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ChemistMama

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Everything posted by ChemistMama

  1. ChemistMama
    I'm bumping this thread..when I posted in July 2009 the angus burger contained wheat, and 6 months later they changed the seasonings, which I only found out about now! My non-gluten-free daughter wants to go there, and since my gluten-free son wanted a toy and apple dippers, I decided to re-check the allergy info. I was wondering if anyone else has been brave...
  2. ChemistMama
    Sulfapyridine has some of the same side effects as dapsone, and it's probably pricey since it's an orphan drug. Nicotinamide, from what I've searched, is used in conjunction with another drug like a tetracycline, not alone. Open Original Shared Link
  3. ChemistMama
    Antihistamines do nothing for DH (except if you take enough of them to make you fall asleep). DH isn't a histamine response, it's another part of the immune system. I've found that Sarna lotion (the one without the menthol) works great. It contains the painkiller that's in Neosporin Pain and it works great to dull the itching. As for iodine, you don't...
  4. ChemistMama
    Sarna Lotion sensitive (the one that doesn't have menthol) has a painkiller, it works great and helps a lot.
  5. ChemistMama
    Wil Wheaton (of Star Trek: TNG fame) has a sister who has celiac disease, and his Mom has started a new site, Open Original Shared Link. See his post about her site here: Open Original Shared Link Supposedly CBS has agreed to air a PSA on celiac disease!
  6. ChemistMama
    I would go to glutenfreedrugs.com. Print out his list of gluten free drugs and send it to the hospital before you go, so the hospital pharmacist knows which meds to give you. Brand name Percoset is gluten-free according to the list. Because of the way they're formulated (liquids, not solid pills) injectable drugs don't have gluten in them, so if for some...
  7. ChemistMama
    The drug companies are not required to list allergens on medications, so yes. If you look at your equate bottles, there's a toll free number on the back. Call them and ask if your medications are gluten-free. Any ingredient containing the word 'starch' is suspect, but it doesn't necesarily mean it contains wheat starch. Take a look at glutenfreedrugs.com...
  8. ChemistMama
    If I didn't have those nasty side effects, my goal was to stay on it for a year and then taper off. I'd heard that it takes about a year for DH to totally clear up on its own (no dapsone), but that may be just anecdotal. I would think about how long you want to stay on, then taper off the drug (take 1/2 pill a day for a week or 2, the 1/4 per day for the...
  9. ChemistMama
    I agree with Richard, you must absolutely have blood tests, weekly for the first month then monthly after that. I had no problems with my bloodwork, but I had the other side effect, which is extreme muscle weakness. I couldn't walk without being out of breath and tired, and I pulled more muscles than I knew I had. I couldn't exercise and gained weight. I...
  10. ChemistMama
    Hee hee, that's hilarious but so true! A lot of gluten-free beers are just too sweet for me. I've decided that redbridge and New Grist are my top two. Have you tried St. Peters Sorgam Ale? It's my very favorite, it's drier and a lot hoppier than the gluten-free beers out there. (PS, this isn't my blog, I'm just using it for reference: Open Original Shared...
  11. ChemistMama
    I wanted to post an update, I didn't end up going to CF because there was a snow/ice storm and we would have had to drive through it for an hour. Just FYI, the last time I was there I had the thai chicken lettuce wraps, which are fine as long as you ask for grilled chicken and no side sauces (the coconut sauce on the noodles is fine, and acc. to the list...
  12. ChemistMama
    YOgurt, some dried fruits, a lot of Aldi canned goods now say 'gluten free' on the label. They also have Fit and Active meatballs that appear to be gluten-free, I bought a bag to try. Some lunch meats and all their hummus is labeled gluten-free.
  13. ChemistMama
    No, citrus shouldn't affect your DH.. You may have inadverdently gotten glutened at the same time.
  14. ChemistMama
    Are you eating iodized salt? When you first go gluten-free, to keep the DH from getting worse you need to stay away from iodine and NSAIDS(like advil and aleve) for awhile until all the the gluten gets out of your system, maybe a couple months. Iodine is found in vitamins, seaweed, and shellfish, as well as iodized salt. Once you're gluten-free for awhile...
  15. ChemistMama
    According to my link above, the Godiva chocolate cheesecake is not listed as gluten-free, but I think that's because Godiva states that all their chocolate is not gluten-free (I believe it's a CC issue, and so jas the Triumph guide's blog). I'll probably take the risk and get the cheesecake.
  16. ChemistMama
    OH goodness, see what you find while surfing? The hidden cheesecake factory allergen list. Open Original Shared Link
  17. ChemistMama
    My mom asked to go to the Cheesecake Factory for her B-day next week. Last year I went and had a plain but good (=didn't get sick) meal, but I wanted to know if anyone had been there recently. (FYI last time I had the Thai lettuce wraps with no sauce on anything, it was really boring.)
  18. ChemistMama
    the chili beans at Aldi are also gluten-free.
  19. ChemistMama
    According to this:Open Original Shared Link very few people have iodine allergies/sensitivities, and these usually come about when you have to ingest iodine. Both of your responses to iodine sound like DH to me for sure. In a normal person, the iodine would stain their skin and then be absorbed back into their skin over a few days. If you've both just...
  20. ChemistMama
    Hve you talked to Steve Plogsted who does glutenfreedrugs.com? He's a pharmacist and has been telling the FDA about this for years.
  21. ChemistMama
    I think you need to read their labels more carefully...they now stamp everything with "no gluten ingredients', which is not the same as 'gluten free'. TJ's is always a hotly contested topic on these boards. Do a search and you'll see for yourself. In short, we like that TJs is up front with their labelling, but whether you eat said item is up to you. There...
  22. ChemistMama
    I emailed Brachs (owned by Farley and Sather), part of their response is below. It looks like now they're stating whether their candies are prepared on shared lines. The two bags of Brachs candy corn and autumn mix I found at Wal-Mart both had statements that the product was made or handled on shared lines with wheat. I think it's a personal choice, some...
  23. ChemistMama
    If you're careful there are some places you can eat out, probably just not with the foods used to eating. There are some chains that you can eat at, like PF Changs, Monical's pizza (in the midwest), Panera, Moe's mexican, Qdoba, Outback, Pizza Unos, etc. I personally really like thai and indian food, and have found places near me where I can trust the food...
  24. ChemistMama
    I carefully read the labels to make sure they don't contain anything wheat related (wheat germ oil, etc). Call Neutrogena, they'll tell you if the product you're looking at is gluten-free or not. The phone # is on back of the package, or probably on their web site. I"m not as careful as some people, but I figure it's a small amount and I"m not eating it ...
  25. ChemistMama
    Have you been diagnosed by a Dr. with DH, or is it a self-diagnosis? If you diagnosed yourself, you may want to try the iodine patch test, since you just glutened yourself. Search the forums here and you'll find some info. Besides, if you have DH that equals celiac and no more wheat for you, ever, sorry! Also, does your rash get better when you take Benadryl...
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