Hi.
Sorry, his previous levels were >250 and we do not know how high they were. So yes, "off the chart". By 'detectable' I just meant that at 234 we now actually have a number as a baseline that we can measure future labs against.
All his other liver test functions have been normal. Just the elevated ALP.
Thank you.
Welcome to the forum, @CeliacMom79!
Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"?
Were his other liver test functions (ALT, AST) originally elevated?
Hello!
This is my first time posting, but I have been so helped by the reading other's posts over the last 6 month.
My 16 year old was diagnosed about 6 months ago with Celiac despite He had almost no symptoms aside from occasional loose stools and low weight gain. His tTg was over 250. He also had anemia with abnormalities to his red blood cells, vD deficiency, elevated ALP and a few other nutritional findings. He has had a couple of accidental gluten exposures in the last 6 months but overall has (as far as we know) been completely gluten free. We scrubbed our kitchen down and replaced cookware at the time of diagnosis and our home is completely gluten-free. We eat out only rarely and then at restaurants we know are aware of cross contamination. He is also not eating oats as a precaution until we get his numbers down. We were told by his Peds GI doc to expect normalization of his labs within 2 years.
He just had his 6 month bloodwork and his tTg is now at 234. All of his abnormal nutritional findings, the anemia and his blood counts have normalized. His ALP is still elevated (which we think may be a normal finding as he's been having a major growth spurt and further tests to check his liver function have been normal). He no longer has loose stools, he feels great and has grown 3 inches and put on about 20lbs in the last 6 months. This all seems positive.
I am happy that we now have his tTg at detectable levels, but I am wondering if anyone has had a level that is still this high 6 months post diagnosis?
Thank you so much! I appreciate this community.
Hello,
These are my genetic test results:
Test Result
DQA1: DQA1*02
DQA1: DQA1*03
DQB1: DQB1*0302
DQB1: DQB1*
HLA-DQ2 (DQA1*05/DQB1*02) : Negative
HLA-DQ8 (DQA1*03/DQB1*0302): Positive
Is this saying I inherit DQA1*03 from one of my parents and DQB1*0302 from the other? And is one of these enough to say I have HLA-DQ8 or do I need both?
Thank you.