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Sophiekins

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Everything posted by Sophiekins

  1. Sophiekins
    I remember the day I made a layer cake and served it to my family. . .then went to take a big bite myself only to have them all scream "NO!". . .they couldn't tell the difference between the gluten-free cake I'd made and the "real" thing they were used to eating! The cake came from Rebecca Riley's Gluten Free Baking - the best baked goods ever. . .I promise...
  2. Sophiekins
    Hi Cyndee, the post was mine, and I apologise if I scared you. . . that said, NCD is serious - as you've no doubt discovered. I'm no medical practitioner, but I have a hard time believing that none of your other problems are related to the celiac disease. Start with a visit to this site Open Original Shared Link where they are really friendly and extremely...
  3. Sophiekins
    The short answer to your question, Maxdad, is yes. When I was nauseous, I used to eat to stave off nausea - and often my food of choice was gluten-containing like cheerios or crackers. It's worth having you both tested (at least a full blood panel) - and if your son is anything like my nephew, it will be easier for him to have the tests done if Dad does it...
  4. Sophiekins
    The first thing is to get you eating again - if you can persuade your body to eat something, then you can start to re-introduce other foods which will help you gain weight. This is my favourite starter when I don't feel like eating (I once went five days without eating anything because I couldn't face eating. . .not recommended. . .the longer you don't eat...
  5. Sophiekins
    Hi Heathen, Please send your otherwise great GI to the link for the summary article in Helena's first post (post #2 in this thread). . .your doc is exactly who we want to educate! The key to knowing whether your funny dermatitis was DH or not is in the appearance of the lesions: if they ooze yellowish fluid when you scratch, they are probably DH. They...
  6. Sophiekins
    Hi Barb, Possibilities for glutening yourself: 1. Turkey - some commercial turkeys are pre-basted and they don't always warn you. Sorry I've not got any brand suggestions, I'm not much of a turkey-eater. 2. Pumpkin pie filling - did you make it yourself or did you use a canned filling? 3. Spices - ground spices often have flour mixed in so that they...
  7. Sophiekins
    Hi Valerie, Your headaches and muscle cramps are probably detox - your body will go through a kind of withdrawal over the first couple of months (if you've been very sick, it could be worse), but if you are getting more than one headache in ten days, you need to make some changes to your diet. Call your GI and ask for a referral to an experienced nutritionist...
  8. Sophiekins
    Hey I'm planning a trip back to Canada to see my parents for Christmas, and have been told that I will need a doctor's note in order to take food through security and onto the plane. . it isn't really an option for me not to take food onto the plane, as I can't eat the "gluten-free" meal the airline might provide, and with all of my sensitivities, my...
  9. Sophiekins
    Hi Julie, I'm supersensitive, but M&S gluten-free means gluten-free. . .you're good to go there. Tesco's own brand stuff is some of the best gluten-free food I've ever tasted - try their plain white bread. . .it is fab. It's easy to get stuff like canned tuna, etc. in the supermarkets - your larger supermarkets are the best bet for finding stuff that...
  10. Sophiekins
    My family never really noticed that I was eating vast quantities of food - as both of my sisters have hyperactive metabolisms and eat positively enormous quantities of food though they are both slim and healthy. . .with the two of them at home we go through eight loaves of bread, two pounds of cheese and at least ten litres of milk in a week - but they did...
  11. Sophiekins
    After years and years and years of explaining again and again all the things I can't eat, saying "thank you for offering but I can't", "You're so sweet, i'm full", "I have allergies", etc. . .I have switched to a dead simple solution that works in all kinds of situations - work, social, formal, buffet, cocktails, birthdays, etc (and I've tested this - I temped...
  12. Sophiekins
    Sorry, Sharon. . .I'm mostly here to sympathise. I'm not on Dapsone either, and I still have scars (and a few scabs. . .the really, really, really bad ones) six years later - the good news is they're no longer livid purple, more a pale pink but visible as I have REALLY fair skin. Don't be too down though, there is hope: I met a naturopathic physican a...
