Sophiekins
Advanced Members-
Posts
127 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by Sophiekins
-
ARCHIVED Breads?
Sophiekins replied to MGoers37's topic in Gluten-Free Foods, Products, Shopping & Medications
Pancakes. Sounds weird, I know, but it's actually rather tasty - they have good texture and flavour right out of the fridge. Lots of people use a mix, but they can be rather sweet. The best set I've had came from a recipe on this site - 1c flour, 1c milk, 1 egg, 2 tbsp sugar, 2 tbsp oil, and 1 tsp baking powder. Mix everything together and cook in a hot... -
ARCHIVED Shortbread Cookies
Sophiekins replied to missy'smom's topic in Gluten-Free Recipes & Cooking Tips
I've not used that particular recipe, but I'm betting that the problem was the halving - shortbreads are tricky recipes to tinker with, and halving rarely works well with them. (I mentioned your problem to my nan, who makes to-die-for shortbreads. . .sadly not gluten-free. . .and she suggested this as well). If you must halve them, you need to slightly-more... -
ARCHIVED Diagnosis Trouble In The Uk
Sophiekins replied to Kyalesyin's topic in Introduce Yourself / Share Stuff
Start with your doctor - make an appointment, take a copy of your private results with you and explain that you have been diagnosed privately as celiac, and ask your doctor what, if anything, you need to do to get the celiac diagnosis into your medical records. Personally, I didn't even have to show my doctor anything (though she has since requested my complete... -
ARCHIVED What Do You Eat For Breakfast?!
Sophiekins replied to LittleZoe's topic in Coping with Celiac Disease
What do I eat for breakfast? Anything in the fridge. As far as I'm concerned, if it's in the fridge, it's food and it's appropriate for breakfast. Because I work insanely unpredictable hours, I need my meals to last - sometimes up to eight hours (though I try to keep it to four or five). This week, for example, I had pork stir fry on Monday, leftover rice... -
ARCHIVED Celiac And Peripheral Neuropathy
Sophiekins replied to rickops's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Rickops, I can't personally answer your question, but I recommend that you visit this site: Open Original Shared Link as there will be people there who can. . .they are the experts when it comes to celiac disease and its neurological side effects. Best of luck, (and please, I know how hard it is to do this, but please keep your daughter on gluten... -
ARCHIVED When To Retest & Horseback Riding
Sophiekins replied to Cam's Mom's topic in Parents, Friends and Loved Ones of Celiacs
The standard is to do blood work at 6 months, 12 months and 24 months following diagnosis - with more frequent tests at your physicians discretion if dietary difficulties are encountered. If your daughter panics at these (I do too. . .) you might consider talking to your doctor about getting a pediatric specialist to draw your daughter's blood (your local... -
ARCHIVED Virtually Asymptomatic Child
Sophiekins replied to Lindsay GFMom's topic in Parents, Friends and Loved Ones of Celiacs
I think I've already posted in one of your other posts, but just in case I'm mistaken: yup. I was asymptomatic (reasonably well adjusted socially, physically active, and a growth chart straight out of a medical textbook). And VERY positive on the blood tests. Enterolab wasn't around yet, so I don't know what my results would have been. I know how hard... -
ARCHIVED How Can I Help Her?
Sophiekins replied to cdfiance's topic in Parents, Friends and Loved Ones of Celiacs
I would venture to suggest that the best thing you can do to comfort your girlfriend during the aftermath of an accidental glutening is just to be there - Baer used to rent one of my favourite movies (I'm never clear-headed enough to follow a new one), keep my juice glass full, and a blanket close to hand for the chills, and then we'd cuddle. Distracting... -
ARCHIVED Celiac Cure.... A Possible Pill To Cure Celiac
Sophiekins replied to PizzaGuy's topic in Gluten-Free Foods, Products, Shopping & Medications
Having read the links people have left here, I'm skeptical about the idea of a pill that could do for celiac disease what lactaid does for lactose intolerance. For one thing, the researchers seem to be concentrating on the intestinal attributes of the disease. . .what about those of us for whom the digestive system is not a problem? If it won't help me, even... -
ARCHIVED I Can't Believe I Just Did That...
