• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Two Months In And Food Intolerances Are Growing! Why?
0

5 posts in this topic

So, I am two and half months in after being "labelled" NCGI. I was given Aciphex to control the extreme acidity and erosion of my esophagus and told that my other symptoms would start to improve after a couple months. Unfortunately, that has not happened. Instead, itseems my tolerance for foods has lessened. A month after my negative biopsy, I realized, I had become intolerant to dairy - something I had expected to a point given the state of my gut. However, I figured that would be the end of it, hopefully! Because of my dairy intolerance I thought I would try the So Delicious Coconut ice cream - definitely delicious and no ill effects. This past weekend I saw they had a no sugar added variety and because of my diabetes, I figured that might be better than the other. I tried it two nights ago and was okay that night but later on, not so much. As an experiment to confirm it was that food that had given me the problem, I ate it again...same issues. I'm trying to figure out whether it was some added ingredient in the NSA variety or if it is the So Delicious brand in general. I have heard people have had reactions to the carageenan in that, but figured I was okay because I haven't reacted to the yogurt that had it in it or the first So Delicious brand I tried. However, maybe like everything else, I am growing intolerant to that too.

I guess my question is, is it normal to have growing food intolerances two months into the gluten-free diet? If so, why? All I know, is that it becomes very frustrating to have to keep adding foods to my do-not-eat list. :(

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


It is possible that you are better able to distinguish food problems now. That seemed to be the case for me. You get one big culprit out of the way and your body isn't overwhelmed with that anymore. Then it is more able to alert you that something is wrong with what you are still eating. I also had cross contamination problems that kept me feeling low and withdrawl. Give yourself time to cope with these. Keep refining your scrutinizing and making it better and better.

Keep at it! You are on the right road. For every food I haven't been able to eat anymore, I find two or three things to substitute with. I have used almond milk, coconut milk, and hazlenut milk for example.

It seems odd to me to have too much acidicity in your stomach. I take a little hydrochloric acid to help with digestion.

Get well***

Diana

0

Share this post


Link to post
Share on other sites

Thanks for the help. :) Hazelnut milk sounds really good - I've never seen that in any of the stores near me though :(

0

Share this post


Link to post
Share on other sites

Hi there

I'm 5 months gluten free (just), I have had SO many allergies and intolerances since I began gluten free. Dairy was the first, soy next, then eggs, citrus fruit (caused terrible asthma and bad ezcema), quinoa (asthma again), and now corn (which is really upsetting me as corn is everywhere)... Recently had a few reactions to corn, just like eating gluten :( the reaction last night from blowing up a balloon or baking my son's birthday cake (don't know which it was?).... So yes, it's very possible to have growing problems with food intolerances and allergies.

I've had some great advice on here though, and some great people on here keep telling me to hang on in there. And that's precisely what I aim to do. It's hard. I'm currently depressed about corn (very recent intolerance)... I keep wondering how much food I will be able to eat... I'm vegetarian too so it's very difficult.

But... On a day to day level, I feel ok! And isn't that wonderful! My energy has picked up since taking iron etc feel much better generally. So something must be right?? I also gave up smoking and sugar when I went gluten-free. My poor poor body! I just keep telling myself that my body has gone a bit haywire and is just rewiring itself (and sometimes getting it wrong for a bit)!

It's hard to be positive, don't I just know it. But it's the only way. Some of the guys on here are an inspiration with their positivity... So I figure they are probably right...

Good luck, have a good rant on here! I have been on here all day complaining!! Makes me feel tons better!

1

Share this post


Link to post
Share on other sites

Grrr. Because out digestive symptoms are drama queens. Just when you think you get it, it all changes on you.