  13. Sophiekins
    Wow again. So many people, so few symptoms! I'm afraid I've only got one new link for you guys - though plenty of stuff will come up if you google neurological celiac disease, it all gets awfully technical awfully fast. . .I'm working my way through it all SLOWLY (I never took biology, so I'm learning the medical stuff as I go) - but the most knowledgeable...
  14. Sophiekins
    I was what my Mom calls a leaky baby - burped, pooped, spat, vomited, etc. at every possible opportunity (I know all babies burp, poop, spit, etc, but I did it to the point where my mother couldn't touch me after she'd gotten dressed for work, or she'd have to change. . .again). Was reasonably sturdy and healthy through childhood, and around age eight began...
  15. Sophiekins
    Hi Richard, I'm not looking for an argument, but I will say that from personal experience, gluten can pass through mucal membranes at the very least - my doc inserted a medicated tablet into a, shall we say, very private place, which caused 72 hours of pure hell. . .I never touched the tablet, and nothing made its way anywhere near my mouth, I can guarantee...
  16. Sophiekins
    Wow. I had no idea people would react like this. . .thank you! This post has got to be short as I had just intended to drop in briefly on my way to do a bunch of other stuff online. . .I was totally not expecting this kind of response! I promise to come back later this week and suggest some useful links to research, although I am by no means an expert...
  17. Sophiekins
    I'm not sure where to put this (so moderators please move it if you think it belongs elsewhere!), but I think this is getting ignored by both the celiac community and our doctors on a regular basis, so I just had to say it. Celiac disease has been in the news quite a lot lately, and while this is a good thing in general, I worry when I hear people (both...
  18. Sophiekins
    Regarding distilled grain vinegars and alcohols: Gluten is a relatively tiny protein, as proteins go. It is small enough to be absorbed through the pores of the skin and through mucal membranes (nose, mouth, lungs, eyes, genitals). Distillation will remove a substantial portion of the gluten protein, however it is CANNOT and DOES NOT remove all of the...
  19. Sophiekins
    They could just be callouses from your shoes - the way to check is to run your fingernail firmly (but not hard) across the bump. If it hurts and squishes, they are blisters. If it hurts and is hard, they are probably warts. If it doesn't hurt or squish, they are likely just callouses. If they are callouses, they are perfectly harmless, but if they bother...
  20. Sophiekins
    My various doctors (because I live part of the year in Europe and part of the year in Canada, my medical needs are handled by two teams - four docs in Canada and four docs in Europe) are divided (but not by continent) on the question of whether gluten can be absorbed through skin and mucal membranes. . .I think the conclusion they came to was that contact...
  21. Sophiekins
    Vinyl gloves have oat powder? Noooooooooo! Somebody, please, help me! I am SERIOUSLY celiac. . ..and allergic to latex! Anyone have any suggestions?
  22. Sophiekins
    Hey Ajay, Sadly, corn, soy, millet, buckwheat, beans, chickpeas, maize, oats, amaranth and quinoa are off limits for me. . .waaaaah. I've pretty much given up on trying new flours because they cost soooo much and then just make me sick (though one of my new coworkers has given me a recipe for chesnut flour cake which I'm planning to try. . .just as soon...
  23. Sophiekins
    Yes, there is. Look for Kingsmill gluten free bakery products - I know they are available in Canada, so you must be able to get them to Alaska SOMEHOW (grin). . .they do both a white and a brown rice pizza crust, ready made, and it is not half bad.
  24. Sophiekins
    Hi Julie - have you talked to your doc about your hormones? I get migraines from gluten - but I also get virtually identical migraines when my hormones do the wacky once a month (and not necessarily at that time). . .my doc put me on hormone supplements which has pretty much eliminated the migraines (although it took a while to work out the right dose), though...
  25. Sophiekins
    Personal care products that can contain gluten: mascara, foundation, powder, eye shadow, eyebrow tint, lipstick, lip gloss, toothpaste, mouthwash, flavoured floss, shampoo, bar soap, bodywash, conditioner, hairspray, hair wax, hair gel, hair serum, moisturizer, exfoliator, shaving gel, hair removal creams, lubricant (trust me, you do NOT want to find this...
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