Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I Was Poisoned By My Body: The Odyssey Of A Doctor Who Reversed Fibromyalgia, Leaky Gut Syndrome, And Multiple Chemical Sensitivity - Naturally!

ms-sillyak-screwed

Recommended Posts

ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
Posted

THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miamia Rookie
miamia
Posted
THIS IS A BOOK I STUMBLED UPON.

Open Original Shared Link

ANYONE READ IT?

The book addresses celiac disease.

YOUR REVIEW...

I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

Link to comment
Share on other sites
jerseyangel Proficient
jerseyangel
Posted

This looks like it would be very interesting. Thanks for posting about it, C. I think I will look for it :)

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
  • Author
Posted

.

Link to comment
Share on other sites
miamia Rookie
miamia
Posted
Open Original Shared Link

I found this and it touches upon celiac disease too.

Open Original Shared Link

I find it interesing the books people buy. Were as with Amazon you can see the other books that person also bought. And it appears there are a few new books addressing celiac disease hitting the book stores.

Also Gilbere has her own site and ou can read all the articles shes written and so on. It is really informative. I think what I like best about her books as opposed to other sis shes speaking from her own experience not just that of s medical professional its much easier to process.

Miamia

Link to comment
Share on other sites
Green12 Enthusiast
Green12
Posted
I have read it and trhought it was really really informative- I also have leakey gut and have suffered from cadida which the book addresses. I highly recomend it and there is another one of her books as well but I can't remember the name.

Miamia

MiaMia,

Thanks for posting your thoughts on this book, it does sound interesting :lol:

Link to comment
Share on other sites
  • 1 month later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
  • Author
Posted

!

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lindalee Enthusiast
lindalee
Posted
I picked up the book last night I can't put it down. It is easy to read and fast with all the "LIGHT BULB MOMENTS" I've been having as I read, why I'm sick and how to fix it.

It's a really good book so far and well worth the time.

Explains the "rotation diet" I've been doing, and how to get the most of it, to turn this around.

I'll be back when I get finished. I only question the use of WHEY...?

Please put this one on your MUST READ LIST!

This is a terrific book. I haven't finished it yet. It is about a doctor who became ill. It explains the symptoms and what she did to get through the illness. She covers it all from the toxic effects of the drugs to the battle to recover from the immune system war to the challenge of socialization and "her foods". You can't help but relate to her!! Linda Lee

Link to comment
Share on other sites
rinne Apprentice
rinne
Posted

Here is her web site,

Open Original Shared Link

Thanks for the information about her.

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
  • Author
Posted

-

Link to comment
Share on other sites
lindalee Enthusiast
lindalee
Posted
After reading I'm not sure this book is for all of us here.

Open Original Shared Link & SOY being helpful. Open Original Shared Link I have found it to be the op·po·site. Google the words "Whey Allergy" and see.

In the book she writes about many illnesses but she [never] tells the reader what she was sick from.

One element that was true for me was the MCSS (multiple chemical sensitivity syndrome) as I look back it started for me in 94 with enviromental allergies following surgery in my 30s. And at that time was when I was doing all the colon cleanse and had taken a entirely holistic approach to my life. As I listed in my profile; I did everything other than hycolonics. And the author stands by that it, how it worked for her and goes into detail of the process of detoxing, colon irrigation, colon hydrotherapy, ememas and how helpful these treatments are.

I must confess back in 94 everyone was doing it -- I'm speaking of -- hydrotherapy colonics. My cousin's bestfriend (someone I knew) went and she passed out on the sidewalk in Manhattan following a hycolonic session. She was hospitalized for a week for dehydration. And since my hypersensitivity to everything (in life) I can't or couldn't get past that. ....And then life changed in a big way, the colon cleans and holistic approach I was doing had stopped and no longer had those luxuries with major stress over time by 2000-01 celiac disease grabbed a hold of me.

I do believe; there is many benefits to colon cleaning and some of what she writes about. At this stage for myself I'm reluctant without a professionals help to attempt hycolonics. And the author points that out to the reader.

She writes about glutamine, ginger, aloe, alfalfa, milk thistle, night shade veggies, enzymes digestive and systermic oral enzymes and PARASITES.

She believes in the rotation diet to help.

The best line in the book for me was... when encountering individuals who think [you are neurotic] and present more challanges to you - say to them, " I'M HAPPY YOU HAVE NEVER EXPERIENCED SEVERE ALLERGIES, AND I HOPE YOU NEVER DO." I like it cause it makes all those people we meet, that raise their eyebrow at us, it shifts the thought to them, and gives them something to think of, themselves. I'm going to use it next time.

Has anyone else read the book? What do you think?

Or are doing any of these treatments?

