bed :( 

 

hard to believe i used to feel like this (or worse!) all the time...  wait it out, be gentle on your insides as far as foods, drink water, for me,. hot showers maybe, i guess mostly time.  feel better soon!  :)

IrishHeart Veteran
IrishHeart
Posted

When I have been hit, I double the probiotics for a week  (dose in morning, dose at bedtime) and it knocks down the inflammation

and I drink a lot of water. Take it slow, rest. It's all we can do.

 

Time heals.

 

I eat mostly carby stuff (I know, fattening) but toast with jam  just makes me feel better and then, just ride it out.

 

Sorry, hunny ((HUGS))

luvrdeo Apprentice
luvrdeo
Posted
  • Author

Thanks for all the good advice, and support!  I know we all try hard to be super careful...but sometimes it happens!  I really need to get back on a good probiotic...I used to take it religously, but have slacked lately.  Hadn't heard of the slippery elm...I'll look into that too!  I am just sick of having to run to the bathroom 100 times a day...gets old!! :angry:

nvsmom Community Regular
nvsmom
Posted

I've heard papaya extract (papayne sp?) can be helpful but I think after two weeks, it wouldn't do much.  :(

 

L-glutamine is helpful in healing muscular linings (ie. the intestines). That might be one to try. It's usually in health food stores.

 

I hope you turn a corner this weekend.  (hugs)

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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    • BlessedinBoston
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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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