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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    It is not surprising at all that the antibody blood tests are negative when she has symptoms. That is common. The antibodies are mostly in the gut where they do their work, not circulating around aimlessly in the blood stream. Some people never test positive on blood tests even though they have severe celiac symptoms. Being short and having the digestive...
  2. GFinDC
    Bragg's Amino Acids are another option. They are gluten-free but do have soy in them. Open Original Shared Link Ingredients: Our Bragg Liquid Aminos are made from health-giving, NON-GMO soybeans and purified water. They are an excellent, healthy, gourmet replacement for Tamari and Soy Sauce. Not fermented or heated and Gluten-Free.
  3. GFinDC
    I think kidney problems are associated with high blood sugar also. Might be something else to check on. I put in just part of the info on the page, there is lots more to read there. Open Original Shared Link Open Original Shared Link Listen to text High blood sugar can overwork the kidneys, causing them to stop working properly. When...
  4. GFinDC
    This article might be interesting. I wonder if the doc thinks you have too much vitamin D or calcium? The part about hypercalcemia sounds like a possibility? Open Original Shared Link Toxic doses... What exactly constitutes a toxic dose of vitamin D has yet to be determined, though it is possible this amount may vary with the individual. ...
  5. GFinDC
    Easy thing to do. I used to eat Midel cookies but stopped due to soy. They do have packages that look very similar. The stores I go to do the same thing too, putting the gluten-free cookies right next to the non-gluten-free cookies. I have had to look twice to make sure which are gluten-free. Lots of stores put the FFL Ezikiel bread next the gluten...
  6. GFinDC
    Hi, It doesn't seem like you are really having a problem with dairy if you are eating yogurt, cheese, and using milk in baking. So if that is the case there may not be any need to restrict yourself from it. Do you have symptoms from eating dairy? If not don't worry about it. If you aren't sure then they way to find out is to stop all dairy completely...
  7. GFinDC
    Sorry, munchkin is just a joke. Silly. The testing is not perfect in the best of times. There are a couple of thread links on testing in the FAQ. There are different tests and they have different accuracy rates. Some are up to 71% accurate for negative results. That means they have a 29% error rate. Others are more reliable. Positive results are...
  8. GFinDC
    I think they can test for Crohn's by looking for antibodies to yeast. Some people do have both celiac and Crohn's. I guess that's different kind of CC. Some people with Crohn's follow the gluten-free diet also.
  9. GFinDC
    Hi Cindi, Welcome to the site. I totally get what you mean by hoping it is celiac disease. It is nice to find an explanation sometimes. You do need to keep eating gluten until your testing is complete. It is easier to stay on gluten and get tested than to go on the diet, go back off for testing and start over on the diet. Some people don't need the...
  10. GFinDC
    Agree on the tossing, hopefully before you eat it though. I had problems with their products several times so I stopped eating it. There are other bread like Udis' Glutino, or Rudi's that are ok. Enrgi bread is good bird food too IMHO. Some people like it but I think it's too dry and crumbly.
  11. GFinDC
    Hi, There is a skin condition associated with celiac disease called dermatitis herpetiformis or DH for short. There is a section of the site dedicated to DH.. That might be a good place to do some reading. DH is a rash that people with celiac disease get. One way to diagnose celiac disease is by testing a biopsy of the skin near a lesion for antibodies...
  12. GFinDC
    Welcome to the site Cityflower. Nice name! There is a gluten withdrawal that some people experience. That could be the catalyst for your binge. Gluten withdrawal symptoms fade with time so all you have to do is stick it out and they will go away. How your body reacts to gluten may change as you are away from it longer. It is not a set in stone thing...
  13. GFinDC
    Welcome Gary. You may have noticed there are quite a few of us with dairy problems in addition to gluten. For most it is not an allergy though but an intolerance. Either way avoiding dairy is the answer for many of us. Please do feel free to ask questions. We all learned this stuff for the first time ourselves once, even if it was a few years ago or...
  14. GFinDC
    Hi Uafnanook, What you are considering is called a gluten challenge. That's when you have been gluten-free for a while and then try gluten again. It is a pretty good diagnostic tool. I think it would be best to start slow the first couple of days. Keep a journal of your food you are eating and how you feel each day. To be sure you are reacting or...
  15. GFinDC
    HI Barry, You can get skin prick testing for inhaled allergens. There is also a blood test for allergens. I am not sure either of these tests are perfectly reliable but they are something. There is also Enterlabs that does stool testing. Food intolerance testing is tougher though. Food intolerances are harder to test for than allergies. They involve...
  16. GFinDC
    Ha-Ha , one arse kicking coming up! I wear a size 12 boot Barry, is that big enough to do the trick? You are really setting yourself back when you cheat on the gluten-free diet. It can take weeks for the autoimmune process to calm down once started. So it isn't something you can just take a little gluten here and there and be ok. It is not a weight...
  17. GFinDC
    It doesn't do any good to be tested after being gluten free. The tests for the antibodies are not going to be reliable unless antibodies are being produced. Enterlabs is another possible option. They say their tests are accurate even after going gluten-free for up a a year. Enterolabs does stool testing, not blood antibodies. Your husband should really...
  18. GFinDC
    Hi Alice, Healing your leaky gut is a phrase people use to describe getting past the inflammation and damage done by celiac disease to your intestinal lining. It doesn't mean the immune system has stopped caring what you put in your body, but that the immune attack has stopped since you aren't throwing gluten at it. That gives your intestines a chance...
  19. GFinDC
    Caffeine and I don't mix well. I can drink it for one day but then after a few days running it will mess me up. When I was concerned about my blood sugar my doctor gave me a meter and test strips and had me check my levels every day for a 2 week period. You really can't depend on a one time reading to know what is going on. You would get a more meaningful...
  20. GFinDC
    Is this thread you are asking about? I saw several replies but maybe they aren't what you were looking for. There are people who keep horses on the forum so but they may not have seen your post. Horses horses and Celiac Anyway, here is a search link for threads about horses and feed. There are lots to choose from, maybe one will answer your question...
  21. GFinDC
    Hi Ziva, Sounds like you are having an interesting time with the diagnosis. That is more the norm than an exception when it comes to celiac disease. The attached link has lots of info and a thread link for safe foods. It is an announcement in the forum sections at the top but doesn't show up unless you are looking at the whole forum vs a thread. There...
  22. GFinDC
    I felt like there was nothing I could eat at first too. It took a while for me to realize I was feeling that way because of my habit of eating certain foods was being interrupted. There were lots of alternatives but I just wasn't used to thinking of them as food. If it wasn't in a box ready for the microwave or at a fast food joint it wasn't something...
  23. GFinDC
    I saw that story too. Babies and celiacs beware! I thought it was interesting that they said the white rice is not as bad. But the organic brown rice syrup is a problem.
  24. GFinDC
    How about the cat? Do you give the cat any special treats on Friday night? I know I used to give Muffin extra treats on Friday nights. Since she had worked so hard all week long ya know. Anyway, everyone knows Fridays contain gluten right?
  25. GFinDC
    I saw this today and thought it might be worthwhile noting. The article refers to brown rice syrup and products made with it, including gluten-free foods. They say the white rice is not as much of an issues as the arsenic is in the hull and that is removed to get the white rice. Maybe some people are reacting to arsenic in their gluten-free processed foods...
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