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sfm

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Everything posted by sfm

  1. sfm

    sfm

    Happy birthday and may God bless you today!

  2. sfm
    On my last birthday, two of my coworkers in my office split the cost of two bags of gluten free cake mix, and one of them baked a chocolate/vanilla cake with homemade chocolate frosting. The office manager suggested having something "regular", but the rest of my coworkers insisted that they would eat the gluten free cake. And they did. I really got kind...
  3. sfm
    My understanding is that goat milk does have casein, which is slightly different from cow's milk casein. It will vary from person to person how strongly they react, but it is not really recommended for someone with a casein intolerance.
  4. sfm
    April, I have been through the same. I always downplay the seriousness of my "issues." Eventually I arrived at calling it a severe food allergy, as I feel that restaurants tend to take that more seriously. But I agree - those times when I do expose myself to cross-contamination, it is usually my own fault, as I am not clear enough about what...
  5. sfm
    I have actually heard that you need to be careful with white rice; there can be flour added to prevent sticking . I know someone who can't tolerate brown rice - it gives her brain fog worse than gluten. She has less trouble with white rice, perhaps because of the processing? Sheryll
  6. sfm
    I also could not eat raw vegetables for awhile, and almost no fruits at all. Brown rice was a godsend for me when my stomach wasn't doing well - and still is when I get accidentally 'glutened'. Some people do have to give up dairy at first, but can eventually have it back when their digestive systems have healed. It turns out I can't have casein (a...
  7. sfm
    I agree with you. When someone says, I could never do it - it's more of a compliment, I think. My response is usually, If I hadn't been so sick, I'm not sure I could have done it, either. I've also had the comment about, Wow, I wish I had celiac, then I could look as good as you. I guess I just chalk it up to lack of understanding, but I also respond...
  8. sfm
    It may or may not be the cashews - but I wanted to tell you that I discovered I had a tree nut allergy due to digestive symptoms first. Eventually it became severe enough that I developed hives after eating walnuts, and was very dizzy and sick. The allergist strongly recommended not eating any tree nuts, although walnuts and macadamias seem to have been...
  9. sfm
    I agree about the Atkins not being a well balanced diet in the long term. But I think that most people think it's okay to eat like that long term, and when you read the book, you realize that you aren't supposed to. The initial phase is very low carb; eventually you work carbs back in. The other thing that a lot of other people don't realize is that...
  10. sfm
    I have been hypoglycemic for as long as I can remember - and it has not gotten better since gluten free. What I find helps is not having carbs for breakfast - I have only protein, and save my carbs for later in the day. That way I eliminate the spike which leads to the drop. As far as work, I used to bring nuts (but tested positive for that allergy,...
  11. sfm
    Oh god no, you are not alone!!! You're new to being gluten free - it does improve with time, but right now your insides are still so screwed up, it's going to take awhile. I still carry a couple of immodium in my purse, just in case - but I used to carry a whole box! Never mind the bloating and gas issues. I wish I had more suggestions; I just can...
  12. sfm
    I just want to insert my "sci-fi-ish" story, FYI - I know how far fetched this is: My friend and I took our children for pizza - obviously, I didn't have any. However, I did help serve the pizza to the kids. Since we were out, and I wasn't eating right away, I neglected to wash my hands. We went home a short while later, at which time I (starving) took...
  13. sfm
    All I can say is I have gotten better at it with time. It might seem like a pain, but I wash my hands, the counter, handles, etc. frequently, to avoid the very things you mention. Never touch vegetables or fruit without thoroughly rinsing them. My children (not gluten free) wash their hands, clear plates, etc., so I can avoid touching gluten when possible...
  14. sfm
    Unfortunately, even specialists misdiagnose celiac frequently. There's still so little knowledge in the medical community. I also self-diagnosed myself through dietary response, but followed up with Enterolab, which confirmed my thoughts. However, having said that, I recently did have a full workup by a GI, just to rule any other conditions out. Just...
  15. sfm
  16. sfm
    I just wanted to mention that Hormel is now making additive-free lunch meats - and bacon, too!. I don't have a problem myself with nitrites, but my 8 year old son gets migraines when he eats lunchmeat with them, so we have switched. I like Applegate Farms brand, but it isn't available in the local grocery store - the Hormel is. Sheryll
  17. sfm
    Sara, No, I went gluten free as an experiment, after my daughter was tested, and the symptoms the pediatrician described fit me to a tee. I had no tests until I had been gluten free for four months. My blood tests were negative, but Enterolab still showed elevated levels for both the antigliadin IgA and the transglutaminase IgA. My former GI never...
  18. sfm
    So I've been gluten free since November 2006, but since neither my house nor my office is not gluten free, I have had occasional 'second hand glutenings'. Recently I switched GIs, and he wanted to have an upper endoscopy and a colonoscopy done, to rule out any other conditions, and biopsy the small intestine (despite the fact that I've been gluten free...
  19. sfm
    I know with me, I can eat small amounts of casein occasionally. I probably shouldn't, but the severity of the symptoms is nothing like with gluten. If I have it more than once in awhile, then I start to feel sicker. When I do have it once in awhile, it is pretty much just a gassy feeling, without pain or diarrhea. But some folks might be different....
  20. sfm
    So does that mean that elevated tTg levels mean someone is celiac?
  21. sfm

    ARCHIVED A Lady Thing

    sfm replied to L.A.'s topic in Coping with Celiac Disease

    I had something similar happen to me after the birth of my son. It wasn't related to being gluten free, but the symptoms sound exactly the same. It lasted over a year, then gradually calmed down. I was having irregular periods - sometimes as close as 2 weeks apart - which lasted close to two weeks sometimes. Very painful cramping, very heavy bleeding...
  22. sfm
    Okay, so if a positive biopsy is considered a definitive diagnosis, but people do have positive biopsy without the genetics, how can that statement be true?
  23. sfm
    That was my understanding, too - that particularly the Ttg antibodies were highly indicative of intestinal damage.
  24. sfm
    That's the point, I think. Many times the people who call themselves gluten intolerant may not have gotten a definitive diagnosis for various reasons. And since the blood test results can be subjective, and the biopsy (or in your case - and mine) the endoscopy (checking for other things) can be inconclusive or even done incorrectly, how do you really know...
  25. sfm
    I hope that the medical community changes. Frequently, celiac is the last thing doctors look for, instead of being something a doctor rules out. When I first went to the doctor with my symptoms, he performed an upper endoscopy (but no small bowel biopsy) and diagnosed me with reflux because vomiting was one of the symptoms. ONE of them. I finally was...
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