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ravenwoodglass

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ravenwoodglass

  1. ravenwoodglass
    No you wouldn't. It is not the amount of gluten you are getting that is controling the symptoms it is the antibody reaction going on that is causing the problem. With all the risks you have been taking your antibodies have not had the chance to clear. You need to stop eating out for a bit and do encourage your BF to brush is teeth before any kissing. If you...
  2. ravenwoodglass
    Sorry you are feeling so awful. Time to heal from a glutening can vary person to person. Some are over the worst in a few days for others some issues can linger. When I get glutened I use Immodium only if I have to leave the house. I eat lightly for a couple days and I find Cream of Buckwheat to be soothing. If you are not yet avoiding dairy you should for...
  3. ravenwoodglass
    Good for you Mom! I hope she ordered a full panel and do be sure that you get a copy of those results.
  4. ravenwoodglass
    Welcome to the board Betty. Do be sure to read the Newbie 101 thread at the top of the Coping page. Being gluten free and staying safe is a bit more complicated than just the food we choose. While I don't have LP I do have DH. I never took Dapsone even though my DH was severe before diagnosis. I had been on so many meds for so many years that I just wanted...
  5. ravenwoodglass
    Welcome to the board. You both should get celiac panels done. Do not go gluten free until all celiac testing is finished. That is very important as being gluten free will cause a false negative. Routine blood tests won't pick up celiac but it can pick up stuff like the anemia you both have and it is fairly common for the liver panels to be a bit off also...
  6. ravenwoodglass
    Why is your doctor having you reintroduce gluten when it sounds like you had positive blood work and endo? Whatever the reason your body is telling you in no uncertain terms that it doesn't want you eating it.
  7. ravenwoodglass
    Some doctors will give a diagnosis based on the resolution of symptoms and decrease in antibodies after a time on a strict diet. While it is ideal to have a scope done there are some reasons that some refuse to have one done. For some it is the cost, for others concerns about having a pre-existing condition in their medical record and some just don't want...
  8. ravenwoodglass
    Please follow Squirmy's advice. I do hope your doctor has been frequently checking your liver function. I found cool compresses to help a bit. It will take some time but you will heal. You may also find that the neuropathy you are experiencing isn't so much a side effect of the drug as a symptom of nerve impact from glutening. I hope you heal quickly and...
  9. ravenwoodglass
    Do not go gluten free yet. Your symptoms sound like it could be an allergy. Has the doctor done any allergy testing? If not that would be a good idea. Have you seen a doctor or gone to the ER while an 'attack' was happening. That might be helpful with diagnosis. Is there anything that relieves the problem? Antihistamines like Benadryl for example. Although...
  10. ravenwoodglass
    If the Ttg was the only tests run it might be a good idea to also have the DGP tests. However, even one positive means you should be getting an endoscopy. After that is done you should go gluten free no matter the results. Positive blood trumps negative biopsy because damage can be patchy and can get missed. Do not go gluten free until after the endo. While...
  11. ravenwoodglass
    You do have that low positive so hopefully the doctors are looking for the cause. I know there are other disorders that can raise that just a bit above positive. It won't hurt to give the diet a good strict try for a bit to see if it helps as long as you are completely done with celiac related testing. I don't understand all the info you have about genes...
  12. ravenwoodglass
    I use Pepto Bismal liquid if I get stomach pain with a glutening. Usually it eases it with one dose. If you need to take repeated doses be aware that it can make your stool dark. If you get D Immodium can get it under control. I use the tablets.
  13. ravenwoodglass
    The maltodextrin in those is from corn. In the US if it is derived from wheat it has to be declared.
  14. ravenwoodglass
    I can only answer from my own experience but my asthma disappeared completely once I was diagnosed. Have no idea of the same would happen for you. I was on albuterol and singulair and only had to refill my inhalor once after diagnosis. Do keep eating gluten until you are done testing for celiac. Don't go gluten free first as you will need to go back on for...
  15. ravenwoodglass
    You have gotten some good advice from C-lady. With your having open lesions please be sure to check your topicals and make sure they don't have any gluten ingredients. You should also drop any iodine as that can keep the lesions active. Cool compresses may give some relief and although it may sound strange you may want to get some cotton gloves to wear to...
  16. ravenwoodglass
    Glad to hear you are feeling better. In the early stages of healing we can find we are very hungrey. Perhaps because our body is trying to make up for all the nutrition it was missing when we were sick. this should eventually resolve. Until then when do you eat your last meal of the day? Is it calorie and nutrient dense? You might try a substantial but easy...
  17. ravenwoodglass
    They are safe. Very few ingredients and nothing that would be risky. Spicey items can be an issue for some until they heal but you say you have been using them with no problems so enjoy.
  18. ravenwoodglass
    That is a pretty high positive. if it was related to another autoimmune issue then I don't think it would be that high. You only need one positive to be celiac. Do keep eating gluten but you don't need to overdo it. A couple of slices of bread worth a day should be enough. If you get D immodium can be helpful if you need to leave the house. Since you have...
  19. ravenwoodglass
    Just because you tested negative 2 years ago that doesn't mean you wouldn't test positive now. Also there are other genes associated with celiac than the 2 for which they commonly test. I presented with DH and neuro symptoms for years before GI issues became severe and I am a double DQ9. Your rash could be DH. It could also be another form of skin impact...
  20. ravenwoodglass
    I agree with C-lady about Cipro. I had a severe reaction to it. I only took one dose but it made me hallucinate and any food I ate for two weeks came back undigested. Cipro is a powerful antibiotic that targets specific bacteria. Before anyone takes it the doctor should culture to make sure that the bacteria it is effective against is present. It is not...
  21. ravenwoodglass
    What tests did the derm do? Did they run a celiac panel or do a biopsy on the clear skin next to an area of an outbreak? Have you seen a GI or regular MD about this? If so what tests have you done? A gene test can't diagnose anything it can only tell you what you may develop. Please also note, since you mention steroids, that steroids will give you a false...
  22. ravenwoodglass
    Testing before going gluten free is really best but if you can't do that then it would be a good idea to drop all dairy products along with the gluten. Celiac can damage the areas that produce the enzyme that allows you to digest dairy. If you have been gluten and dairy free and the D resolves then add each back in seperately for at least a week and see...
  23. ravenwoodglass
    In my childhood my Mom would use iodine if I got a cut or scrape. After I developed DH she had to stop using it and used peroxide instead. The burning would have me screaming. If you have DH you need to be VERY strict with the diet and many also avoid high iodine foods. I switched to non-iodized salt but some need to avoid stuff like seaweed and high...
  24. ravenwoodglass
    Hopefully you are feeling better by now. For me the symptoms you describe would be followed by a couple hours of severe D in the middle of night. If it is the same for you it might give some relief from the cramps. Considering your other condition you may want to call your doctor this morning. Ask to speak to a nurse (may need to call you back) and have...
  25. ravenwoodglass
    I had a lot of hive incidences before I was diagnosed. I would get them from pressure. Even just running my fingernails lightly on my skin could cause them. I also was allergic to 98 of 99 things that they did skin prick testing for before diagnosis. After I was found to be celiac and had been gluten free for a short time the hives resolved completely. My...
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