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JennyC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JennyC

  1. JennyC
    You do not need to consume gluten for gene testing, only for blood work and biopsies.
  2. JennyC
    You really need your blood work results. It is possible to have positive blood work and a negative biopsy and still be diagnosed with celiac disease. You may want to give the doctor a call to see if your results are in!
  3. JennyC
    Yes, it is ridiculous. It is slowly beginning to change. Unfortunately, it was stated in an article in the New England Journal of Medicine that after new research comes to light it takes an average of 17 years for doctors to adapt new practices with their patients!
  4. JennyC
    That means you have to add extra cheese!
  5. JennyC
    Sure! The little amount of cheese that is added at the end is only used to increase the creaminess. Risotto is plenty creamy before the cheese!
  6. JennyC
    IgG tTG--This can be useful in case the patient is IgA deficient EMA--The doctors never even ran this on my son, nor are we learning how to run it in my clinical laboratory science program. It is thought to be more specific to celiac, but is less sensitive. AGA IgA/IgG--These are useful, but not the definitive test for celiac. I'm sorry if I...
  7. JennyC
    We are going to handle school just like anyone would who had the biopsy. My son is diagnosed with celiac, but we chose not to biopsy. No one ever questions his diagnosis. As long as you have a doctor on board with you to write a note or a 504 plan, you should have no problems.
  8. JennyC
    The most important tests to get for celiac are: IgA tTG Total IgA IgG tTG The IgA tTG test is the main test for celiac. It's a good idea to get the other tests as well, but make sure that the IgA tTG and total IgA are done. The genetic test can only exclude the possibility of celiac. Many people have the genes they screen for but do not develop...
  9. JennyC
    Oh, it was good! I'm adding it to my regular dinner rotation. Once you get the rice in the pan, risotto is not too time consuming. Last time I made it, I was doing dishes while I was adding the broth. The key to great risotto is to add the warm broth slowly and do not over stir because the starch from the rice needs to be released slowly to get the...
  10. JennyC
    I love risotto. I always end up making it the main course. Here's a recipe from epicurious that I made the other night: Lemony Risotto with Asparagus and Shrimp 3 cups reduced-sodium chicken broth 2 cups water 3/4 pound asparagus, trimmed and cut into 1-inch pieces 1 small onion, finely chopped 4 tablespoons unsalted butter, divided 1...
  11. JennyC
    It sounds like she still might be recuperating from the stomach bug. Pediasure says gluten free right on the package, but if her tummy is still upset I'm not sure that she would want that. Gummy Vites also say gluten free right on the label. According to a study that I read and also my son's gastroeneterologist it's not very common for young kids with...
  12. JennyC
    The fact that he's HLA-DQ-02 positive means that it is possible, genetically, for him to have celiac. Given his symptoms, he may want to consider going gluten free for a trial period to see if his symptoms improve.
  13. JennyC
    It's great that his tTG levels are normal, that's cause for celebration! His IgE is very high and I would speak to a doctor about this. IgE are related to "traditional" allergies, such as Hay fever or other food allergies, parasitic infections, and inflammatory responses. Does your son have environmental allergies or other food allergies? If it is other...
  14. JennyC
    Woohoo! Score!
  15. JennyC
    Yes. The wheat is a starting product in a flavoring in the oil. That component is processed in a way that is analogous to distillation. They have been ELISA tested to be <20 ppm, so I consider them safe, cross contamination issues aside. In regards to cross contamination, I don't even think the employees touch the fries! They open them up, dump...
  16. JennyC
    Tissue transglutaminase (tTG) deaminates the gluten peptide, so a deaminated anti-gliadin test is more specific for celiac disease. Celiac may not be the only issue at hand, but celiac can cause a lot of health issues.
  17. JennyC
    You had too much butter. There's no recovering from that once you start baking, you have to start over. I slowly add the butter, and often the crust does not require the entire amount of butter. After the butter is added you should have tiny light colored cookie clumps with some crumbs. If you press your finger into the crumbs your finger should not...
  18. JennyC
    I really don't think his theory makes sense from a pathophysiological standpoint. I don't see how adding a sugar to the protein, in the case of A and/or B antigens, would alter one's response to their diet so dramatically. If someone knows, please elaborate.
  19. JennyC
    My son was breastfed and had similar poop. It was yellow, liquid with mucous and what looked like tobacco threads in it and VERY STINKY. He would also spit up all the time. He has celiac disease and no allergies.
  20. JennyC
    You also need the IgG tTG and IgA tTG. Along with total IgA, those are the most important tests for diagnosing celiac disease.
  21. JennyC
    Anything that has a high protein content should work well. You could try fava bean flour, garbanzo bean flour, soy flour, or sorghum flour. I think that out of those sorghum and fava bean flours taste the best. Sorghum tends to turn light colored baked goods brown and has less protein than fava bean flour.
  22. JennyC
    I second that! We have lots of restaurants and shopping available. I have three gluten free pizza places within a 10 minute drive from my house! The best part is that in Vancouver Washington there is a little store that is entirely gluten free!
  23. JennyC
    I would be a little concerned with the birds, definitely do not have them anywhere near where food is prepared or consumed. You will need to replace anything that can not be thoroughly cleaned. That includes all anything that is wood or plastic and/or nonstick that is scratched. You will also need to replace all cutting boards, colanders and toasters....
  24. JennyC
    I thought I'd add my two cents. Cadbury is made by Hershey's. Hershey's is a very unfriendly company to those on a gluten free diet, so I would not buy their products on principle. Also these eggs contain "natural flavors" so they will not tell you if they are truly gluten free! I need to do more research on glucose syrup before I make a decision...
  25. JennyC
    Can you get blood tests for celiac and IgA deficiency? Blood tests are more respected by doctors, and I think it will be easier for you in the long run if you have the blood work. If you are IgA deficient, then you will have false negatives for any IgA related tests, including the most specific test for celiac: tTG IgA. I hope this helps!
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