
hathor
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by hathor
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ARCHIVED Big Thankyou And A Couple More Questions!
hathor replied to ShayBraMom's topic in Parents, Friends and Loved Ones of Celiacs
This list tells you at least some of the teas that are gluten-free or not. Open Original Shared Link Rather than remembering, I just go with the Republic of Tea. They are a certified gluten-free facility, or some such, and so I know that everything they have is safe. -
ARCHIVED Intolerance To Oils?
hathor replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What are your symptoms? Do you react to a tiny amount or significant quantities? Is it all oils or just particular ones? Do you react to all fats, or just oils? I will feel ill if I have anything with a substantial quantity of oil in it. Tiny amounts don't bother me. The exception is olive oil. But I only really have it much if I go out to eat and... -
ARCHIVED I Am Going To Try Nixing The Soy...
hathor replied to FootballFanatic's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ick, I'm just imagining the storage facility. It isn't as if you send in a tiny bit ... -
ARCHIVED Hemp Milk?
hathor replied to holdthegluten's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't noticed a problem. You might try some other product with hemp and see if you react. -
ARCHIVED Dairy
hathor replied to Joni63's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is possible to go both dairy and soy free, if you have to. I'm commenting because you mentioned teas bothering you. Which ones? Some have gluten. I discovered to my distress that two that I was using are in that category. Now I use products from the Republic of Tea which is a certified gluten-free establishment and I know I won't have problems... -
ARCHIVED Natural Feast -- Pies & Muffins
hathor posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Check out www.naturalfeast.com. Their description: Our all-natural desserts are always free of the most common allergens, as well as artificial additives, preservatives and coloring, and contain: No GMO ingredients No corn No wheat or gluten No refined sugars No corn No dairy No hydrogenated oils No eggs No soy No cholesterol No trans... -
I did finally get a response from PFChang's. She told me that they have different drinks in different locations and so can't have a gluten-free list. As far as the soy was concerned, she said they couldn't list everything on their web site that may be in particular dishes and that the spinach contains soy oil, not soy sauce. Not what the waiter said the...
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ARCHIVED Newbie With Lots Of Questions
hathor replied to silk's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi and welcome! I'm sure you will here from people who can tell you about Type 1 diabetes, etc. I'll just hit on the subjects where I have something to say. If you want to have traditional testing for celiac, you have to be eating gluten. If you don't want to go back on gluten (true for many of us who tried gluten-free as an experiment and didn't... -
ARCHIVED Scotch Whisky
hathor replied to terri's topic in Gluten-Free Foods, Products, Shopping & Medications
In response to my question, I was sent to their blog, presumably to ask the question a third time. This time I did get an answer: "I wish there was a simple answer to your question. As you know, caramel colouring (E150) is occasionally used by single malt producers to maintain colour consistency from batch to batch. Unless you live in Germany, where the... -
ARCHIVED How Do You Know If You're Intolerant?
hathor replied to devo's topic in Food Intolerance & Leaky Gut
I knew for some time I was intolerant to dairy and egg. I would get sick whenever I had any and my reactions seemed to be getting worse. Even largely avoiding them for years (and not bothering about bits in restaurant meals or special occasion desserts) I still had elevated antibodies to both when I tested with Enterolab. Enterolab's finding of a soy... -
ARCHIVED Seriously, How Long Is This Going To Take?
hathor replied to LoriG's topic in Coping with Celiac Disease
I just remembered that some believe soy can have harmful effects on the thyroid. I don't know that there is a consensus on this and I've never researched the possible link. It may be something for you to look at, as well as other foods that have been linked by some to poor thyroid functioning (like cabbage, Brussels sprouts, and millet, in addition to soy... -
ARCHIVED Is There Casein In Lactose?
hathor replied to tarabara's topic in Coping with Celiac Disease
I would check with the manufacturer to be sure. I have heard of a low level of casein in lactose (and vice versa). It isn't as if the manufacturers are under any obligation to mention it. You can probably find a supplement without lactose, though, and avoid the problem. -
ARCHIVED Seriously, How Long Is This Going To Take?
hathor replied to LoriG's topic in Coping with Celiac Disease
It can take longer than three months (or six weeks depending on how you look at it). Sometimes I think it takes longer for those of us on the C side to heal than those on the D side. But that may well be selective perception and memory on my part. I do remember asking and being told by a number of C folks that they started seeing improvement around three... -
ARCHIVED Frustrated With Outcome Of Tests
hathor replied to FreeportMom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you need a positive test result to confirm your experience on (and off) a gluten-free diet, you can go with Enterolab, as ravenwoodglass mentioned. Their gluten intolerance (not celiac) testing is supposed to be valid up to a year after going off gluten. At the same time, you could get tested for some of the other things gluten-free folks find they have... -
ARCHIVED Is There Gluten In Latex Paint? Please Help!