Sophiekins replied to Nantzie's topic in Coping with Celiac Disease
So last weekend, my neighbours (really friendly couple) knocked on my door with a steaming bowl. We've just had breakfast, she said, and I made this oatmeal. We've got tons left. . .would you like a bowl? Sure, I said. Would you believe I finished the bowl? After nearly seven years! God, I felt soooooo stupid the rest of the day (as well as sick!) -
ARCHIVED Gluten And The Brain (more Info)
Sophiekins replied to Nancym's topic in Publications & Publicity
I know it's hard, but try cutting corn out as well. . .my neuro issues settled down initially, and then spiked up again when I put corn back into my diet. I've been corn and soy free (as well as gluten-free) for four months now and the neuro symptoms are completely gone. Also make sure that your workspace is gluten-free (clean your desk, telephon and mouse... -
ARCHIVED Talked To Both Our Pediatrician & Naturopath
Sophiekins replied to Lindsay GFMom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lindsay, I'd like to comment, although I was diagnosed long before enterolab came on the scene. I'd like to point out that fecal fat content is only a reliable measure of celiac disease in people who are experiencing substantial intestinal damage, and is thus not necessarily a reliable method of testing in asymptomatic (or very young) celiacs. Under 3... -
Let me say this again: a Naturopathic Doctor is a MEDICAL doctor (someone who went to an accredited medical school. . .like Bastyr) who is trained to use traditional homeopathic remedies in tandem with or as a substitute for pharmaceutical remedies. A naturopath is not a doctor, nor is a chiropractor, except is the same way that my cousin is, who is a "doctor...
-
ARCHIVED Glutino Pancake Mix
Sophiekins replied to FinsUp's topic in Gluten-Free Recipes & Cooking Tips
I can't really say for sure, because I've not used Glutino's pancake mix and I don't know what pancake recipe you're using. My suggestion, however, would be to use the pancake mix as a substitute (1 for 1) for the flour in a waffle recipe. That should work. -
ARCHIVED Study Under Way In Calgary
Sophiekins replied to 2kids4me's topic in Parents, Friends and Loved Ones of Celiacs
What age of "children" are they looking for? I was diagnosed by blood test at ACH in 2000 (but I was a teenager?). Wondering if I should have gotten something? -
If that doesn't work, try washing your hands before you go to the bathroom as well as after - turned out that someone was using my keyboard at work and I was unknowingly transferring gluten to my lady bits. . .yeouch.
-
There is an easy way to find out if it is mineral-related: eat bananas (at least 1 a day) or start taking a gluten-free potassium supplement. If the pain goes away, it was minerals. If the pain doesn't go away after a week or so, go and see your doctor.
-
ARCHIVED Another Symptom Question.
Sophiekins replied to holiday16's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
yep, I get shaking when glutened. Severe glutenings are petit-mal seizure-like (although I remain conscious), low-level glutenings cause intermittent muscle spasms and general weakness/shakiness when walking or sitting. -
Live and learn. . . (at least it was edible!). Definitely add the gelatin next time. If it was too dense, I'd add a little bit more soda (yet again! sometimes you have to nearly double to soda, as it is not as efficient as baking powder), and a little bit more vinegar (it is the vinegar that makes the soda work). If you've got corn starch lying around...
-
ARCHIVED Curious Question About Packing Tape
Sophiekins replied to aaascr's topic in Gluten-Free Foods, Products, Shopping & Medications
Richard and I disagree on this one. Since celiac disease is a SYSTEMIC auto-immune reaction, it doesn't have to actually reach your intestines to cause a reaction. Richard and I also disagree on whether the molecule can penetrate skin or not. . .I'm of the opinion that since it clearly makes me ill following skin only contact (and because it makes me so... -
Larry, It's called Wacky Cake because of how you make it, not what's in it. Instead of carefully creaming butter and sugar and mixing dry ingredients and yaddah yaddah yaddah, you just dump everything in the pan together, stir and shove it in the oven. Done right, the consistency is kind of like fudge brownies. (And takes less than five minutes to mix...
-
ARCHIVED Travelling To England And Scottland
Sophiekins replied to LRgirl's topic in Traveling with Celiac Disease
Relax, Traci. Europe is incredibly celiac-friendly - major supermarkets all over the UK will carry gluten-free foods that you can eat safely (They're usually in the Kosher or Free-From aisles). Tesco and Sainsbury's do the best tasting and least expensive stuff, but Mark's and Spencers do some excellent ready meals and such that are gluten-free, and the health... -
ARCHIVED Symptom: I Can't Talk
Sophiekins replied to wwebby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Having been a language nut all my life (I started talking at around a year and never stopped. . .you'd find me in my crib, still quite happily chattering away to myself hours after I'd been put down for a nap. . .I still find it hard to curb the habit of talking to myself and if I'm not verbalising it, rest assured it's still pattering along in my head),... -
ARCHIVED Disarnno (liquor)
Sophiekins replied to debmidge's topic in Gluten-Free Foods, Products, Shopping & Medications
When I lived in Italy, we drank Disaronno all the time. . .mmmm. . .not just for mixers though. . .makes a lovely shot. . .sweet and smooth (be very careful not to drink too many though . . .the hangover is worse than champagne. . .). When we did mix, we usually drank it in peach juice with a splash of amaretto and a splash of white bubbly. .. don't know... -
ARCHIVED Frequent Fliers Unite!
Sophiekins replied to Sophiekins's topic in Traveling with Celiac Disease
When, in the past, I've spoken to the airlines about this, they've told me to write to their customer service department and ask that it be passed to their catering managers. . .who knows if that happens, but if enough of us do it, maybe we'll become un-ignorable?