Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can'T Sleep, Nervous, Anxious And Paranoid


kaki-clam

Recommended Posts

kaki-clam Enthusiast

I seem to go in spurts of not sleeping and this last one has been a long one....I am on day 4 with only about 6 hours of sleep. I am starting to feel dizzy. I am having anxiety attacks for no reason and I am feeling paranoid. In the past, prior to the Celiac diagnosis, my doctor had me on antianxiety meds as well as sleeping pills, and although they helped with those problems, they created a HUGE number of other issues and those issues didn't out weigh the benefits of the meds so I stopped taking them (this was about 3 years ago.)

I am scared to go back to the doctor. I talked to my therapist about it and he suggest that I go back on some meds, but I don't want to do that.

I am gluten free and finally starting to feel better in that part of my life and now this has come up. I do suppose that some gluten could be sneaking in my food. I eat very few processed foods..I mainly do all my own cooking and am a huge fan of Bob's RedMill for my pizza crust and bread..all gluten free.

Has anyone ever experienced anything like this? Any thoughts, comments, suggestions....I don't want to believe that I am crazy...but I am starting to think if the shoe fits........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Could it be some other food? I discovered that soy really affected my sleep.

Diva1 Enthusiast

I seem to go in spurts of not sleeping and this last one has been a long one....I am on day 4 with only about 6 hours of sleep. I am starting to feel dizzy. I am having anxiety attacks for no reason and I am feeling paranoid. In the past, prior to the Celiac diagnosis, my doctor had me on antianxiety meds as well as sleeping pills, and although they helped with those problems, they created a HUGE number of other issues and those issues didn't out weigh the benefits of the meds so I stopped taking them (this was about 3 years ago.)

I am scared to go back to the doctor. I talked to my therapist about it and he suggest that I go back on some meds, but I don't want to do that.

I am gluten free and finally starting to feel better in that part of my life and now this has come up. I do suppose that some gluten could be sneaking in my food. I eat very few processed foods..I mainly do all my own cooking and am a huge fan of Bob's RedMill for my pizza crust and bread..all gluten free.

Has anyone ever experienced anything like this? Any thoughts, comments, suggestions....I don't want to believe that I am crazy...but I am starting to think if the shoe fits........

RiceGuy Collaborator

Even after having been gluten-free for awhile, I was experiencing increasing symptoms like the ones you describe. Turns out it was due to nutrient deficiencies. The things which I found the most helpful are B vitamins - especially B12, and certain minerals such as magnesium. All of these are known to be involved in maintaining neurological function. Vitamin B12 is essential for the production of melatonin and serotonin, which greatly influence sleep cycles, energy, mood, etc, etc. Other B vitamins and magnesium are also greatly involved.

So, I'd suggest a good, strong co-enzyme form of B complex, a separate methylcobalamin sublingual tablet form of B12, some magnesium, and a decent multivitamin.

YoloGx Rookie

Even after having been gluten-free for awhile, I was experiencing increasing symptoms like the ones you describe. Turns out it was due to nutrient deficiencies. The things which I found the most helpful are B vitamins - especially B12, and certain minerals such as magnesium. All of these are known to be involved in maintaining neurological function. Vitamin B12 is essential for the production of melatonin and serotonin, which greatly influence sleep cycles, energy, mood, etc, etc. Other B vitamins and magnesium are also greatly involved.

So, I'd suggest a good, strong co-enzyme form of B complex, a separate methylcobalamin sublingual tablet form of B12, some magnesium, and a decent multivitamin.

I ditto that. I have a B-1 deficiency and find the co-enzyme b complex from country life to be a godsend. My feet, calves and arms used to burn and tingle at night as well as flail around plus I was subject to unwarranted anxiety attacks. Further taking the co-enzyme b's stopped my heart from rattling around--whihc it seems was contributing to the anxiety attacks. I take the co-enzyme complex on an empty stomach since it works better and goes directly into the blood stream that way.

Vitamin D and more calcium may also be necessary. I find cod liver oil to be the most effective way to get the vitamin D. The omega 3's in it and vit. A also helps. I have to take e-zorb since other types of calcium don't work very well for me. Lots of people like bone-up. The magnesium citrate is for me essential. Mineral absorption is often very degraded for those of us who have damaged villi. I thus also take liquid trace sea minerals.

Recently I added msm and biosil to increase strength to my otherwise fragile tendons--and it is in addition to everything else finally really helping. I strained my elbows just before the 1st and already now they are fine. In the past it could easily take 6 months or more to heal.

