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Latest Celiac Disease News & Research:
Everything posted by DownWithGluten
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ARCHIVED Lesbian, celiac and coping
DownWithGluten replied to Celialez's topic in Coping with Celiac Disease
I don't date much at all ...like, really, next to 0. But if/when I ever do, I almost want to require that they have celiac or gluten intolerance too because I just don't want to deal with the BS. Haha. Or maybe at least some kind of chronic condition so they can be sympathetic and non judgemental jerks. They should make a celiac dating site (or maybe they...- 4 replies
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ARCHIVED Pretending To Be Fine But Really Falling Apart
DownWithGluten replied to GirlinBlue's topic in Coping with Celiac Disease
Hello, I understand! People have given you good advice about the roommate thing. Yes you have to go kind of leper-mode when it comes to your food, and you will begin to feel like a leper too (this whole thing can be isolating, sorry to say. Ive been doing it for 10 years and sometimes the heartache of that last part you mentioned...knowing how much I'm inconveniencing... -
ARCHIVED Dealing With People Who Don't Understand
DownWithGluten replied to weekendwarrior's topic in Coping with Celiac Disease
It is difficult! And cristiana, I know what you mean about other celiacs or gluten intolerants poking holes in our credibility. They'll claim to need to be gluten free but then will go and eat some cookies occasionally. I mean ...I know one who was gluten intolerant (lots of food intolerances actually) and she'd still eat gluten in front of me sometimes.... -
ARCHIVED Dealing With People Who Don't Understand
DownWithGluten replied to weekendwarrior's topic in Coping with Celiac Disease
I don't have much encouragement, but at least I can say I know how you feel and I would like to go smack all those people at your party. Lol. I actually experience a lot of anger over the way other people react. My intestinal reactions to gluten ingestion are pretty severe (as are most people's on this thread). It was bad enough in college that I felt like... -
ARCHIVED Just So Tired Of It All
DownWithGluten replied to BitterGrad's topic in Coping with Celiac Disease
Hanshotfirst, unfortunately I have no solutions. I just want to offer another voice of support to show that I know what you feel like. In some twisted sense it might be "easier" for me in that the pain/sickness was so bad beforehand that I kinda wanted to just jump out a window, so being on the diet at least eliminates that and gives me a sense of control... -
ARCHIVED TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
DownWithGluten replied to jmssl's topic in Coping with Celiac Disease
Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect. I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member). I still simper... -
ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
DownWithGluten replied to sandsurfgirl's topic in Coping with Celiac Disease
ah I remember you too. I don't post on here as much either. Nice of you to give encouragement to the newbs. It's been 7.5 years for me now. Within that time, I've only been "glutened" three times....and each of those times reminds me exactly what all this extra work and frustration is worth. I air on the strict side, and for me, 7.5 years of having... -
ARCHIVED Imprisonment - Choosing Starvation Over Bread?
DownWithGluten replied to esgal's topic in Introduce Yourself / Share Stuff
Interesting topic! All these people telling her not to go ...clearly don't get it. Anyway...it's interesting because I've actually wondered this before. What if I were to get stuck somewhere where bread was the only option...prison, kidnapped...etc. I guess I'd have to eat it, but I've realized how much more miserable it would make the situation than... -
ARCHIVED French Baguettes
DownWithGluten replied to Gill48's topic in Introduce Yourself / Share Stuff
Bonjour...I don't live in France but I've thought about it, so I've looked this up a little before. I would say...no, you can't eat the baguettes. If you want to be gluten free, for real...you can't eat any gluten...not even a little. Sad, I know, because the baguettes are so good. I was in Paris before I figured out gluten was my problem...and I'd... -
ARCHIVED Help--Recently Diagnosed--Mostly Vegetarian Eater......gluten Free Diet Panic
DownWithGluten replied to sofismom's topic in Coping with Celiac Disease
Oh and, just more on this...as far as restaurants. Probably the best and most consistent one I've found to work is Outback Steakhouse. I know, you don't eat meat! But I have a vegan sister and she can find things there. As well, P.F. Changs is good, they even bring their gluten free dishes out on a different kind of plate and the staff always seem to remember... -
ARCHIVED Help--Recently Diagnosed--Mostly Vegetarian Eater......gluten Free Diet Panic
DownWithGluten replied to sofismom's topic in Coping with Celiac Disease
Hey, hope you're feeling less overwhelmed. I think we can all relate to that initial disappointment and despair. Even the rice cakes...haha, for the first few months all I ate were random rice chips and like chicken broth. But don't despair, it's not as bleak as it seems. I've been gluten free for six years now and can pretty much eat whatever I want... -
ARCHIVED Swiss Miss Dark Chocolate Hot Cocoa
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Foods, Products, Shopping & Medications
Okay! Wanted to close the loop for those who are curious and for future individuals who may Google "swiss miss gluten free" in hope of answers. I called them today and she confirmed that, yes, ALL varieties of Swiss Miss hot cocoa are gluten free. This includes the dark chocolate variety I was asking about, and any of the others. Mint, marshmallow, you... -
ARCHIVED How To Know If It's Really Gluten Free?!