hathor replied to GFinMN's topic in Related Issues & Disorders
I've never heard of gluten in paint. There is no gluten in drywall itself (it is gypsum and paper). However, drying agents for the joint compound can contain: "plaster of Paris, calcium carbonate, gypsum, crystallized silicon dioxide (quartz), Portland cement, perlite, lime, hydroxy ethyl ether of cellulose, polyvinyl alcohol, starch, wood fiber, potassium... -
ARCHIVED Wild Vines Wine?
hathor replied to holiday16's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never heard of a wine containing gluten, either. I think it is only a concern if you are looking at a wine cooler or some other product where something is added to the wine. I saw a reference once to an experiment (in another country, if I'm remembering right) with using gluten as a fining agent for wine (in which case small amount could be in the... -
ARCHIVED I'm Frustrated With Self-diagnosis
hathor replied to Trillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've never seen any evidence that Enterolab produces a significant number of false positives. People who go to them, of course, generally have some symptoms, so a higher positive rate than would be true of the general population would be expected. Also, people who test negative aren't likely to participate much on this forum, are they I have heard of... -
ARCHIVED Scotch Whisky
hathor replied to terri's topic in Gluten-Free Foods, Products, Shopping & Medications
I received a response from Glenfiddich. I specifically asked about the presence of coloring and made it clear that I had problems with things other than gluten. I didn't want to get into an argument about the definition of gluten-free. The response: "Please be assured our products are gluten free." I just responded, telling them they didn't answer... -
ARCHIVED I'm Frustrated With Self-diagnosis
hathor replied to Trillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you want a test to confirm your problem with gluten, you can always go with Enterolab. It is supposed to be more sensitive than blood tests and will work up to a year after going gluten-free. You can also do the testing each year to see if your malabsorption and antibody levels improve. -
ARCHIVED Confused Between Celiac And Gluten Intolerance
hathor replied to blondebombshell's topic in Coping with Celiac Disease
You aren't going to find agreement on what gluten intolerance is or isn't. Sometimes gluten intolerance is what someone has before the blood tests will show the antibodies and the villi are observably injured. There is a deleterious, autoimmune process going on ... it just hasn't turned into "celiac" yet. There are also cases where it is believed that... -
ARCHIVED Nutty Flax Cereal
hathor posted a topic in Gluten-Free Foods, Products, Shopping & Medications
This thread got me to thinking about Nutty Flax, my favorite (and allegedly) gluten-free cereal. Open Original Shared Link Folks reported reactions. I was initially skeptical as you can see, and now I'm not quite sure. I noticed a gluten-sort of brain fog that didn't seem like it could be attributable to anything else, among other things. So I'm experimenting... -
ARCHIVED Could I Be Casein And/or Soy Intolerant Too ?
hathor replied to myserenityprayer's topic in Food Intolerance & Leaky Gut
You know, guys, after I popped my mouth off about Nutty Flax not being a problem, I was feeling bad and wondering, why don't I feel as good as I was for a while there? I realized that I went from never having this cereal, to having it occasionally, to having it every couple days. I looked at my diet/symptom journal. I also was having a brain fog experience... -
ARCHIVED Gluten Sensitivity To Full Blown Celiac !?!
hathor replied to NorthernElf's topic in Coping with Celiac Disease
It seems to be fairly common that one's reaction to a substance is stronger when it has been generally eliminated from one's diet. I know this is what has happened to me with gluten, casein, egg, and soy. (Don't get me started on yeast. I can't see a reaction whether I eat it or not.) -
A word of warning to those of you with other intolerances -- do NOT rely on what the web site tells you about ingredients. I picked something out that was on the gluten-free menu and did not have soy in the listed ingredients on the web site. When I ordered I told the waiter I couldn't eat soy either and to confirm that the dish was made without it. He...
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ARCHIVED What Now!
hathor replied to peaches102984's topic in Parents, Friends and Loved Ones of Celiacs
Did he have an endoscopy or a colonoscopy? Your reference to their finding a normal colon -- plus your husband's biting his lip during the procedure (impossible with a tube down your throat I would think) -- makes it sound like the latter. A colonoscopy cannot diagnose celiac, because the damage is to the little intestine, not the colon. Even assuming...