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sfm

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Everything posted by sfm

  1. sfm
    Unfortunately, most chinese food is made with soy sauce - which contains wheat.
  2. sfm

    ARCHIVED The Bro...

    sfm replied to JerryK's topic in Coping with Celiac Disease

    I love this whole thread!! I'm also an identical twin. I tested with Enterolab for active gluten sensitivity, and double positive for one of the gluten intolerant genes. Interestingly enough, my darling sister was diagnosed with IBS more than ten years ago, and rheumatoid arthritis two years ago. So I shared all of my interesting news with her, and...
  3. sfm

    ARCHIVED Testing Kids

    sfm replied to Jo.R's topic in Coping with Celiac Disease

    I actually had both children tested after I tested positive for gluten intolerance - and genetically double positive - but negative for the celiac genes. As it turns out, neither had elevated antibody levels - however, both had my gluten intolerant gene, as well as my son having one of the genes for celiac. I guess the tests can give you some insight...
  4. sfm
    Wow.... that explains a lot - and I was trying to figure our what was bugging me. I have a casein sensitivity, and have found that soy can cause migraines (which I am prone to). But when I tried rice milk, it didn't seem to sit well with me. So now I know! I would think they would be required to list the barley as part of the ingredient list, despite...
  5. sfm
    To all - Thank you so much for all of your insights. I have been trying to go dairy / casein free for about a week. I tried soy milk in my tea; unfortunately, I get migraines, and that is a very common trigger. I've had a mild headache every day and taken imitrex twice this week, so I guess it's one of mine, too... However, I also can get hazelnut...
  6. sfm
    I had blood work done a few months ago, after being gluten free for about 2 1/2 months. My doctor did not instruct me to go back to eating gluten prior to testing, and no big surprise, my results were "within normal range." To his credit, my dr said this didn't mean I wasn't sensitive to gluten, just not celiac. I knew that the diet worked for me, so...
  7. sfm

    ARCHIVED Brain Fog

    sfm posted a topic in Coping with Celiac Disease

    I have heard people mention brain fog, but I never thought I had a problem with that. But a week and a half ago, I had some guacamole which must have been cross-contaminated, because I had a full blown stomach reaction. And that night, I was playing Life with my little ones, and at the end when we needed to count the cards and money to see who won...
  8. sfm

    ARCHIVED Raw Food Diet

    sfm replied to Lauren M's topic in Coping with Celiac Disease

    LOL! I agree 100%! Sheryll
  9. sfm

    ARCHIVED Help! I'm New

    sfm replied to zjune's topic in Coping with Celiac Disease

    Boy, can I relate! My boyfriend and I took our collective children (we're both divorced) to Friendlys this weekend, and I realized that there wasn't really anything on their menu that I could be sure was safe! However, I did check the labels on their ice cream (this was a little spy mission - I went to the freezer and checked the ice cream labels!). And...
  10. sfm
    I have been to Outback twice since finding out they had a gluten free menu. The servers are obviously given some education in gluten intolerance, because they were very careful, and one server asked if I wanted him to find out if they could make my boyfriend's cheese skins gluten free! They couldn't (sigh) - but I felt very well taken care of - it's...
  11. sfm
    I have been having similar episodes, gluten free since before Thanksgiving. Like you say - I know when I have gluten - the cramping, bloating, gas, pain. But even when not, I sometimes have frequent D, find myself questioning my diet even though I know how careful I am being! I wonder if it is just that my stomach is not fully healed yet? So other things...
  12. sfm
    Just a note - my face broke out when I first went gluten free - but since has gotten better, and is much less prone to breakouts. I've been gluten free since just before Thanksgiving. I hope that helps.
  13. sfm
    I was curious about this cereal for my kids - but it says it is made with oat - I thought oat flour was something to avoid?
  14. sfm
    My 10 year old daughter was tested at 8 for both the antibodies and the genes for celiac. She was negative for the genes, but positive for the antibodies. Her pediatrician, who seems to be very knowledgeable (her son is celiac), suggested that since my daughter has had stomach problems since infancy, it is possible that I passed on gluten in my breast milk...
  15. sfm
    I guess only you can decide for sure if it's worth it. I will say that feeling so much better feels like a miracle to me. The occasional "accidental glutening" is awful - but I think that part of the reason for that is that once you begin to feel better, you don't want to feel that sickness again. I have noticed that some people say that the reason the...
  16. sfm
    I agree that it would be nice if things were separated out a little more. At the Whole Foods near me, I found it pretty easy to find stuff - the frozen foods were in their own little section, but you're right, the cereal and flours were lumped together with wheat stuff. Trader Joe's doesn't seem to separate their stuff AT ALL, and I find it annoying and...
  17. sfm
    I have been eliminating gluten from my diet since just before Thanksgiving, and despite a few accidental glutenings, my stomach has been way better - with the following improvements: Less gas and bloating Less "D" - although still occasionally Less noise in my digestion Less cramping and abdominal pain, unless I do ingest something Migraines...
  18. sfm
    I write "gluten-free" on my butter, my peanut butter, my cream cheese, my mayonnaise, etc. I bought squeezable jelly so that bread crumbs don't get in the jelly. My little ones (7 and 10) know they have to be careful not to use any knives which have touched bread in these products. I am buying my own toaster this weekend. I get excited when I find gluten...
  19. sfm
    "Imagine" (I got it at Whole Foods) makes Cream of Portobello Mushroom soup - as well as a bunch of other varieties. I'm eating it today for lunch, and it's yummy!
  20. sfm
    I am having bloodwork done to test me for gluten intolerance, malabsorption of nutrients, celiac, etc. Lucky for me, my doctor was open-minded and listened to me when I said I thought it might be an issue. My concern is that I have been trying to maintain a gluten-free diet for almost 2 months now. I have been feeling tons better, although occasionally...
  21. sfm
    I was at a fairly healthy weight when I began eliminating gluten from my diet, although I have always struggled with a few lbs. I found that I lost some weight and have kept it off easily - I think just because I can't just reach for whatever is available - I have to plan what I eat, read lables, etc. Although I do agree that there is a lot of gluten...
  22. sfm
    I went to a neurologist several years ago for frequent migraines. He advised me to begin taking magnesium supplements in a higher than normal dosage, particularly around that time of the month. The problem with taking either over the counter drugs or things like fioricet or tylenol with codeines is that repeated use can actually cause headaches to become...
  23. sfm
    I know there is a list of safe vinegars, but I wanted to double-check as I've only been gluten free for a few months, so I'm still learning. Someone suggested apple cider vinegar for acid reflux, and I bought Braggs, which is high quality and contains only apple cider vinegar (some have a mix of apple cider and grain vinegars, which I hear can be wheat...
  24. sfm
    Maltitol, in particular, affects a lot of people that way - the label says laxative effect, but most people I know (myself included) have terrible bloating and gas. I discovered this even before I realized I had a gluten problem. So now whenever something is sugar free I check. Other sugar alcohols can have a similar effect, but from what I've heard, that...
  25. sfm

    ARCHIVED Can't Get Well!

    sfm replied to key's topic in Coping with Celiac Disease

    I am so relieved to hear that some of the things I've read about taking care of celiac aren't a perfect fix. I have not been tested yet, but my daughter has tested positive, and from what I understood of it, I decided to try cutting gluten out of my diet. The results were drastic; my stomach feels like a different stomach! But I still have days when...
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