DownWithGluten replied to GFreeMO's topic in Gluten-Free Restaurants
Oh my friend I'm the quintessential "whimpering chick." I've been on the gluten free diet since 2007 and have only gotten glutened twice, both in 2008. The price of this success is being the whimpering chick, the doubter, the annoying person who doesn't eat what people offer, who looks rude or possible hypochondriac or attention-seeker, that high maintenance... -
ARCHIVED Swiss Miss Dark Chocolate Hot Cocoa
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Foods, Products, Shopping & Medications
Okay I called. Since it's new years they didn't have any live people. But the automated robot gave me a bunch of rigamarole that basically said if there is barley, rye or wheat in any ingredient, then they will list that in parentheses next to it. I don't see any of that on mine so I'm thinking it is probably safe. The said other stuff about distilling... -
ARCHIVED Swiss Miss Dark Chocolate Hot Cocoa
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks. I think I will call them just to be sure. There isn't barley or wheat or rye listed but it does have 'natural flavors' kinda stuff. -
ARCHIVED Swiss Miss Dark Chocolate Hot Cocoa
DownWithGluten posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi y'all good people. Been a while since I've posted on here. Okay, Swiss Miss. I've been seeing conflicting things online as to how it's labelled gluten free etc. In particular, I want to know if the DARK CHOCOLATE variety is gluten free. I had milk chocolate the other day, and was fine. Then in my greed for variety and flavor, I went to the store... -
ARCHIVED Bad Experience At Greene Turtle
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Restaurants
Right. I ate bits of the bleu cheese and did not get sick, therefore it was off of my complaint list. It was the fryer thing mostly, and also that's what the COO was concerned about when we talked. I didn't bring up the cheese again lol. And I didn't really make an active issue of it... they sought me out after I posted and wanted to straighten things... -
ARCHIVED Bad Experience At Greene Turtle
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Restaurants
Okay so, just as an update. Via this thread, I was contacted by Greene Turtle, and ended up speaking to the COO. He was very concerned to hear about my bad experience and said it will be addressed. He also said thee Greene Turtle near me is a franchise so it is not as closely managed as their own restaurants. But he said he's been in touch with them and... -
ARCHIVED Bad Experience At Greene Turtle
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Restaurants
Kareng -- I kinda think I should write a letter. Mostly to say "Stop saying you have a gluten-free menu if you're going to pull these stunts! Keep the fryer dedicated or get rid of it." And to the next post...I know, sports bars sound dangerous. But the point it, it DID have a gluten free menu. I've done the only-order-soda thing at several different... -
ARCHIVED Bad Experience At Greene Turtle
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Restaurants
Menic, exactly!! I mean, Outback serves fries, too, which are inherently gluten free. But guess what. It's NOT on the gluten free menu because it's NOT gluten free, because it is cooked in a mixed fryer. What got me is that they were SUPPOSED to have the fryer dedicated, but get lazy and then contaminate it. Yet, nothing is changed on the menu. And... -
I ate at Greene Turtle earlier tonight and wanted to share my experience for those considering eathing there. I went to one in Maryland. Maybe they are not all the same, but, mine was not a good experience. If you want to know the specific location in MD, please PM me. Anyway so, as of now the jury is still out on whether I got 'glutened' or not. ...
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ARCHIVED Cask & Cream Chocolate Temptation Liquer
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Foods, Products, Shopping & Medications
The "facts" were second-hand given to me by someone who called about this...the person on the phone DID say "FDA approved as gluten free" ... and I said ".0001 or something" b/c I wasn't exactly sure what it was nor was the person relaying the info to me. The main gist was that the customer service rep said it's FDA approved level of gluten free. So..... -
ARCHIVED Cask & Cream Chocolate Temptation Liquer
DownWithGluten posted a topic in Gluten-Free Foods, Products, Shopping & Medications
FDA approved gluten free but might have like .0001% of gluten in it, or something. I'm on the fence on whether to drink or not. Anyone tried/used it? -
ARCHIVED People Not Taking You Seriously
DownWithGluten replied to LePandaRouge's topic in Parents, Friends and Loved Ones of Celiacs
It is extremely frustrating. I don't have it nearly as bad as you (OP)...but yet even the occasional callous comment like "Well I'd assume someone on your diet would know what you could or could not eat" (at a fair)...when of course it's like...not unless I see the ingredients of EVERY food, and even THEN there could be contamination, hidden gluten, etc... -
ARCHIVED "perfect Pinch" Mccormick Spices
DownWithGluten replied to DownWithGluten's topic in Gluten-Free Foods, Products, Shopping & Medications
So m'kay. Have an update. First, Janie...thanks a lot. I ate it today! Your response was perfect because you've tried it before and have been fine and answered what I was wondering. Second, regarding McCormick. I called them. Her main points, which some of us already know: - all single spice are gluten free - if there are no ingredients listed...