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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Sarahsmile416

Two Months In And Food Intolerances Are Growing! Why?

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So, I am two and half months in after being "labelled" NCGI. I was given Aciphex to control the extreme acidity and erosion of my esophagus and told that my other symptoms would start to improve after a couple months. Unfortunately, that has not happened. Instead, itseems my tolerance for foods has lessened. A month after my negative biopsy, I realized, I had become intolerant to dairy - something I had expected to a point given the state of my gut. However, I figured that would be the end of it, hopefully! Because of my dairy intolerance I thought I would try the So Delicious Coconut ice cream - definitely delicious and no ill effects. This past weekend I saw they had a no sugar added variety and because of my diabetes, I figured that might be better than the other. I tried it two nights ago and was okay that night but later on, not so much. As an experiment to confirm it was that food that had given me the problem, I ate it again...same issues. I'm trying to figure out whether it was some added ingredient in the NSA variety or if it is the So Delicious brand in general. I have heard people have had reactions to the carageenan in that, but figured I was okay because I haven't reacted to the yogurt that had it in it or the first So Delicious brand I tried. However, maybe like everything else, I am growing intolerant to that too.

I guess my question is, is it normal to have growing food intolerances two months into the gluten-free diet? If so, why? All I know, is that it becomes very frustrating to have to keep adding foods to my do-not-eat list. :(

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It is possible that you are better able to distinguish food problems now. That seemed to be the case for me. You get one big culprit out of the way and your body isn't overwhelmed with that anymore. Then it is more able to alert you that something is wrong with what you are still eating. I also had cross contamination problems that kept me feeling low and withdrawl. Give yourself time to cope with these. Keep refining your scrutinizing and making it better and better.

Keep at it! You are on the right road. For every food I haven't been able to eat anymore, I find two or three things to substitute with. I have used almond milk, coconut milk, and hazlenut milk for example.

It seems odd to me to have too much acidicity in your stomach. I take a little hydrochloric acid to help with digestion.

Get well***

Diana

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Thanks for the help. :) Hazelnut milk sounds really good - I've never seen that in any of the stores near me though :(

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Hi there

I'm 5 months gluten free (just), I have had SO many allergies and intolerances since I began gluten free. Dairy was the first, soy next, then eggs, citrus fruit (caused terrible asthma and bad ezcema), quinoa (asthma again), and now corn (which is really upsetting me as corn is everywhere)... Recently had a few reactions to corn, just like eating gluten :( the reaction last night from blowing up a balloon or baking my son's birthday cake (don't know which it was?).... So yes, it's very possible to have growing problems with food intolerances and allergies.

I've had some great advice on here though, and some great people on here keep telling me to hang on in there. And that's precisely what I aim to do. It's hard. I'm currently depressed about corn (very recent intolerance)... I keep wondering how much food I will be able to eat... I'm vegetarian too so it's very difficult.

But... On a day to day level, I feel ok! And isn't that wonderful! My energy has picked up since taking iron etc feel much better generally. So something must be right?? I also gave up smoking and sugar when I went gluten-free. My poor poor body! I just keep telling myself that my body has gone a bit haywire and is just rewiring itself (and sometimes getting it wrong for a bit)!

It's hard to be positive, don't I just know it. But it's the only way. Some of the guys on here are an inspiration with their positivity... So I figure they are probably right...

Good luck, have a good rant on here! I have been on here all day complaining!! Makes me feel tons better!

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Grrr. Because out digestive symptoms are drama queens. Just when you think you get it, it all changes on you.

I hear it gets easier, so hang on. When I feel sad, I read the Crohn's boards and thank my lucky stars.

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    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
    • You can supplement if you want to.  IF you are low on iron or vitamin D - then some vitamins might be helpful.   The treatment for Celiac disease is a strict gluten free diet.  Some people need to cut out lactose for a few months, too.  The villi that are damaged in Celiac are the part that helps you digest lactose.  So, until they are healed, it might help to skip milk , cream, etc.     http://www.cureceliacdisease.org/faq/are-there-vitamins-created-specifically-for-nutrient-deficiencies-in-celiac-patients-2/  
    • First - there is no such thing as a "gluten allergy".  Celiac is an autoimmune disease.  Just so you understand. It could be Celiac or a different gluten intolerance.  I am guessing you aren't going to get tested for Celiac disease.  IF it were me, I would be more concerned that maybe there is still some sort of infection or parasite from the places you have been.  I think I would try to get a good work-up for that first.
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