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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Thank you all so much for the info. I will pass it on to him.
  2. ravenwoodglass
    Welcome to the board. You have come to a great place for information. One thing in addition to the dietary trial that may help you a great deal is to add a sublingual (dissolves under the tongue) B12 daily. For folks with celiac disease the bodies ability to absorb and utilize B12 is severely impacted. Without it nerves cannot function properly. It could...
  3. ravenwoodglass
    Interesting, I would love to see a link to that, like I need more fuel to push gluten-free on folks!!! I sometimes make the comparison because in ways a low level poisoning acts the same way. If you look back through history there have been many times humans have used poisonous substances for mundane uses and ended up being made very ill and eventually...
  4. ravenwoodglass
    I realize this info comes from the EU but I thought since at this point their labeling requirments are a bit more strict than ours that the info might be of befifit. In the US substances such as the ones listed at present are still considered to be safe if derived from wheat. Since in the US these are not considered to be something someone reacts to adding...
  5. ravenwoodglass
    Carol, welcome, you have come to a great place for support. Don't give up on the diet, it takes adjustment but the damage that will be done to you if you don't do it will be more than you could ever imagine. For your sake and your families read as much as you can here and post any questions you have or just vent if you need to. There are a lot of us here...
  6. ravenwoodglass
    It's amazing isn't it when the pain goes away! I just wish doctors would at least suggest it as a possibility when folks appear with arthritic pain and so many other related disorders. Like you I was on a pharmacopia of meds, a tackle box full, when all I needed was a change in diet. It can take a while to heal but it sounds like you are well on your way...
  7. ravenwoodglass
    You may want to post this as a seperate topic, there are many Lyme knowledgable folks here. There are times when gluten and other intolerances can be a subset of Lyme symptoms and there are times when Lyme, or another stress on the body, will trigger celiac or gluten intolerance that is genetically driven. Others will be able to answer much better than...
  8. ravenwoodglass
    I do think they have at least a few stores in NJ, they are based out of Rochester NY. You can call 1-800-WEGMANS a real human will answer the phone and let you know if there is one near you.
  9. ravenwoodglass
    I don't know if someone has a list compiled but here are a few basics: Can Opener, (I put this first cause mine got me for ages ) Toaster Non stick and coated pans that are scratched Cast Iron pans (some have ones that they have been able to get clean and reseason but it is a process) Wooden Utensils Cutting Board Bread Maker Things...
  10. ravenwoodglass
    My DS seems to be having problems with this, he always has actually but it has been worse lately. His appetite is poor generally and when he does get hungry it seems he is full on very little. I see him often struggling to eat just a few more bites and his calorie intake is lower than both of us would like. I know there are others here that have had problems...
  11. ravenwoodglass
    If this is a confirmed migraine that has lasted for 3 days you may want to consider calling the doctor. Mine, thank goodness never lasted more than a day, I really feel for you. A friend used to get ones that would go on for days and often her doctor would be able to give her something that would stop the pain quickly and not have it recur on waking. I...
  12. ravenwoodglass
    I don't think your going to have too much of a problem with keeping to it. You have had a great response to the diet and chances are really good that your body is going to tell you in no uncertain terms that you need the diet if you go off it. You have found a great place for info and support, welcome.
  13. ravenwoodglass
    Ursa said it so well it leaves little left to add other than to say that I agree totally with making your home gluten free. Testing on little ones is not accurate most times and making your home gluten free is not going to increase their chances of developing the disease, but it may well decrease it. I would make the house gluten free, not just to help...
  14. ravenwoodglass
    That type of testing will not pick up gluten or casein problems as they are intolerances rather than allergies. You could go with enterolab, ask your doctor for a full celiac panel (knowing that these are not always correct either) or eliminate gluten and casein from your diet and see what happens.
  15. ravenwoodglass
    Do you by any chance have a Wegmans store near you? They have gluten-free corn flakes and they also label all the food they produce that is gluten-free. Shopping there helped my family a lot at first, you just look for the circle G and you know you have no gluten and no CC risk. I don't know if you live in a state they are in but just in case I thought...
  16. ravenwoodglass
    Neesee, I wondered if something like this might be going on. I have checked, as I am sure you already had and both of these meds appear to be gluten-free. However there were a couple of celiacs who had questioned it's statis due to some of the side effects. Have you been able to speak to your doctor about this reaction? Perhaps he might be able to prescribe...
  17. ravenwoodglass
    I just noticed you are newly soy free, the potato was just a potato right? No soy oil or anything like that? Soy still gets me too often, it seems to be in even more stuff than gluten, if that is even possible. I have yet to find a margerine or butter sub that is soy free. I just use olive oil or risk the casien in butter. I get the same sort of allergic...
  18. ravenwoodglass
    Welcome to the family. The idea that if you don't have one of the 'recognized' celiac genes is unfortunately not the case. There is still much to be learned about this genetic difference. You malabsoption scores were very high, and you will also need to avoid casien. Be careful as casien can be as sneaky as gluten and just because it says dairy free...
  19. ravenwoodglass
    If you go up to a persons name and click on it a pull down menu will appear. With that you can send them a PM, personal message. When you sign in to the board at the top it says 'my controls' near that is a icon for messages. They will also sometimes pop up when you get a reply.
  20. ravenwoodglass
    (((((((((HUGS)))))))) With a reaction like that please use caution with other nightshades, tomatoes, eggplant, and I think peppers also. I hope your over it soon.
  21. ravenwoodglass
    I am so sorry about your fiancee. Stress can play a big part in hair loss also, as mentioned. Try to take care of yourself nutritionally and acupuncture might help you deal a bit better with the stress. I would just check and see if any of the shampoos or conditioners have soy. If your scalp issues improve that would be a good indication that your skin...
  22. ravenwoodglass
    Mark the best way to identify this is to take one to your doctor. I would suggest, gross as this sounds putting it and a bit of your saliva in a small clean jar like a pill bottle and taking it in. He may need to send it to a lab if he feels it is something of concern.
  23. ravenwoodglass
    You actually have a real smart doctor. There are many who think that GI is simply celiac that has not totally destroyed your digestive system yet. If you have had a positive response to the diet that is diagnostic in itself. Your doctor went with the most valuable test there is, your response to the diet. You have your answer and don't need to look furthur...
  24. ravenwoodglass
    From the NIH:(the bold is mine) From the NIH: Polymyalgia rheumatica is a rheumatic disorder that is associated with moderate to severe muscle pain and stiffness in the neck, shoulder, and hip area. The cause of polymyalgia rheumatica is not known; however, possibilities include immune system abnormalities and genetic factors. From the Arthritis Society...
  25. ravenwoodglass
    That seems much more balanced nutritionally. The best place to go if you want guidance for an elimination diet is an allergist. He will basically drop you down to 5 nonreactive foods and have you add in from there. I think one of the most important things with any elimination diet is consistency. You don't want to jump all over the place adding something...
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