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Sophiekins

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Everything posted by Sophiekins

  1. Sophiekins
    I explain to family and close friends that foods I haven't seen made can make me sick enough to spend Christmas in hospital. . .and while I appreciate the sentiment, I hope they understand that I'd rather spend Christmas somewhere other than in Emergency having my stomach pumped. I then finish by explaining that if they would really like to "cook" for me...
  2. Sophiekins
    If your son's IgA is over 100, this means that his immune system is working far too hard, which would imply that he has an auto-immune condition, one of the possibilities for this is celiac disease. False negatives on the test are about 3 in 100, so it is entirely possible that your son's first test was negative and the second positive; he may also have been...
  3. Sophiekins
    Welcome! Yes, gaining weight will probably help you feel better, but you will need to make sure it is healthy weight. It would be easier for us to make some helpful suggestions (for feeling better and gaining weight) if we knew a bit more about you - how were you diagnosed? How sick did you get? What has your diet been like since? Is your household gluten...
  4. Sophiekins
    Yellow poops can be a bad sign, but they don't have to be - human poop is a variety of colours, and everyone's poop is individual. Neon yellow poops are more troubling than yellowy brown ones, but I still wouldn't worry unless his poops are consistently neon for a few days. My general rule of thumb is that as long as I am feeling healthy and I'm having less...
  5. Sophiekins
    Relax. Ryan's poop sounds perfectly normal. Poop is what gets left over after your body has taken everything it can out of your food. His poop should be relatively consistent based on his diet (ie, meatloaf, carrots, potatoes and applesauce should produce similar kinds of poop every time he eats them), but it probably won't ever be "normal" consistency...
  6. Sophiekins
    Meghan, Please, please, please do NOT go gluten-free until you see your GI - if you want a medical diagnosis. When you see the GI, he or she will take a medical history focussing on your digestive function and use this in conjunction with your bloodwork and his or her physical exam to determine whether you are a candidate for biopsy. If you are a candidate...
  7. Sophiekins
    If the whole family goes gluten-free, you need to make sure that you are getting nutritionally balanced meals - up your veggie intake to manage the loss of fiber and vitamins (from enriched flours), gently increase your protein intake (low-fat meats, cheese and yogurts, as well as nuts, if possible) because much of the protein in an average non-gluten-free...
  8. Sophiekins
    Five days glutened after being gluten-free for four weeks will not be enough to provide positive bloodwork. I would say, from what you've described, that gluten-free is healthy for you, regardless of whether you are celiac or not. If you want to know "for certain", your next step is to stay gluten-free for three or four months, and then do a gluten challenge...
  9. Sophiekins
    Conventional standard of care (at least in Canada and the UK) dictates IgA and IgG follow-up testing every 6 months for the first two years to quantify adherence to the gluten-free diet, and further testing after this time in case of unexplained symptoms. At the same time as the celiac panel, standard panels checking blood glucose, iron, thyroid function...
  10. Sophiekins
    Iron is one of those things that is a question of individual needs. If you are a menstruating woman, your Dr. will probably be most comfortable with iron levels in the 25-30 range, but 21 does not make you iron deficient. With your iron numbers, going on an iron supplement is up to you - if you are fatigued, you might try it, or you might try one anyway for...
  11. Sophiekins
    I happen to disagree with Richard. . .I've had gluten reactions from glues. . .but we've agreed to disagree on this one, so I simply state the fact, nothing more. Have you replaced your wooden and plastic cooking utensils? What about your medications and vitamin supplements? I can't share a toaster with non-gluten-free people. . .splurge on a little one...
  12. Sophiekins
    Weeelll. . .generally they do, but ankles and wrists are awkward things to break, and because I broke a teeny bone that no-one but dancers break, and the doctor who checked me out (who didn't normally treat dancers. . .we were on tour) didn't find the broken bone on x-ray (you need to do a radioactive bone scan to see the break) and no-one actually did the...
  13. Sophiekins
    Ironically, my back is fine! (I always had a loose back and had to do lots of yoga to keep it in shape even when I was dancing full time. . .the muscles you have trouble with tend to be the ones you had to coax into performing, not the ones with natural dance talent and for most people, that's their backs). But I agree. . .a knowledgeable physiotherapist...
  14. Sophiekins
    Hi Lauren, welcome to the board. Spelt is primitive wheat - big on the no-no. 'Nuff said. As for the not hungry: you won't get hungry. You may never actually get hungry again (six years later, I'm still waiting). You don't mention how you were diagnosed, but your body has been starving slowly since you started to get sick (and maybe before). This means...
  15. Sophiekins
    Glad you're feeling better Valerie! Nope, I'm not a doctor. I'm not even certified to do first aid (I know, I know, bad citizen me. . .I'll get there eventually, I promise). What I am is an ex-dancer, meaning I spent ten years paying attention to absolutely everything that passed my lips (when you spend six hours a day in a dance studio, you have to make...
  16. Sophiekins
    I don't have a copy of the results with me at the moment (I'm in London, they're in Canada) but the way it was explained to me was that the normal person has an IgG ration of 1:2.5 (ie, one IgG for every two and a half white blood cells), a ratio of 35:1 (35 IgG for every white blood cell) is enough to diagnose celiac, and mine was 2500:1. Although I seemed...
  17. Sophiekins
    You mean that other people get this?? Hooray! I'm not a freak! (Or at least not a lonely freak. . . ) I have good days and bad days (the bad days are WAY worse when I've been glutened). . .but I always thought it was just me that has a brain that just won't shut up. Meditation helps - I try to make time each day to meditate for at least...
  18. Sophiekins
    I suspect they've already gotten your celiac panel. . .and that they just can't believe the results. Which is what happened to me. . .good luck!
  19. Sophiekins
    First off - yes, there are lots of people who gain weight while suffering from celiac disease. We may be medical puzzles, (I almost said freaks. . .) but there are lots of us. Second - the symptoms you are describing sound a lot like what happens to me when I get glutened. . .gas so painful you're almost (if not already) in tears, but nothing you can do...
  20. Sophiekins