I hear it gets easier, so hang on. When I feel sad, I read the Crohn's boards and thank my lucky stars.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,017
    • Total Posts
      933,818
  • Member Statistics

    • Total Members
      64,588
    • Most Online
      3,093

    Newest Member
    Donna Anderson
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • Has he had a recent blood test for Celiac?  That would be where I would start. If it is still negative, I would look for other things, like a FODMAP issue.
    • My son (age 7, almost 8) has had GI issues for several years.  Almost 2 years ago (about a week after he turned 6), we had him tested for celiac and his blood test results were negative.  His test results were:  tTG IgA:  1; Immunoglobin A:  129.  I've read that false negative results do occur, but that typically it is an IgA deficiency that causes false negative tTg IgA results, and my son was not IgA deficient according to this blood test.  But his symptoms (some of which ebb and flow but which have been getting worse the last several months, include the following: --Complaints of tummy pain and nausea --Excess gas, bloating --Stools often look abnormal:  mucous in stool, often very bulky stools, gassy, explosive bowel movements, etc. --Extremely low BMI (He has always been below the 3rd percentile for weight, with height in the 50-75th percentile, but at his check-up in January (age 7.5), he fell off his height curve (weighed 42 pounds and measured 48.5 inches)  --Oral health issues:  He not infrequently complains of canker sores; At dentist visit a couple weeks ago, they discovered 4 cavities (This was the first time he allowed x-rays to be taken).   There may be some discoloration of his teeth as well, but I'm not 100% sure it the same kind of enamel defect I've read about.  I did not think to ask dentist about celiac at the time but I've since read about connections between oral health and celiac.  --weird blood test results:  I went back and looked at the blood tests that were taken 2 years ago, and it turns out some of the abnormal results can be linked to celiac.  For example:  Low cholesterol (Total Cholesterol was 114), which I read can be linked to malabsorption of fats caused by celiac; High Asbolute Eosinophils (result:  791; normal range is 15-600).  And Lo and behold, according to google, high eosinophils can be associated with celiac.  He also had low MPV results and high triglycerides.  Not sure what those mean.  Some of the abnormal results (like the eosinophils) are also linked to allergies (he has seasonal allergies), and to other auto-immune diseases -- we have a family history of ulcerative colitis so that is also a concern.  We tried a gluten fee diet for about a month several months ago, but I don't think it was ever 100% gluten free -- there were several times we were tripped up by school or after school snacks, and meals when traveling.  Prior to the time we tried the gluten-free diet, my son was not really complaining about his tummy troubles (they have ebbed and flowed --over the last several years, there have been period where sometimes 3-5 times a week he has bouts of nausea and pain, and months long periods with very few complaints).  At the time we tried a gluten-free diet, he was probably in one of the months long periods of feeling pretty good, few complaints.  My recollection is we dropped the gluten-free diet because we didn't see a big difference.   But my son recently told me he felt a little better on the gluten-free diet. I'm pretty sure the next step is to do the endoscopy/colonoscopy.  The GI doctor suggested this last year, given our family history of ulcerative colitis and unexplained symptoms, but we were hesitant to put him through this when, at the time, he was feeling pretty good.  But his symptoms have come roaring back the last several months, and at this point, we just want to find the answer.  We will plan to wait to restart a gluten-free diet until after the endoscopy.  So my questions: --Does anyone have experience with a false negative blood test result, particularly in children? --How bad is the endoscopy procedure?  What should we expect during the prep and after the procedure? --Any insight into what his symptoms mean?  
    • Once upon a time, bananas were thought by many doctors to possess tremendous healing properties. Bananas were used to help diabetics to use weight. Doctors told mothers to feed bananas to their infants starting at 4 weeks. And for a long time, the diet seemed to help people "recover" from celiac disease. Invented by Dr. Sidney Haas in 1924, the high-calorie, banana-based diet excluded starches, but included bananas, milk, cottage cheese, meat and vegetables. View the full article
    • You've opened up a great discussion here, peterfc.  Most illuminating.   I remember when I lived in Oz back in the 1980s there were three frozen custard outlets around Sydney.  I think, from memory, they only sold about three flavours - vanilla (plain), strawberry and chocolate.  But the ice cream was absolutely delicious.   I think ice cream made with a custard is a great way to enhance the nutritional value of the stuff - and possibly reduce the fat content to boot?  Brilliant.
    • You might want to be aware of higher iodine foods as well. For instance, noting if seafood makes the rash worse --- also carrageenan aka sea kelp aka sea weed & all the other names it goes by. Foods from the sea are very high in iodine. Iodine often makes the rash flare.
  • Upcoming Events