I also find walking almost daily and doing yoga and/or stretching very helpful since my nerves in my hips and legs as well as my back and neck need stretching and use to be normal. Find out if you are out of joint too--that can be a factor. I saw a chiro for years but now have a variety of devices I use in addition to the yoga to put myself back into alignment (sacro wedgy, spine-worx, neck traction device). When able I do strengthening exercises plus use my (malibu) pilates chair.

Further, self hypnosis (auto suggestion) can do wonders, and/or go find a good hypnotist to help out... All those years of interrupted sleep can take their psychological toll and I found I had adapted to it and it has been hard to change. There are many good books out there on the subject. Have myself just started to take a class and already my sleeping routine is improving.

Bea

Diva1 Enthusiast

I know when glutened...my brains knows it before my bowels do...I go to bed then the anxiety and nervous etc...all starts.. so gluten BIG CULPRIT....for me anyway..

hope you feel better

Diva

judyg Newbie

I seem to go in spurts of not sleeping and this last one has been a long one....I am on day 4 with only about 6 hours of sleep. I am starting to feel dizzy. I am having anxiety attacks for no reason and I am feeling paranoid. In the past, prior to the Celiac diagnosis, my doctor had me on antianxiety meds as well as sleeping pills, and although they helped with those problems, they created a HUGE number of other issues and those issues didn't out weigh the benefits of the meds so I stopped taking them (this was about 3 years ago.)

I am scared to go back to the doctor. I talked to my therapist about it and he suggest that I go back on some meds, but I don't want to do that.

I am gluten free and finally starting to feel better in that part of my life and now this has come up. I do suppose that some gluten could be sneaking in my food. I eat very few processed foods..I mainly do all my own cooking and am a huge fan of Bob's RedMill for my pizza crust and bread..all gluten free.

Has anyone ever experienced anything like this? Any thoughts, comments, suggestions....I don't want to believe that I am crazy...but I am starting to think if the shoe fits........


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judyg Newbie

I am definitely experiencing the sleeping issues you have. I can't sleep and when I do I wake up feeling sore and sad. They have changed my meds 5 times in the last 6 months since being diagnosed. I am seeing my Psychiatrist again this Friday and hope they can find a medicine that works. Elavil does help my sleep the best. They put me on Vitamin D, but I did not notice anything. The anxiety and emotional stress is the worst and I have joined celiac.com in hopes of finding some support emotionally in dealing with Celiac Disease and it's affect on my life. Most doctors I have met don't even get it. I am going to Standford to a special Celiac Sprue Clinic in hopes I will finally get the medical support I need to deal with Celiac.

I did go off my Gluten free diet for a few weeks in December and noticed a big difference, I felt awful. I am back on track Gluten free now, but it is such an isolating feeling, since my family does not eat Gluten free and I still have to feed them regular food.

Gemini Experienced

I seem to go in spurts of not sleeping and this last one has been a long one....I am on day 4 with only about 6 hours of sleep. I am starting to feel dizzy. I am having anxiety attacks for no reason and I am feeling paranoid. In the past, prior to the Celiac diagnosis, my doctor had me on antianxiety meds as well as sleeping pills, and although they helped with those problems, they created a HUGE number of other issues and those issues didn't out weigh the benefits of the meds so I stopped taking them (this was about 3 years ago.)

I am scared to go back to the doctor. I talked to my therapist about it and he suggest that I go back on some meds, but I don't want to do that.

I am gluten free and finally starting to feel better in that part of my life and now this has come up. I do suppose that some gluten could be sneaking in my food. I eat very few processed foods..I mainly do all my own cooking and am a huge fan of Bob's RedMill for my pizza crust and bread..all gluten free.

Has anyone ever experienced anything like this? Any thoughts, comments, suggestions....I don't want to believe that I am crazy...but I am starting to think if the shoe fits........

All of your symptoms are indicative of a possible hyper-active thyroid problem so I would advise you to go and get tested for that, with a FULL thyroid panel done. I went seriously hyper last spring because I have healed so well on the gluten-free diet and started to absorb my nutrients again so the dose I had been taking for years was suddenly too much. For a person like myself, who has NEVER taken any meds of that nature and wouldn't anyway, to experience not sleeping and anxiety, was not pleasant. You need to sleep so I would highly suggest getting tested.

