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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    Hi Ryan, Well, that was nice of the nuerologist to give you a welcome! There is another member who avoids cheese for some condition that I don't recall the name of. Adelaide. She might have some info for you. Some people also react to food colorings, especially reds. Maybe that is related to the red cheese, not sure. Hard cheese are mostly casein...
  2. GFinDC
    You are welcome GL. I had left a "not" out of sentence above. It should have said the immune system is not going to back off in a few days. Criminy, it seems my typing is not getting better gluten-free! but then my looks haven't gotten any better gluten-free either, so what can you do? I edited the original post above, sorry. The immune reaction does...
  3. GFinDC
    Hi RLAZombie, It's no problem to go gluten-free without a formal diagnosis IMHO. If the tests don't find anything it is still possible to have a problem with gluten. As they say the proof is in the pudding, and if you get better on the gluten-free diet that is good enough proof you shouldn't eat it. I do suggest you write down your symptoms when eating...
  4. GFinDC
    Hi Ryan, I don't get those symptoms myself, but posters on the forum have talked about getting migraines before. Some have said they get migraines after accidentally consuming gluten or being cc'd. I know you didn't mention migraines but it seemed like it might be related. We have also had discussions about allergies in the past. Usually it seems...
  5. GFinDC
    Hi Peeptoad, Casein is a protein in dairy. lactose is a sugar. When you eat hard cheeses, you are mostly eating casein because the cheese making process removes the lactose. So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance. Symptoms are variable, but digestive...
  6. GFinDC
    HI rt1234, Sounds like celiac symptoms. There are other things it could be. It is important to keep eating gluten (wheat, rye, barley) until the medical tests are all done. The tests are usually an blood draw for testing antibodies to gluten (gliaden) and later an endoscopy to check for damage to the gut villi). The test results usually take a couple...
  7. GFinDC
    Hi, Yes, it could be. They don't have any test protocol for NCGS at the moment. You are still pretty early in the gluten-free diet though. Did they do all the antibody tests, or just part of them? It is fairly common for them to only do a couple of the tests and leave others out. http://Non-celiac wh...ists/Page1.html
  8. GFinDC
    Hi DS, I guess we might as well support each other. At least we know what it's like to live with this condition, whereas other people don't. Dr. Fasano has a relation to a company working on a drug to treat leaky gut. It's still in testing I believe. Alba Theraputics. Open Original Shared Link My food intolerances are listed in my signature...
  9. GFinDC
    Hi LJ, I ran across some of these Latex free bandages in my local organic market today. It looks like they make a line of latex free products. the company is called "All Terrain". Open Original Shared Link
  10. GFinDC
    Hi DS, I've went to Google University for 5 years after I was diagnosed. Also read a lot here at celiac com. I didn't have an endoscopy. I also flunked my celiac blood tests, not positive. I had to wait over 3 months for my appointment at UMD and went gluten-free before that. So my tests were not accurate. But Dr. Fasano said it sounded like celiac...
  11. GFinDC
    Hi GL, If you got hit twice in December and now in early January, you may need to tighten up your diet some. Not just for immediately following an exposure though, but all the time. The immune reaction is not going to stop within a couple days. It takes time for the immune system to back off and relax. Sticking with easy to digest whole foods and...
  12. GFinDC
    Vegetarianism is one of the end times signs. Fun fun! I think one problem for many vegetarians is eating too much soy. There are all kinds of soy based foods in the grocery stores now a days. And soy is not real good for people IMHO.
  13. GFinDC
    Tanks Wolfie! That's what cats r 4.
  14. GFinDC
    Hi DS, Oh yes, you can still heal. The villi are normally replaced every three days or so. It's a constant process. If they weren't replaced that often, we would all be in trouble, even non-celiac people. Especially the part right near tehstoamch is ht with stoamchaicd every day. The liver dumps nuetralizing chemicals in the gut to keep it from getting...
  15. GFinDC
    Hi Krista, I had to give up bean for a couple years because of reactions to them. But I can now eat limited amounts of them. Black beans, also called turtle beans are the ones that work best for me. I pretty much only eat them actually. I get the dried beans and cook them myself, instead of getting pre-cooked ones. I wash them before cooking also....
  16. GFinDC
    Sounds good Jillian. Writing down your symptoms ahead of time to give them at the visit is a good idea. Not as likely for them to miss something that way. Just use a water pistol for the blazing tho, that should get their attention well enough! Thanks for looking at my art site. It is great fun to do. I hope you do get back into it sometime, It...
  17. GFinDC
    Neat picture Addy! It's so great you got to pet the giraffes and feed them bread! They are certainly amazing animals. Very cool critters. There was video going around of a giraffe fight earlier this week. This isn't it, but there are others on Ye Ol' tube. They said their necks weight 500 LBs. Have fun swimming with the dolphins IH. But bring...
  18. GFinDC
    HI DS, Scalloping does tend to mean serious damage. But they also said some shortening of the villi, so there must be areas that don't have total villi destruction. Keep in mind the endoscopy can only reach 5 or so feet into the small intestine, really just the beginning of it. There are 17 more feet they can't even seen. Those 17 feet may be in much...
  19. GFinDC
    Oh, I love it too! (As long as someone else does it)
  20. GFinDC
    Hi Jillian, They should give you copies of the test results. If they don't whack 'em upside the head! Nicely of course! Vitamins are A, E D, K and B's and iron that should be tested. Thyroid is TSH, T3 and T4 and TPO antibodies. Bone density is not a bad thing to ask for if they have it..
  21. GFinDC
    Hi Wolfie, Looks like we gots anutter one wit the latex allurgee. LJ seems to have it also, but she is just trying to get it figured out with her allergist. Can you give her any advice? http://www.celiac.co...nt/#entry846896
  22. GFinDC
    Hi LJ, Shadowicewolf has a latex allergy I think. She mentioned it recently in the funny pages. She might have some idears for ya.
  23. GFinDC
    Hi LJ, I guess it depends on how you feel about the testing. It might be a quick way to figure out other triggers. So that would be good. If you don't get the testing, you may get surprised some day by a reaction. Are you prepared for that now? Since the cell phone thing didn't become obvious until he asked you about it, maybe it makes sense to go...
  24. GFinDC
    Hi LJ, I guess banana leaves are out eh? Sorry, not much help for the undies thing here . I am kind of partial to those ones they paint on myself, being an artist I like that painting stuff ya know. Well, I am totally useless for your situation I guess, but please take a look at this thread started by Riceguy on allergies. Especially the post he...
  25. GFinDC
    Hi Zibby, If you want to go ahead with the the gluten-free diet without testing that's fine. But be sure you can stick with it without a diagnosis. The blood antibody tests are a simple process now, but they are difficult later. All they do is draw a little blood and send it to lab for testing. If you wait until after you are gluten-free, you will...
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