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thepeach80

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by thepeach80

  1. thepeach80
    See a new GI. I'm in the process now of getting a second opinion on my scope from last year. I was told there was damage but it was inconclusive. tTG of 4 in January and 5 in June.
  2. thepeach80
    Mine was easy peasy. Went in, had it done, hubby had to drive me home and I was supposed to be calm that day but life returned to normal that night. That was Monday, had results on Friday saying I needed more testing.
  3. thepeach80
    What flour are you using? What recipes are you using? What are you trying to bake? Sometimes I have some recipes that turn out great and others are less than desirable. I remember the ones that work and toss the ones that don't.
  4. thepeach80
    Thanks!
  5. thepeach80
    I'm sorry, this is probably somewhere else but I couldn't find it. This is the panel I was told the kids should probably have. Anti-Gliadin (AGA) IgA Anti-Gliadin (AGA) IgG Anti-Endomysial (EMA) IgAy Anti-Tissue Transglutaminase (tTG) IgA Deamidated Gliadin Peptide (DGP) IgA IgGTotal Serum IgA How many of those need to be + to warrant more invasive...
  6. thepeach80
    One of mine didn't tolerate Elecare but did great on Neocate. What are you going to give her in place of formula?
  7. thepeach80
    I have no problem with paper tape for some reason. Doesn't stick as well and if you have an IV you'll need to be more careful but I learned my lesson when I was hospitalized last. I'm supposed to tell the hospital I'm latex allergic but I don't think it's latex at all but I guess it makes them more aware if they see the red and the alerts. I had leads during...
  8. thepeach80
    I know it's a few weeks old, but check tonsils and adenoids for sleep apnea as well. My son, he's still tiny and with my dx everyone is getting screened, was 28# at almost 4 when he had his tonsils out. He shot up to 34# in 4 months because he could find sleep at night and was able to grow. He's 9 now and down to 56# after getting sick in December, sigh....
  9. thepeach80
    We had a lot of food issues with 3 of my kiddos as babies. Hypoallergenic formula like Alimeuntum is not dairy free, my bad three couldn't tolerate it and did well on Neocate when we stopped nursing or as a supplement in the toddler years. My one couldn't have corn either until about 15 months so we were born on a dairy/corn free diet. It's about impossible...
  10. thepeach80
    Food protein induced entercolitis syndrome and eosinophilic esophogitis. We had our now 9yo tested for EE at 12 mos, but no one told us at the time the diet he and I were on wouldn't show symptoms anyways even if he had it. Thanks Drs. I'm going to message you.
  11. thepeach80
    YAY! That's great.
  12. thepeach80
    Beth, I would love recipes for more homemade stuff. I just learned yesterday that you can't make pancakes with just tapioca flour, lol. That's all I had left though.
  13. thepeach80
    Stupid computer, grrrrr. Anyways, long story short. Thank you, especially Beth, I need blunt and to the point most times. It's chaotic here between jobs and kids and school. Hopefully when I graduate in a few years I will go gown to one job and it'll be a little less crazy here. The kids see their Dr on the 17th for their regular check up anyways so hopefully...
  14. thepeach80
    I have 5 kids age 2-11 and a gluten eating hubby. I make food for everyone and budget constraints don't allow for a 100% gluten-free household. Now if one or more of the kids screenings are + it might be a necessity and we'll figure it out, but it won't be easy. This is not about not wanting to so please don't imply I'm doing this half-ass. I work very hard...
  15. thepeach80
    I was not really diagnosed a year ago, but I have recently seen my lab results from my tTG and paired with my scope results I'm ok diagnosing myself as Celiac despite being told I'm negative. I've been gluten-free for a year now, but there are 6 other people in my house not on a gluten-free diet. So....how much cross contamination am I getting? I tell when...
  16. thepeach80
    Google it. The thought of it makes me gag, lol. We're talking to our ped soon about testing the kids. My 5yo has 3 crowns she had put on before her 5th birthday. Been to the dentist every 6 months since she was 2.5. Makes me wonder.
  17. thepeach80
    Poor thing. I have an 11yo and 9yo and they are tough. We have a family psychologist we see, but I think you're at a good time at least. Summer is here, time to adjust to the new diet and figure things out a bit. Maybe talk to the school counselor or psych and have a plan in case it starts again next year.
  18. thepeach80
    Being a new diagnosis, I'd wait on surgery. See what going gluten free does for you. Having gastric surgery is a big change and requires lots of diet changes and often B12 supplements. Gluten free is a big enough change for most people to handle without adding more to it. I was like you, we did things backwards. Scope, which showed damaged consistent with...
  19. thepeach80
    Depending on where you live, getting Vit D from the sun isn't easy to get. Here we have only 3-4 months where the sun is at the right angle etc for absorption. The other 8-9 mos supplements are needed.
  20. thepeach80
    I was 19 Dec 2010. Took 10000IU daily for a while, didn't get retested until May 2013 and it was 26. Went gluten-free in June and a year later I'm at 32. I have been slacking on Vit D supplement though.
  21. thepeach80
    I just realized my GI now has a patient portal so I can I have access to my past blood work. I just signed up and sent a message to add my past blood work on there so I can see what I've been tested for and the results. Is it worth doing the gene testing on myself and the children? I have 2 kids I am more concerned about than the others.
  22. thepeach80
    Weird mish mash of questions, so bear with me please. I don't remember when sx started, first bad sx started in 2007 around my daughter's first birthday. Went gluten-free, easy enough as we were doing a gluten-free trial for my son then too (3 of my 5 kids have had wheat issues in infancy/toddlerhood) sx went away. Came back randomly, dx with IBS in 2009...
  23. thepeach80
    We did my stuff backwards from most it seems. I had a scope and was told I had damage consistent with early Celiac so they then did the tTG. I had a 5 which I was told was negative. Mayo lists that as a weak positive though and used with my scope results I believe I have Celiac even though my GI won't dx me. I've been told I could have non-celiac gluten sensitivity...
  24. thepeach80
    I would contact one of your local Hy-Vee dieticians and see if they something. The Omaha ones are super when it comes to celiac and we get e-mails from them every other week or so. They also just started a pediatric celiac group that Evan and I go to when it meets (once a month) at the different Hy-Vees.
  25. thepeach80
    Our GI has a nutritionist we can talk to at anytime. I would make use of that if it's offered. I haven't found anything that can't be replaced w/ a gluten free product, it may be a little different, but you have a lot of options. For Evan, he stopped eating as much when we went gluten free. We think he was eating so much b/c he wasn't absorbing right and...
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