Most doctors medicate the hell out of people today and that won't solve your problems, it only masks them. If you know you are eating a totally gluten-free diet, then I wouldn't search too hard in that direction. Get your thyroid tested and post the numbers because doctors are also notorious for under-medicating people

with thyroid problems, resulting in the symptoms you have. Good luck!

YoloGx Rookie

I am definitely experiencing the sleeping issues you have. I can't sleep and when I do I wake up feeling sore and sad. They have changed my meds 5 times in the last 6 months since being diagnosed. I am seeing my Psychiatrist again this Friday and hope they can find a medicine that works. Elavil does help my sleep the best. They put me on Vitamin D, but I did not notice anything. The anxiety and emotional stress is the worst and I have joined celiac.com in hopes of finding some support emotionally in dealing with Celiac Disease and it's affect on my life. Most doctors I have met don't even get it. I am going to Standford to a special Celiac Sprue Clinic in hopes I will finally get the medical support I need to deal with Celiac.

I did go off my Gluten free diet for a few weeks in December and noticed a big difference, I felt awful. I am back on track Gluten free now, but it is such an isolating feeling, since my family does not eat Gluten free and I still have to feed them regular food.

You could easily be getting cross contamination of gluten from preparing your family's food etc. I continued having anxiety attacks and not sleeping as long as I was getting cross contamination just from very small things like shampoos, soaps, lipstick, or making food at my mother's using her glutenous kitchen or feeding her animals their gluteneous food--or getting licked by them or being around gluten flour dust. Somehow inevitably in an environment like that some of the gluten would get inside my mouth or nose eventually.

I also got glutened kissing an old boyfriend who drank distilled whiskey. It was supposed to be safe, but it sure wasn't for me. I had no idea at first what was going on but finally figured it out.

As said before, the vitamins and supplements have also been key for me. First to make sure none of them had gluten! And then to take the things I need due to poor absorption of basic nutrients. My nervous system was degraded after all as well as bones and connective tissue etc. Thus the co-enzyme B's and easily absorbed calcium and mag. citrate plus sea minerals etc. as well as things that help me produce better connective tissue have been essential. The good news is that it really makes a huge difference for the better!

And yes, being off all sugars and anything that can convert to sugar quickly esp. bleached ground up fours of any kind, and being on a low carb diet overall has also been essential for me. It seems with this gluten intolerance I also have developed a tendency to have candida overgrowth which can also contribute to anxiety and not sleeping etc.. I often go off all grains for a while if I start having problems again...and eat some squash instead for my carbs. I also now take as well as olive leaf extract against microbes, fungi, viruses and fibro like symptoms etc. It really seems to help against the candida though of course nothing replaces dietary changes.

I don't mean to overwhelm, but for me I'd rather go this route than take mind altering medications. I tend to be very sensitive to any drugs and feel awful after taking sleep medications.

momxyz Contributor

I am going to be the devil's advocate here and say that it is possible that diet and B12 supplementation may not be enough to provide total relief of your problems, and that some medication may still be required.

This is true for a family member and a friend of mine.

That being said, I do believe that remaining gluten-free and vitamin supplementation are very important for them. My family member is on a very lo dose of medicine for their anxiety issues.. probably much lower than what it would have taken if they had not gone gluten free.

rueyn Apprentice

I seem to go in spurts of not sleeping and this last one has been a long one....I am on day 4 with only about 6 hours of sleep. I am starting to feel dizzy. I am having anxiety attacks for no reason and I am feeling paranoid. In the past, prior to the Celiac diagnosis, my doctor had me on antianxiety meds as well as sleeping pills, and although they helped with those problems, they created a HUGE number of other issues and those issues didn't out weigh the benefits of the meds so I stopped taking them (this was about 3 years ago.)

I am scared to go back to the doctor. I talked to my therapist about it and he suggest that I go back on some meds, but I don't want to do that.

I am gluten free and finally starting to feel better in that part of my life and now this has come up. I do suppose that some gluten could be sneaking in my food. I eat very few processed foods..I mainly do all my own cooking and am a huge fan of Bob's RedMill for my pizza crust and bread..all gluten free.

Has anyone ever experienced anything like this? Any thoughts, comments, suggestions....I don't want to believe that I am crazy...but I am starting to think if the shoe fits........

One more idea for you. After going gluten-free I found out that cheese...yes, CHEESE...gives me insomnia. I have no idea why, and I can't find any literature on it, but if I eat cheese I don't sleep.

Best of luck figuring your stuff out. You're getting lots of good ideas here!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.