    ARCHIVED Symptoms

    Sophiekins replied to draeko's topic in Coping with Celiac Disease

    Hey Nora, Try cutting corn out of your diet - it causes me to feel constantly dizzy with episodes of vertigo so severe that I have to stay completely motionless until they stop of their own accord. It also causes breathing problems (let me guess. . .your lung capacity is way down, but it isn't pneumonia, and your doc would be thinking you had asthma, except...
  21. Sophiekins
    I THINK the one I used was Heinz (the plain rice one). . .but I can't be absolutely positive as it has been a while since I had a wee one to feed (I nanny. . .I don't have my own. . .yet)
  22. Sophiekins
    It is often the case with neurological celiac disease that the gut is not involved. Print this article: Open Original Shared Link and take it with you to your pediatrician, neurologist and GI. This is written by THE expert on NCD (he discovered gluten ataxia). If you need more help, try posting something on this site: Open Original Shared Link I am pretty...
  23. Sophiekins
    I tend not to go into it unless people ask, or its an issue for my health. For example, my boss and my deskmates at work know which of their bad habits make me sick, but the guys across the way don't know. As far as a light-hearted way to deal goes, because I have soooo many other grains I have to avoid (corn, soy, millet, teff, quinoa, amaranth. . .the...
  24. Sophiekins
    Rebecca Reilly's "Gluten Free Baking" - she's a french-trained pastry chef. . .and mom to a celiac. Her recipes are flawless and so good that my family regularly tries to stop me from eating them. . .
  25. Sophiekins
    I always suggest that people start their diet with just plain rice - with some steamed or boiled veggies and a little cheese or meat if they're feeling up to it. Twelve is plenty old enough to do minute rice or nuke some fresh or frozen veggies - you can even try using Uncle Ben's microwaveable rice packets if the expense is not an issue. Baked potatoes...
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