I am trying to learn more about glutamine, the site says it helps celiac....not sure about whey....milk thistle( I bought some to help the liver-going to start back on that and the probiotics...I am dodging the night shades now...I was scanning Dr. Weil's book last night and he said he takes a sm. can of grapefuit juice with metamucile in the morning first thing and then again before retiring (I find fiber helps me too) I am going to keep the fiber up (even though I eat alot of salads, fruits and veggies)..a client gave me some fresh fish yesterday after church and as I was rinsing it I could smell something...he had marinated it in Italian dressing <_< so the best thing I know to say is "I only eat plain foods"... glutamine- that is what I want to know about....LL

Link to comment
Share on other sites
lindalee Enthusiast
lindalee
Posted

sillyak, Did you read what she said about the chop sticks?????? I was wondering what those were really good for!! :lol: LL

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
  • Author
Posted
:o
Link to comment
Share on other sites
penguin Community Regular
penguin
Posted

Konsyl (original) is safe for celiacs, all it has is psyllium. That's the one my GI doc reccommends.

Link to comment
Share on other sites
lindalee Enthusiast
lindalee
Posted
I looked up the ingredients in metamucile Open Original Shared Link they have artificial flavors thats Open Original Shared Link a big no no for us. They can hide many things that will make us sick. It has aspartame in it and also Open Original Shared Link and is processed with grains. = CC It might be making you 'go' for another reason?

lindalee -- Yes, the author says :o chop sticks are used to pick your stool apart when inspecting it for parasite and etc... :o

I use Psyllium 100% no sugar (Konsyl) brand and Glucomannan Fiber (Bionutrients) if I am not juicing. I do not reccommend Metamucile ---I just think it is interesting he takes it twice a day.(a fiber). LL

Link to comment
Share on other sites
  • 4 weeks later...
ms-sillyak-screwed Enthusiast
ms-sillyak-screwed
  • Author
Posted

.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,090
    • Most Online (within 30 mins)
      7,748
    Nicole K
    Newest Member
    Nicole K
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Denise I
      Celiac Dietician

      By Denise I · Posted

      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      14 year old with Celiac & EOE still suffering...

      By Posterboy · Posted

      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      I'll answer your second question first. The single best antibody test for monitoring celiac blood antibody levels is the tTG-IGA and it is very cost effective. For this reason, it is the most popular and often the only test ordered by physicians when checking for celiac disease. There are some people who actually do have celiac disease who will score negatives on this test anyway because of anomalies in their immune system but your wife is not one of them. So for her, the tTG-IGA should be sufficient. It is highly sensitive and highly specific for celiac disease. If your wife gets serious about eating gluten free and stays on a gluten free diet for the duration, she should experience healing in her villous lining, normalization in her antibody numbers and avoid reaching a celiac health crisis tipping point. I am attaching an article that will provide guidance for getting serious about gluten free living. It really is an advantage if all wheat products are taken out of the house and other household members adopt gluten free eating in order to avoid cross contamination and mistakes.  
    • Anmol
      Recently Diagnosed Celiac- Need advice

      By Anmol · Posted

      Thanks this is helpful. Couple of follow -ups- that critical point till it stays silent is age dependent or dependent on continuing to eat gluten. In other words if she is on gluten-free diet can she stay on silent celiac disease forever?    what are the most cost effective yet efficient test to track the inflammation/antibodies and see if gluten-free is working . 
    • trents
      Recently Diagnosed Celiac- Need advice

      By trents · Posted

      Welcome to the community forum, @Anmol! There are a number of blood antibody tests that can be administered when diagnosing celiac disease and it is normal that not all of them will be positive. Three out of four that were run for you were positive. It looks pretty conclusive that you have celiac disease. Many physicians will only run the tTG-IGA test so I applaud your doctor for being so thorough. Note, the Immunoglobulin A is not a test for celiac disease per se but a measure of total IGA antibody levels in your blood. If this number is low it can cause false negatives in the individual IGA-based celiac antibody tests. There are many celiacs who are asymptomatic when consuming gluten, at least until damage to the villous lining of the small bowel progresses to a certain critical point. I was one of them. We call them "silent" celiacs".  Unfortunately, being asymptomatic does not equate to no damage being done to the villous lining of the small bowel. No, the fact that your wife is asymptomatic should not be viewed as a license to not practice strict gluten free eating. She is damaging her health by doing so and the continuing high antibody test scores are proof of that. The antibodies are produced by inflammation in the small bowel lining and over time this inflammation destroys the villous lining. Continuing to disregard this will catch up to her. While it may be true that a little gluten does less harm to the villous lining than a lot, why would you even want to tolerate any harm at all to it? Being a "silent" celiac is both a blessing and a curse. It's a blessing in the sense of being able to endure some cross contamination in social settings without embarrassing repercussions. It's a curse in that it slows down the learning curve of avoiding foods where gluten is not an obvious ingredient, yet still may be doing damage to the villous lining of the small bowel. GliadinX is helpful to many celiacs in avoiding illness from cross contamination when eating out but it is not effective when consuming larger amounts of gluten. It was never intended for that purpose. Eating out is the number one sabotager of gluten free eating. You have no control of how food is prepared and handled in restaurant kitchens.  
×
×
  • Create New...